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Poss MS Part 2

Posted , 2 users are following.

amanda82732
amanda82732

I also suffer with tingling in feet face hands and head my hands are the strangest I can only describe the sensation as the feeling being like a fast flowing river in my fingers I had this in September in feet arms chest with virus also get numbness in fingers and toes. Dreadful memory finding it harder to grasp simple things quite scary I am 54 TIA

1 like, 4 replies

4 Replies

  • BobJS
    BobJS amanda82732

    Posted

    [color=#333333]My MS started with my toes tingled like when you sit cross legged on the floor and then stand up.  I was at work and it lasted all day.  In 5 days my legs were totally numb and I could not feel the ground I was walking on.  It scared the hell out of me.  Three months later feeling almost returned to normal, almost.  That was in 1993 and I was 38.  Now I cannot run, that started in2011.  So my biggest enjoyment of playing basketball is now over.  I ride my recumbent bicycle now because I fall off the 12 speed.  I am riding in my 15 MS bike ride if I decide to ride.  Now my lower back is tingling.  Now I am very worried since I now know what is wrong with me.  It took 8 years to get a diagnosis.  I have been on Betaseron since 2001.  My memory  is still good according to the physiologist I went to in 2001.  I don't feel like it is since I sometimes am driving and I don't know where I am or where I am going.  I snap out of it after a few minutes but it scares the hell out of me when it happens.  I use to work in Altus OK and my family was stuck in Wichita KS and I was driving back to Altus after a weekend trip.  I got into Oklahoma City and all of a sudden I didn't know where I was or where I was heading to.  I panicked.  I got off the highway and turned around and headed back the way I came from until I saw a sign I recognized an then I remembered where I was and where I was heading to.  Amazing.  I know what fibermyalga is but not aware of all the symptoms.  I know when some part of me hurts long enough the surrounding area starts to get numb.  I am not sure your numbness is related to Fibermyalga or MS.  The MS tests should tell you whether it should be concidered.[/color]
    • amanda82732
      amanda82732 BobJS

      Posted

      Hi Bob thanks for your reply sounds like you have had a tough old time of it, the symptoms of fibro and ms can be quite similar but that said what I have experienced in the past year are very different I have just vacuumed for instance and that has caused severe tingling in my hands very strange. I also slur my speech quite embarrassing at times and get disorientated very easily as you the tests are the best way forward. Take care & thanks again x

  • wendy80842
    wendy80842 amanda82732

    Posted

    yes, those symptoms also sound very MS like. it is very scary not to know what the hell is going on. at least if you have a 'title' to hang on it, you can research and talk to others in the same boat.

    i'd really recommend trying to do stretches to combat muscle spasm, it's a bit of 'suck it and see' kind of thing to do, but lots of us with MS find it helps. i find it particularly useful just before sleeping.have you ever tried any relaxation exercises? they helped me while i was in the early stages of diagnosis. MS is frequently very affected by stress. what sources of information about MS are you using?

    wendy

    • amanda82732
      amanda82732 wendy80842

      Posted

      Hi Wendy Thanks again it has been so scary the past year, I shall have to look into to doing some stretches sounds like good advice, I used to listen to a lot of relaxtion stuff but stopped as not been able to with the headaches. Oh you mention the dreaded word stress yes my worse enemy!!! Not really using any sources my husband new 2 people very well with MS one who taught him his craft of thatching it is him that thinks I have it the more I sort or looked up online i sort of agreed thenn disagreed now no idea!!

      Thanks Amanda x

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