possible aura?

Have you had an EEG to rule out a seizure disorder? All seizure disorders are not evident by outward traditional symptoms. I have known people to have similiar stories and be thought to have a Psychiatric disorder. This is a very easy scape goat if u get enough docs not able to give u answers that r not guesses. Have u tried Depakote , Tegretol or Topamax etc for migraines by chance? These drugs can be used to decrease migraines , and also classified as neuroleptics that can actually help w certain seizure disorders. My husband had to get a 4 hr then 8 hour EEG test that proved he was having absence seizures that the Neurologist referred to as electrographical seizures. He would complain of headaches frequently , but took years to put a proper diagnosis together. This may sound a little overwhelming, but worth looking into. Some of us are not textbook. The racing thoughts and loudness that happens like twice a yr could be different outside the box issues. Do u have any family history of bipolar disorder by chance? Do these Alice in Wonderland moments seem to fall around times of decrease sleep, stress, pain etc. ? I have a daughter that has had two seizures in her life at the age of 18 yrs old. She was also diagnosed with a chemical imbalance that relates to the bipolar disorder that is still not fully understood. Daughters racing thoughts , lack of sleep, irritability and she describes it as thoughts that will keep coming up like obsessing over things that make no sense to her seem to show up in the fall and around May ? You might keep a log of dates and events surrounding these episodes so u can see any patterns ? They do have neuropsychiatrist , but if u can't find one aN evaluation by a Psychiatrist would be another idea. I know this might be scary or labeling , but it sounds like u have suffered for quite some time so I'm trying to not let a leaf left unturned. ADHD could be another differential diagnosis. I have not heard of such intense symptoms u described above just being caused by a migraine, but nothing is impossible. I can't inforce enough to get another opinion w evaluation. This all goes back to the brain so again it is complex, but not impossible to treat w the right tests, thorough evaluations and someone that will listen to u to think outside the box. There are other possibilities that come to mind, but think I have talked enough. Hope this helps in some way. Blessings to you and better health.

Have you had an EEG to rule out a seizure disorder? All seizure disorders are not evident by outward traditional symptoms. I have known people to have similiar stories and be thought to have a Psychiatric disorder. This is a very easy scape goat if u get enough docs not able to give u answers that r not guesses. Have u tried Depakote , Tegretol or Topamax etc for migraines by chance? These drugs can be used to decrease migraines , and also classified as neuroleptics that can actually help w certain seizure disorders. My husband had to get a 4 hr then 8 hour EEG test that proved he was having absence seizures that the Neurologist referred to as electrographical seizures. He would complain of headaches frequently , but took years to put a proper diagnosis together. This may sound a little overwhelming, but worth looking into. Some of us are not textbook. The racing thoughts and loudness that happens like twice a yr could be different outside the box issues. Do u have any family history of bipolar disorder by chance? Do these Alice in Wonderland moments seem to fall around times of decrease sleep, stress, pain etc. ? I have a daughter that has had two seizures in her life at the age of 18 yrs old. She was also diagnosed with a chemical imbalance that relates to the bipolar disorder that is still not fully understood. Daughters racing thoughts , lack of sleep, irritability and she describes it as thoughts that will keep coming up like obsessing over things that make no sense to her seem to show up in the fall and around May ? You might keep a log of dates and events surrounding these episodes so u can see any patterns ? They do have neuropsychiatrist , but if u can't find one aN evaluation by a Psychiatrist would be another idea. I know this might be scary or labeling , but it sounds like u have suffered for quite some time so I'm trying to not let a leaf left unturned. ADHD could be another differential diagnosis. I have not heard of such intense symptoms u described above just being caused by a migraine, but nothing is impossible. I can't inforce enough to get another opinion w evaluation. This all goes back to the brain so again it is complex, but not impossible to treat w the right tests, thorough evaluations and someone that will listen to u to think outside the box. There are other possibilities that come to mind, but think I have talked enough. Hope this helps in some way. Blessings to you and better health.

I get what is called Aphalgic Migraines.  These are what are referred to as "silent".  I get all the auras of a classic migraine without the pain.  At first they were worst than my actual painfilled one because I had no idea what was going on.  I thought I was having a stroke the first time it happened.  Raised blood pressure, numbness down the left side of my face and arm, difficulty breathing.  I even called my husband and told him to tell the kids I loved them and to call me an ambulance. (I was stopped on the side of the road). 

Did end up in the hospital..had an EEG, CT Scan, MRI.. that's when I was diagnosed.

I also get flashing lights, memory fog, mind racing and sometimes it's hard to string together two words.  It can be very frightening.  Knowing what it is has aleviated a lot of the fear but sometimes I have to take a lot of deep breaths and remind myself that it's only a migraine.

So far I haven't found anything that can stop these and I've been having them now for over 10 1/2 years. 6 of them undiagnosed.  I've also been having classic w/pain for the past 25 years.  I'm on Frovatriptans for that.

So, you're not going nuts.. unfortunately this stuff comes with the territory.  You've just got to figure out your way of coping.  Good luck and let me know how it goes. 

Sunni