Polymyalgia hit me out of nowhere......

Mrs G - hope you have a straightforward and safe journey to the sun 8) on Sunday and have a lovely time when you get there....wish you could bottle it and bring some back for all of us including those dear horses of your's.

MrsO

Dear all,

I don't really know why the steroids are affecting me differently than everyone else...I am now a small size 6 when I was a 10, my hair has gone thin, my nails are as brittle as glass and my legs are black & blue from bruising....all in all not a good look :cry:

Hope when I eventually get the dose down that I will get back to a bit of normality :!: .

love to all, Pauline.

Mrs G. Wish you a very lovely holiday in the sun ! When you are there, look up at the S.. ! and tell it that there is Country, due North, that could do with a little help from HIM !....Get in touch when you are back ! Granny Moss.

Dear Pauline, I should have known ! Pauline...Ireland....Horses of courses.......Mad about them !...So is my daughter...She only ? has five....When she was about ten,she ( we lived in a village then) came home with a horse...that she took from a field...and she put it in our garden....the farmer arrived and was not very pleased...as the horse had not been shoed ?...and she made it walk all down the street (tarmac )...

You girls...and your horses..! (The are lovely, but not too near me....) I am terrified of them !......Having said that, I freeze into a block at the sight of a black airy spider....This morning I am a bit because, having cut down to 6mg yesterday, I had to take 7mg today, because the pains are hovering....and I am getting fed up of suffering...but fret at the thought of : When can I cut down on Pred,on maintenance dose, before I

get the size of a baloon ?.....and take off ?......Love and Best Wishes Granny Moss

Thank you all

Yes am looking forward to this trip even though this last week we have wondered if it would take place !!

My horses are quite happy in this weather They dont like the combination of wet, windy and cold altogether

Just on the champagne as its our wedding anniversary and feel better than I did 12 months ago so that is progress !!

Best wishes

Mrs G

Mrs G

Many congratulations to you and hubby :bubbly: :cheers: :love:

MrsO

Mrs G....A very Happy Anniversary to you and your hubby...bet your family loved having a wedding on Christmas Eve :cupid: .

My mum got to spend a Christmas day in hospital courtesy of me...I turn 52 tomorrow :? ....where did all those years go :?:

Have a lovely Christmas and holiday.

Very best wishes, Pauline.

Mrs G....Have a wonderful and very Happy Anniversary with your hubby :tickle: :cracker: :bubbly:

To day is my birthday I am now 65. I was born in dublin at 2 minutes to midnight on christmas eve.

My mammy still had her long lace up boots on there was no time to undo them ha ha

MERRY CHRISTMAS EVERYONE

Have a lovely day tomorrow

★Merry★* 。 • ˚ ˚ ˛ ˚ ˛ •

•。★Christmas★ 。* 。

° 。 ° ˛˚˛ * _Π_____*。*˚

˚ ˛ •˛•˚ */______/~＼。˚ ˚ ˛

˚ ˛ •˛• ˚ ｜ 田田 ｜門｜ ˚And a happy new year:') ♥

Hallo Sparklin. See you are logged in as \"guest\". Happens to all of us from time to time.We have just had a momentary power glitch and I had to log in again. . Never mind. What I wanted to say was happy birthday from yesterday. Love the idea of your mama giving birth in her lace-up boots!

Hallo Mrs.G. Happy, anniversary to you both.

The champagne will have chased away the aches and pains.

Have indulged a bit more today. Neighbours and their grandchildren before lunch so a good excuse. I really wonder if the alcohol is any worse healthwise than the steroids. I hardly ache at all today but did have to increase from 6.5 to 7 three days ago, feeling very weary and achey. Perhaps I'll just up the scotch ration next time instead.

Happy Boxing Day All.

Hope everyone has had a lovely day :redwine:

[b:980f2ed8a1]Hello Pauline [/b:980f2ed8a1]and a very happy birthday to you - do hope you have managed somehow to feel extra special today amidst all the Christmas festivities! :cake: :bubbly:

[b:980f2ed8a1]Hello Sparklin[/b:980f2ed8a1] and a (slightly belated) happy birthday to you, too - so nearly a Christmas Day baby like Pauline! :cake: :bubbly:

Hi Betty and sorry to hear you've been feeling weary and achey today - I can sympathise with the weariness and I expect loads of fellow sufferers are feeling the same right now - I have found it a real toil today, with my head feeling full of cotton wool probably due to this virus and the swollen glands, and everything seemed to take me so long to do. I think my hubby and son enjoyed their Christmas fayre when I eventually got it on the table but with the lack of saliva it took me an eternity to eat anything and even then I couldn't taste it anyway! Feel like putting a pin into these glands and letting everything out! :lol:

I don't think I can ever remember it remaining so cold for so long - by mid afternoon everything was covered in frost and when my son popped out to visit a friend for an hour he said the car thermometer was registering -4. Lucky Mrs G going off to the sun.

I've been spoilt rotten by Santa - a gorgeous chunky snood and long line sweater and radio from my son, and a new DVD TV for my bedroom from hubbie - now all I need is a new tooth!!!

Have a good rest tomorrow Betty and hopefully you will feel less weary.

[b:0a5a687f82]Hope everyone has had a really lovely and peaceful Christmas Day.[/b:0a5a687f82] :peace:

Hello everybody, and belated Happy Birthdays and Anniversaries!

And I hope you all have a good Boxing Day, not too much getting over yesterday....... I'm so sorry, Mrs O, that you are still suffering but the pressies sounded really thoughtful .

I get the impression round our way that a lot of people are having a really quiet Christmas, never seen so few cars and no people walking anywhere. I guess the weather is making folks hibernate - I wouldn't mind going to sleep, say November and waking up April! :shock: The temperature just now was -8.

Anyway here's a really bad Christmas cracker joke might resonate with a few of you :-

What do you give the woman who's got everything?

An anti-biotic.

Warm hugs from Pam

:artist: Hello everybody !....This morning the sun is SHINING ! !.....and Christmas Day is OVER !!!!.....As I said on here...I decided on having a Genuine English Mix Grill for Christmas lunch...Me and my husband...alone....But, by the time I grilled the bacon and sauseges...fried the bits of peppers and mushrooms...roasted some potatoes in the oven...microwaved baked beans and peas and sweetcorn.... and fried the eggs and tomatoes.....the plates were almost not large enought to hold the stuff...........we could not eat it all.....but we managed some strawberry trifle and a glass of Montepulciano (lovely red from the Abruzzi hills..) after that, we have not been able to eat a single morsel of anything....until this morning breakfast.....Mix grill is now off menu......Now I have a little story....One week or so ago, the kettle burnt out....the mixer liquidiser, gave up the ghost....and I wanted to replace the mouse in my CP. Went up to J Lewis, got a kettle (their own make) got a liquidiser Kenwood, and a mouse....Got home. The kettle when filled and plugged in, blew all the fuses...as I was cooking evening meal....

Husband re-set trip switch and we are now keeping fingers vrossed...Unwrapped the mouse...is the wrong one, with wrong connection....(USB) and when I unboxed the liquidiser...and try to use it...it leaks ! !......So, The kettle we hold on, under warranty and see how it goes ? The mouse, lovely daughter in law wanted one for her laptop...and now, we have to go all the way to J Lewis and take back the liquidiser. There . Such a Christmas. And the PMR was at boiling point !...and I gave my poor husband hell ! ! ....But we are friends again, now !....We have declared a truce between Italy and England...If he behaves, I will continue to feed him !...... I am struggling a lot on copying with 7mg Pred just now. Will persevere and hope that it will settle at this level ? I am very distressed at the thought that I may not be able to do so..Please help me to hold on to this dose and not give in !.....Love you all, and all the Birthdays and Anniversaries hopefully enjoyed by some of you lovely friends. WE MUST ALL GET BETTER ! Granny Moss

Mariarita

You say \"[i:6ec3d522ff]I am struggling a lot on copying with 7mg Pred just now. Will persevere and hope that it will settle at this level ? I am very distressed at the thought that I may not be able to do so..Please help me to hold on to this dose and not give in !...[/i:6ec3d522ff]\"

This is hard to say but none of us can help you to '[i:6ec3d522ff]hold on to this dose'[/i:6ec3d522ff] as much as we would like to.

Why persevere if after 5 days at that dose and the aches and pains are not reducing, it should be obvious that the dose is too low.

Prednisolone, is not a cure, there is no known cause or cure for PMR at present. Prednisolone is there to enable to you cope whilst you have PMR and live your life as comfortable as possible.

PMR comes when it wants to and goes when it wants to and in the meantime you have to recognise that fact and come to terms with living life differently.

PMR is not life threatening, but it destroys the quality of life you have enjoyed up to getting PMR. Accepting a different quality of life is one of the hardest things you will ever have to do. But it can be done, the people on this site are testimony to that.

We all were active, busy, helpful and led full lives till we got either PMR or GCA. And we all rail against the change, but have found ways of dealing with those changes. Its best for you as railing against something you cannot change causes stress and that is not good for anyone and least of all good for us.

There are some people on this site, who have managed to get down as low as 7mg and then had to take it back up to 15mg as the PMR flared up again and time and time again others have had to increase.

The rule of thumb is that when you take a drop, if within 5 days their is no improvement (as withdrawal symptoms can be confusing) then you go back to the dose you were on.

The fact that you are struggling so much, probably contributed to you giving your poor husband hell over something that was entirely beyond his control.

You may want to visit www.pmr-gca-northeast.org.uk and read some people's stories on how they coped and are coping with PMR and also how to deal with stress, fatigue and also some exercises devised for PMR patients.

I hope 2011 turns a corner for you - but the more you try and fight PMR, instead of accommodating it, the more PMR fights back.

Dear Mrs K ! HOw late you were up ! And you took the trouble to send me such a kind message ! I have a small note book beside me now, and I take note of the things I will find useful. I woke up this morning, feeling much better. Little pains that can be ignored. I shall now go and wash etc. Then take my pills....then breakfast... My daughter is coming later in the morning to take my husband and I to her home. For lunch. There we will see some of the rest of the family. Our *New* great grandson, that is one year old...I found for him, a little hampster inside a plastic ball...and with the help of a battery, itl runs around inside the plastic ball, all over the place.... I managed to cook yesterday ( for the first time in my life..) a gammon...and I coated it with the honey made by the bees that My eldest grandson produce....He will also be there...so, I do hope it is going to be *edible* But I shall never cook another one again !.....At present, it is a little difficult for me to relax so that my pains abate...because my husband *(89) has became obsessed with not been able to pass water...and even wanted the ambulance in the middle of the night...Have an appointment with doctor on the 3rd of Jan. Daughter in law ( a sister at the N&N University hospital, told him that he may need a catheter ? spelling....inserted, but may be the prostate? needs attending again. So, there is always something that needs our attention....I note that a lot of the lovely ladies on the site are absent...busy with the holidays season ! Hope we will hear from them again soon ! In the meantime I thank you for your kindness in taking time for me. I wish you sincerely a good year ahead. I think 2010 has not been a very good one, for a lot of different things, and many people will be glad to see the end of it !...including me !Love and best wishes, Granny Moss

Hi Granny Moss. Lizzie Ellen checking in! Hope the ham was succulent and you had an enjoyable Christmas with your family (they all sound very interesting and I'm sure the new Grandson loved his hamster). I had a very peaceful Christmas Day, just my partner and me so we could be very lazy (and we were!). Boxing Day and today are filled with daughters and grandchildren but they all know that Mum (AKA Nannie) now takes it easy, uses every shortcut in the book with the catering, doesn't fret about the odd bit of dust and just relaxes where possible. We still have a lovely time and I don't suffer the consequences afterwards (well not much anyway!). I hope hubby gets sorted out on the 3rd January. Enjoy the rest of the holiday and I hope that 2011 will be a better year for you and everyone else on this forum. Take Care Granny Moss.

Best Wishes from Lizzie Ellen.