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Just looking to see if anyone has experienced these same symptoms. Been chasing my aches pains and podd health phenomenoms for years now and seem to be getting closer. While I await test results, was wondering if this sounds familiar to anyone here.
My problems could have started a long time ago, with the onset of some early symptoms and just gotten worse. That is what I suspect as NONE of my symptoms have ever resolved themselves from the first moment that I got them. Just new ones appeared along the way. Its possioble that my early symptoms were related to some other illness that progressed into b12 deficiency so its hard to say. But here goes.
Early life I was extremely thin (truly sickly thin)...very late puberty and lactose intolerant with very pale skin. Started going grey at age 20 and was 50-50 by 30. Always had night blindness and difficulty adjusting from light to dark and vice versa.
Went through bouts of serious asthma for about 5 years with lots of Migraines, allergies, weird infections etc.
The weird things started about 10 years ago at age 40 when I began to notice edema in both my legs (specifically on the bone in front of my calves). It would indent and not come back to normal for hours. Always noticeable and real bad at times. Drs shrugged it off as eating too much salt.
CK levels started to show up as dangerously elevated along with high cholesterol. (started taking statins). Dr blamed diet.
Blood pressure started to climb (mostly just the lower number was a concern.)
about 8 years ago, woke up one morning with a dime size glossy spoy on tongue. Dr confirmed as glossitis and have had it continually ever since. Constantl changing, always there though.
About 7 years ago, CK levels start showing elevated. Not real high but over "normal". Dr sends me to neurologist to rule out MD.
5 years ago, I starte getting tiny faciculations/twitches in calves. Dr sends me to neuro to have EMG done (normal).
About the same time I start with tinnitus (pretty bad). Always had trouble hearing in any room with any background noise. Specialists say I have some hearing loss but that I will get used to the Tinnitus eventually (which I have, but always there and really bad at times).
Vision which was perfect all my sight suddenly goes down the drain. First close up then distance as well. Need tons of light to read anything. Night blindness is far worse now. Cant hardly read the word shampoo on a shampoo bottle now without glasses. very blurry. Drs find retina degradation and spotting/greying on my retina...after numerous tests, cannot explain...just monitoring it.
the minor twitches in calves are now MUCH more noticeable and now scattered through my body randomly. No longer have to see them, I can feel them everywhere from arms, chest, butt, abdomen...just random firings and feel them constantly. Tingling begins in extremities, like vibrations in toes and fingers.
Start getting Raynauds symptoms...fingers are now turning blue in even te slightest exposure to cold. White to blue to red in a matter of minutes...VERY painful when I come back in for relief....takes about 10 minutes to go away but feel inflamed for hours afterward.
about 3 years ago I start getting crazy fatigue. Tired just carrying even 3 or 4 lbs for more than a minute. Shoulders, butt, thighs get tired just walking up steps. Have to stop and catch breath and relive muscle pai. Also start to become almost narcoleptic while driving (just glaze over) but especially any time after 5PM. Complete exhaustion and have to sleep for 1/2 hour or more to come out of it. Difficulty raising arms over head form more than a few seconds.
Along the way my gassiness and bloating have gotten worse (still thin but have a bloated belly)
Then the mental fog began. Cant stay with conversations, lose my sense of humour and social skills as I prefer not to talk as much. Became more short tempered around others. One bout of what I can only say must have been anxiety/ paranois/depression for about 3 months (that is the only possible "symptom" that actually went away).
started reading about B12 deficiency and celiacs and started wondering if I may have an absorption issue. being tested currently but awaiting results (endoscope visual indicates H.Pylori bacteria in stomach but awaiting biopsy results).
About 2 weeks ago I decided to start taking a liquid sublingual B-12 supplement (megadose) thinking I may have an absorption issue. Within a week, the twitches are gone. (only the tiny ones in the calves are there that have been there for years before it spread). But all other twitches are completely gone.
Went to Drs yesterday to have b12 measured but I may have screwed things up by trying to treat before tesing (but in my defense, I probably would not have been tested if I had not seen an improvement so sort of a catch 22).
If this is B12 deficiency syndrome then I probably have a long way to go before things get back to normal and if (as I suspect) Ive had this for years, is it possibel that not everytjing will go back to normal. I do have more energy and less fatigue (but that may have coincided with a recent diet change eliminating alot of fat, sugars and reduced salt and breads)
So anyone here have these types of symptoms with B-12 deficiency?
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