Polymyalgia symptoms
Posted , 20 users are following.
What were your first symptoms when your condition started - and was your bloods positive from the start?
0 likes, 41 replies
Posted , 20 users are following.
What were your first symptoms when your condition started - and was your bloods positive from the start?
0 likes, 41 replies
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gillian_25383 suzanne970
Posted
Shoulder, arm and finger pain and thigh pain and ESR & CRP were raised from start.
suzanne970 gillian_25383
Posted
floramac suzanne970
Posted
When out with the dog, general moving about became difficult.
never heard of PMR. After a few months went to the doc, blood tests.
Bloods all fine. Switched on Doc who did the test with Prednisone, miracle -
within a few hours the pain had gone.
That was two years ago.
Down to 5mg per day.
suziqcanada suzanne970
Posted
gillian_25383 suzanne970
Posted
EileenH suzanne970
Posted
My bloods have NEVER been raised. My ESR hit the dizzy heights of 7 once...
My very first noticeable symptom was not being able to sleep with my arms above my head. Then it was tiredness and stiffness that crept up over a period of months while I lost my spring - coudn't manage step classes. And then one day I went to the gym to use the cross-trainer to get ready for winter and skiing - the pain in my thigh muscles after about 2 minutes was excruciating. I thought it was aging and being unfit (theugh why I should have been so unfit was a mystery).
I went to the GP but he just dismissed it as "your age, there's nothing wrong because you bloods are fine". It was 5 years until I got a name - and even then, it was a DIY diagnosis.
amkoffee suzanne970
Posted
BettyE suzanne970
Posted
Second episode was different. Again began with arms aching but acted faster. GP tested ESR and CRP, both raised so straight back on Pred.
GeordieJane suzanne970
Posted
Anniecurd suzanne970
Posted
Mine started with painful wrists, then upper arms and thighs. I don't know what my send rate was, but I actually had to tell the doc that I had pmr, and even then she didn't order the test until I called and insisted.
Michdonn suzanne970
Posted
Hi suzanne970, my symptoms at the start were waking up one morning with very stiff legs in the groin and stiff shoulders. Getting out of bed and almost not being able to walk or put my shirt on. I did not know what had happened to me. Nothing seemed to help until my Endocrinologist gave me a prescription for Predinisone.
Good luck on your journey, try and put a smile on your face. 🙂
karenjaninaz suzanne970
Posted
After a severe illness bursitis bilateral, PT made it worse, steroid injections helped, then the shoulders started- steroid shots helped that but my pain doc suspected "an inflammatory disorder ". Over about a year started to feel unwell after high altitude sickness, low grade fever evenings, generalized weakness, weight loss. Triel of curcumin made me worse and anemia found. Doc thought I had GI bleed but endoscopies found none. Misdiagnosed as "fibromyalgia'" and rushed me out the door with no guidance. Self referred to rheumi CRP 111 elevated and rare.,15 mg pred instant relief. Other causes ruled out such as cancer.,
julia35591 suzanne970
Posted
Hip pain for a couple of weeks which spread to left hip then back then shoulders followed by neck. I couldn't turn over in bed. About a month after it started i ended up on the floor crawling at that point I went to the doctors and said it's not arthritis. Luckily I had a good doctor as I'm only 53 so not typical. She took bloods and everything was raised. On the mend now though.
Anhaga suzanne970
Posted
Difficulty standing, and first few steps painful and difficult. This progressed to stiff neck, and difficulty getting out of bed, climbing into and out of the bath was an adventure, thought I'd have to give up driving as no longer able to do proper shoulder check.... Doctor at time said my bloodwork was fine. After over a year a different doctor looked at the tests with suspicion and had them and others run again, and diagnosed PMR. I've since learned that while the first doctor thought I was just a hypochondriac old woman who needed a heavy duty painkiller prescription to shut me up (didn't fill it) my blood markers were significantly raised. They are still not wonderful, so I suppose something else is going on as PMR is very well subdued.
Michdonn Anhaga
Posted
Anhaga, it is amazing to me how many bad doctors there are. And how many people on the forum have run into them.
Sad to start the PMR journey behind the 8 ball.
Keep smiling! 🙂