Posted , 72 users are following.
I was recently diagnosis owed with polymyalgia rheumatic and have been prescribed prednizone. I am interested in knowing how others with this disease are doing.
5 likes, 49 replies
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margaret06607 janice47477
Posted
I haven't been diagnosed yet but sure I have it. Waiting for blood tests. Retired 73 year old nurse. Feeling very anxious about it. Was walking and dancing a week before symptoms started. Cant believe the amount of pain I have, taking ibuproven with some slight effect. Hell on waking, a bit easier as I get moving.
EileenH margaret06607
Posted
This is a very old thread in a moribund group - it got too difficult to use and we all moved to this charity run forum which is very active:
https://healthunlocked.com/pmrgcauk
See you there
paula62090 janice47477
Posted
Hi Janice
i was diagnosed with polymyalgia rheumatic in April i could hardly move, my arms and legs hurt so much, i went to see a consultant and he said i had PMR, i had never heard of it, he put me on a course of predisone within 4 days the pain had gone but within a week i was suffering with other issues, i could not stop eating i put a stone on in a month, and the fatigue was terrible, i sat down i would fall asleep, i just could not do anything i was taking 20mg then i have now got them down to 8 mg and i taper 1 mg a month so its still going to be a long slog, i found this site looking up slimming world, normally i calorie count and that works well for me, but at the moment after 2 weeks i had lost 2lbs, i know your supposed to cut the carbs, but its so hard.
i thought i was feeling a bit better but i tapered down Tuesday and i think its finally caught up with me, as i feel terrible again, no life in me, even shopping is a chore and i come back shattered, theses steroids are are not good all i want to do is get off them and get my life back!!!!
how long have you been on Predisone , and how much are you taking?