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polymyalgia

Posted , 10 users are following.

margot34956
margot34956

Hi everyone, I am so glad to have found this forum and have read and read as much as possible. It's not so lonely anymore.

I was diagnosed with polymyalgia in November last year. I did not want to take steroids but feel tricked by my Dr who told me I would only be on them for 2 to 3 months. I was so upset to discover that's not the case at all.

Anyway what I wanted to ask was if anyone is on or has tried the anti inflammation diet? If so what are your experiances and how do you know which foods to eat? Any help appreciated.

 

1 like, 16 replies

16 Replies

  • shawn99
    shawn99 margot34956

    Posted

    Hi there,

    It would not hurt to try a anti-inflammatory diet. I am on one and unfortunately have not seen any positive results.

    I have not heard from anyone yet that it works, including many health professionals. Saying that, I would give it a go if I were you.

    I have been researching material on specialized pro-resolving mediators (SPMs) that seem to be holding promise for us PMR sufferers. They are a natural, concentrated product, with no chemicals.I believe they are available in the USA, which company I am not sure.

    You’ll have to search online for the company name.

    Just about any arthritis association can help you with your diet.

    Cheers and good luck!

  • shawn99
    shawn99 margot34956

    Posted

    Hello again,

    The name of the company that produces specialized pro resolving mediators is "Metagenics"

    Good luck.

    • margot34956
      margot34956 shawn99

      Posted

      Thank you so much Shawn99. I will definitely be looking that up. Thanks
  • mary19068
    mary19068 margot34956

    Posted

    Hi margot34956

    I will send a you a private message with some reading material on the subject...

  • sandy65909
    sandy65909 margot34956

    Posted

    I tried Tumeric that is supposedly good for inflammation then when I forgot it on a trip I noticed no difference so I stopped. When first diagnosed, I thought I had more pain the day after eating eggplant parm so I cut out night shades...eggplant, peppers, tomatoes, potatoes. 6 months in and I still avoid these foods. This week I am reintroducing a small amount of tomatoes to see if I can tolerate them. All this could really be unrelated to pain since it is hard to isolate each variable. I think we do it to have a sense of control since the illness makes us totally out of control and sneaks up out of nowhere. 
    • margot34956
      margot34956 sandy65909

      Posted

      Thank you very much sandy for your reply. It is very interesting. I have a lot of pain today and nausea. I ate tomatoes for the last two nights. I will not be doing that thanks to you.

      I am still learning the anti inflammation diet.

  • Anhaga
    Anhaga margot34956

    Posted

    Even natuoropathic doctors say that they cannot cure polymyalgia and send patients to their GPs.  At least they do if they are honest.  I have myself heard more than one trained naturopath say this.  That said, do what you can to improve your health through diet and a few judicious supplements.  That can't hurt.  Good luck!

    • margot34956
      margot34956 Anhaga

      Posted

      Thank you! Anhaga I appreciate your reply. I am going to see a naturopathic Doc.

      All the best to you!

    • margot34956
      margot34956 Anhaga

      Posted

      Thanks Anhaga. I will take your comments into consideration. I am quite concerned about the cost. Thanks
  • ptolemy
    ptolemy margot34956

    Posted

    Hi Margot

    What hole in the ground do some of these doctors live? When I started pred I really looked at my diet and became a nutrition nerd. I hope it all worked, but I can now bore friends stupid on diet.

    • margot34956
      margot34956 ptolemy

      Posted

      Thanks Ptolemy! yes I with you am very disappointed in the Doctors. I will try the naturopathic. Have a lot to learn about anti inflammation. Bless you
    • EileenH
      EileenH margot34956

      Posted

      Margot - naturopaths are no better and often considerably worse for you than mainstream medicine. They appear to be "all over you" - because they usually are looking to make money from you. If you have PMR and then go on to develop GCA and it affects your vision a naturopath can do nothing to reduce the risk to your sight. For that you need mainstream medicine and corticosteroids. No ifs or buts.

    • margot34956
      margot34956 EileenH

      Posted

      Wow!  thanks for your straight up comment. I will see both Dr's I am really concerned about GCA

  • EileenH
    EileenH margot34956

    Posted

    There are a couple of people who have tried the antiinflammation diet and say it helped a lot - but I know of noone who has managed it alone, they have used it to help reduce their need for pred, which for some, but not all, people it does seem to do. Many people add antiinflammatory foods and spices to their diet and believe that helps them a lot. That basically includes oily fish, turmeric and ginger, nuts, olive oil and certain fruits and veg. If you google antiinflammatory foods you will get lists. Avoiding sugar and white carbs is also recommended. So including some things and avoiding others may well help without making life very hard work.

    The antiinflammatory diet is very restrictive - and so many people find it hard to stick to. It usually says "no nightshades" (amongst a whole load of "NO ..."wink - which includes tomatoes, and yet tomatoes are held by others to be antiinflammatory. Which introduces so many contradictions one is left to feel it is all a bit nebulous!

    • margot34956
      margot34956 EileenH

      Posted

      Thanks very much EileenH. I had tomatoes for two nights and was in more pain than usual today. I was happy to eat the first tomatoes out of my garden. No more. Thanks for your help.!
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