Polymyalgia
Posted , 9 users are following.
Hi to you all out there fellow sufferers from this painful condition. have been a sufferer for 7 years now and during that time have been on pred (under 10mg) and methotrexate 10mg. I am now off of Meth for 2 months and boy oh boy am I having some flare ups. One day okish and then crawlig up the stairs on all fours. I am only on 5mg of pred and am very trempted to up it to 10mg - have thought about alt days dosing!!! having read one of you does this. I seem worse these last 6 months than all of the prev 7 years. Does anyone know of anyone who has had it this long and it goes??? my doc says it will...........huh!
take co-codermol on bads days but makes me sleepy and I am a busy person - but those days I just am in a dream. Finding myself in tears when I am on my own as it makes me feel so low. NOT LIKE ME at all.
Seeing doc next week and know he has been advised by Rheumy to put me on leflunomide - anyone used it?
Any advice always appreciated.
0 likes, 34 replies
BettyE
Posted
\"We are all in this together\"
\"It's the fault of the last govt. that we have this deficit\"
\"The bankers will all decamp if we tax them\"
Really? Who would have them?
Posh_Spice
Posted
10mgs a day now and feeling a little better- groin, thighs hurt on some days and I find it difficult to walk. I look like an old lady.....
My neck is not so stiff, which is good as I was begnning to wonder what was going on in my head as had a few dull headaches too. Maybe just stress of coping with this illness on my own as Doc useless. Will have a right go at Rheumy about that as I think it is disgusting to hand us out all of these pred pills and expect us to take care of ourselves. Good to have the back up of you all it is much appreciated. :lol: Take care. Posh
Amycakes
Posted
Thanks for your message.
Hang on in there.
I too still have back aches, calf muscle aches, funny head on occasions, also feel like an old lady & looking more like one everyday.
Sorry your doc is'nt more helpful.
At least we have this site to turn to, I know they have all helped me enormously, I feel quite knowledgable [cant spell] on times!
Its a horrible condition to find ourselves in, but with the help of these wonderful caring people here we will overcome as they say!
I sent my daughter in New Zealand a recent photo & she joked that at the airport I had better hold up a placard! cheeky monkey!
Keep your chin up girl you will get there.
My aim is to get to a more reasonable dose of preds, as I am sure a lot of problems we are getting is from them as well as P.M.R.
Anyway thats my thought on it.
Cheers Amycakes.
Posh_Spice
Posted
Anyway he tried again to push Leflonomide on me but I refused. I have been takin g 10mg pred for 2 weeks and dropped it to 7.5/5mg alt days now and so far so good. Little pain but nothing to what I had. He agreed with me that I should keep to this low dose and come back in 3 months if no more flare ups....if I did flare up again (which I am sure to) we would have to talk about what to do next...... take my calcium/Vit D and bloods are good except slight inflammatory markers ESR 13 CRP 14 so a good recuction in the last month. I am not happy taking steroids but would rather take that than any of these RA drugs. So have to watch weight again as the 2stone I put on preciously is still with me. So salads eavery day ha ha. It is good to feel so much better, but being cynical I/we know it will flare again - name of the game eh!
So sorry for all of you \"beginners\" it is a lon g road - but never say never.
Keep researching - Rheumy says we know more than him!! and I reckon he is right some of the time 8) Keep you posted
Poshie