Positives only
Posted , 9 users are following.
This discussion is for everyone needs a positive about coping with menniers. Believe me this disease shattered my life so I know how it can be
3 positives we could have something worse. 2. I conquered dizziness and falling. 3. Alot of people are living good lives with this disease. again we all need to state any positive to help us all. Everyone we are in this together let's go up with encouragement I know I need it daily.
0 likes, 11 replies
dbmarie3 james84727
Posted
Yep we all need to stay focused but when days are bad its not easy
john02577 james84727
Posted
Well we should look at the positives I had my social life destroyed my driving licence withdrawn my friends disappear because I could not make arrangements because of the unpredictability of this disease yes people are worse off than me but is that supposed to make me feel better my life is ruined but hey someone is worse off than me so that's a positive good luck and I hope you do not reach my stage of the disease
tanney john02577
Posted
John, you sound terribly desperate and I'm so sorry you have struggled so much from MD. I am curious to know what meds and procedures you have tried and if you have been seen by a neurotologist (specialist in inner ear diseases). There are meds and procedures available that might be helpful to you in managing our disease. I have bilateral MD and it has been in remission for the past several years because of the meds/procedures I've had done.
john02577 tanney
Posted
Hi Tanney I've had this disease for 32 years it took 3 years to be diagnosed and the first 16 years were managed but I was seen by doctors that had some knowledge but did not understand the illness or the symptoms I'm on Bethistine 32 mg daily semital 10 mg. Daily predisolone 10mg daily I've had injections in the ear that was also predisolone that left me unable to keep my balance but kept the sickness and nausea at bay I am awaiting a series of Gentamycin injecs to destroy the inner ear my attacks are frequent and will last 12 to24:hrs leaving me completely drained John
arcticblueice james84727
Posted
Good morning James,
Thank you for starting a thread for positive thinking.
What a great idea?! From the deep pool of despond we can find hope 7 light in the darkness!
I was dianosed with bilateral Meniere's Disease in 2017 and it has been very, very difficult to deal with.
Being under the age of 50 and the sole bread winner for our family, I have to depend on our Lord Jesus Christ to provide me with new strength each day. While I wait upon the Lord to bring me healing, I keep in mind that today is not forever, that there is no disease in Heaven and it will all be over soon. I know that Jesus Christ loves us all and cares about each one of us. I am still learning to forget about the "big picture" and live one day at time...
Three of my favorite verses from the King James Version (KJV) for inspiration are:
James 4:14 Whereas ye know not what shall be on the morrow. For what is your life? It is even a vapour, that appeareth for a little time, and then vanisheth away.
Matthew 11:28-29 Come unto me, all ye that labour and are heavy laden, and I will give you rest.
Take my yoke upon you, and learn of me; for I am meek and lowly in heart: and ye shall find rest unto your souls.
Revelation 21:4 And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.
james84727
Posted
Okay people let's get this thread rolling today the sun is out we get to live today do one thing for somebody else see how that makes u feel. We have to go the opposite direction that this disease takes us. All things work for good ........
james84727
Posted
John they say in sports I got your back today I will pray for you by name and am here anytime to Listen. Better days ahead you are bigger than this disease.
sarah87228 james84727
Posted
i wish, as we all do, i could say im managing well with this disease but we cant.
we have to have faith that one day it will be better.
i have been able to return to work on my increased dosage and im able to get out of the house. Although this triggers great anxiety i am pushing forward and find that the anxiety is the worst part of it all.
I hope everyone has a glimmer of hope today that one day life will be normal again
Sarah
Guest james84727
Posted
HI. I have been pondering your discussion for a couple of days. I struggle with the term "positive" when it comes to this disease. A positive is that it is not a terminal disease. However, when you are challenged and some times so severely, it is extremely difficult so see more that one day at the time and often not a full day. Yes, I'm very happy to get any amount of freedom from such a debilitating disease. I believe that I have tried most available preventive diets, medications, injections, and vestibular therapy over the years. My most recent is the sac decompression. It has given me almost 4 months of no vertigo. I am grateful for that. I am still dealing residuals such as balance, etc but showing some improvement.
I see that many of us have not seen any real measurable relief in regaining a quality life . I offer great passion, empathy, and understand of their plight.
james84727
Posted
Believe me I am in the depths of this disease has much as anyone . I have lost nearly everything . My thoughts we all need each other even if one word can help any of us.
Guest james84727
Posted
I agree. I hope we all can just press forward . It's a daily challenge.
Very best to you...