polymyalgia without prednisolone
Posted , 4 users are following.
Had steroid treatment for 4 years 2 years off and now have a relapse. I have tried for about 8 weeks to try alternative treatment, diet etc, but have surrendered and started steroid treatment today. Feeling rather defeated.
1 like, 5 replies
EileenH Happyand70
Posted
There are not alternative - at least, none that work!
If it is any consolation, my friends who have had PMR twice all say it was different second time round. Mostly better - and they were also more relaxed about the pred. I don't think you should feel defeated - I think you should feel good about being pragmatic.
Happyand70 EileenH
Posted
Thank you for your reply Eileen, It helped me to hear about your friends and felt validating for my decision.
My sister-in-law did stop taking steroids some time before the end, but think it was tough.
EileenH Happyand70
Posted
I had 5 years of PMR without pred - I simply wasn't diagnosed, it wasn't for lack of trying! Nothing would persuade me to go back there, I'd rather have a few less years than any more like they were.
Happyand70 EileenH
Posted
That must have been truly awful Eileen, I was only had to buy a new mattress and then a topper and feel I couldn't get down the steps, so it wasn't too long for me last time.
Have been on the med for about 6 days and am feeling miles better.
I do hope you are all right now.
EileenH Happyand70
Posted
I flew from Munich to Denver Colarado yesterday - was knackered by the time we'd been travelling for 21 hours but after a decent night's sleep I'm fine! Pred rules!!!