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Possible acromegaly

Posted , 3 users are following.

courtnay26
courtnay26

For a while now I thought since K probably have a pituitary tumor , I thoughg maybe I

Had Cushings based on my symptoms but

Now I notice some of my symptoms look like

acromegaly

I have definitely noticed more spacing between my teeth

Is growing spacing between your teeth

In your thirties normal ?

0 likes, 12 replies

12 Replies

  • kim22986
    kim22986 courtnay26

    Posted

    Hey Courtney

    If you thing you might have some symptoms of acromegaly  be sure to check it out.  One thing I know is that your joints all over would hurt because they would be growing in size which puts a lot of pressure and pain with knees, elbows , feet , spine etc. could there be another reason for the spacing in teeth did you get one pulled in the last year or two?  I will say you can drive yourself crazy with this because it affects soooooo much and can change on a dime and Dr.’s all think your  Sycho. Keep in touch.

    • courtnay26
      courtnay26 kim22986

      Posted

      Thanks Kim for your message

      I did get a tooth pulled a year or two ago but

      The spacing is happening with most of my teeth

      You don't want to eat a spinach salad with me

      The endo is going to check my igf-1

      But it is possible I already have

      Hypopituitarism

      Which can happen with acromegaly

    • courtnay26
      courtnay26 kim22986

      Posted

      Hi Kim

      It sounds like you also have a pituitary tumor

      What were some of your symptoms?

      If you would like to tell me

      Thanks

    • kim22986
      kim22986 courtnay26

      Posted

      Hi there yes I have had a tumor about 7 yrs now. Last registered at 9 mm so micro once it hits 1cm it’s considered macro. Mine was found  through blood work. I have had numerous issues with my Thyroid, and also have Hashimotos  so while doing blood work noticed my prolactin levels quite high. Did MRI  found the tumor .
    • kim22986
      kim22986 courtnay26

      Posted

      Mine is non functioning I do not leak from the breast etc.  Where I find an issue is that I am

      Suffering from a variety of issues periodically. Which can happen when the tumor moves or goes on one side or the other. I have had high testosterone caused by the tumor. I have had high Cortisol caused my the tumor. I am now dealing with pancreatic issues which is linked (theythink) to my endocrine system it’s been a roller coaster of crap. I am now on a enzyme called Creon to help me digest food so I am

      Not in the can all day and night.  Which is helping thank God!!!

    • courtnay26
      courtnay26 kim22986

      Posted

      Hi Kim

      High cortisol is usually

      Linked with Cushing's Syndrome

      Or Cushing's Disease

      You might want to test for that

      Since you've already had a pituitary tumor

    • courtnay26
      courtnay26

      Posted

      Oh ok, your saying it is the same tumor

      Were you able to have surgery?

  • Roddy999
    Roddy999 courtnay26

    Posted

    Gums receding can have this effect too. Best see a dentist for a checkup. It is a zillion times more likely than pituitary disease.
    • courtnay26
      courtnay26

      Posted

      However

      It is already known I have pituitary disease

      Since I know I don't have Addison's

    • Roddy999
      Roddy999

      Posted

      This must have come across as rather more unkind that I had intended. What I meant to say but didn't actually say is this: your dentist has specific training on how to recognise acromelagy and has probably knows about it in more detail than the million and one things that your GP is expected to remember.

    • courtnay26
      courtnay26 Roddy999

      Posted

      No, you just said it is more likely to be receeding gums

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