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Possible BPH, looking for advice

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paul2228
paul2228

Hi there. I'm 30 years old, and for the past 6 or 7 years I've been having problems when urinating. It first manifested as recurring non-specific urinary tract infections (which I'm told were the early symptoms of a bladder neck obstruction, probably caused by an enlarged prostate) which eventually settled into a long standing problem where it basically takes a very long time to finish. I'll feel as though I've emptied my bladder but if I wait long enough, more comes out (despite having no real sensation of still needing to go). I've found a couple of ways of encouraging further flow but it's still long-winded. If I get up and leave the bathroom too early I get dribbling, sometimes quite bad. It makes being intimate with my girlfriend kind of awkward because immediately after going to the bathroom I don't really want to risk her feeling anything.

I've tried both alfusozin. At first it worked great, but eventually the effectiveness wore off and all it did was give me massive headaches. I then moved over to tamulosin which again...wasn't terribly effective and resulted in retrograde ejaculation. Now I'm on Saw Palmetto which is reasonably effective but seems to wear off quite quickly. I basically have to choose at which time of the day I can afford to be in the toilet for 30-60 minutes.

So I guess my question is if there are any foods I should stay away from, or any other triggers that I might be able to address to get this under control? I don't drink. I'm a social smoker. Maybe 5 days out of the month. Apart from being partial to a good cup of tea/coffee I don't partake in any other substances.

Really desperate for some advice here. I recently cancelled an operation that I was scheduled for on the grounds that I was quoted a 50% chance of success, and the possibility of incontinence and re-constructive surgery if it goes wrong. Not what I want to be putting up with at 30!

Sorry for the long post. I'd be massively grateful for any help anyone can offer.

2 likes, 71 replies

71 Replies

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  • jimjames
    jimjames paul2228

    Posted

    I don't know your specifics, not am I a professional, but from what I've read I'm sure you could find an operation with better than the 50% chance of success you're talking about. That said, operations can have side effects including a very high probability of retrograde ejaculation which is not reversible.

    As long as you're investigating different non-surgical options, you might want to read my thread on "Self Catherization", as well as research it on your own.  Self catherization will empty your bladder completely and should get rid of all the symptons you're talking about without any surgery, drugs or side effects.

    You're a young man -- one of the youngest here -- and no doubt better operations/procedures will come along in time for you. Something like self catherization might buy you the time to wait for those procedures.

    Richard

    • jimjames
      jimjames

      Posted

      Didn't realize this was such an old thread. Looks like the original poster, Paul, has long since left the house.

      Richard

  • ronert01636
    ronert01636 paul2228

    Posted

    TO ALL WHO HAVE COMMENTED ON UROLIFT:There seems to be some contradictions in the reports on UROLIFT:One person says that it took 45 minutes and that he was on general anesthesia and another says it took 15 minutes and that he was on local anasthesia.What are the circumstances under which one is chosen rather the other? 
    • RonTexan
      RonTexan ronert01636

      Posted

      I'll bet it depends on the experience level of the surgeon. Urolift was approved by the FDA in the US in Sept, 2013 and not approved for reimbursement by Medicare and Medicaide or private insurance until sometime in mid to late 2014. Until that time uros were performing the procedure for cash out of pocket and there wer'nt many of them .One of the earliest adopters of the procedure  in the US, who I spoke to personally and who was one of a dozen or so selected to pioneer the program had done only 15 or so procedures by last May or so. He has probably done fifty or so by now and he is one of the more-experienced. So there's many uros doing this procedure without a lot of experience, many are getting on board since approval for reimbursement and may have done very few procedures.

      I'm speaking of the US only as the procedure has been done for a longer period in the UK. I do think that most of the posters have been US guys as we read and write better in English.  

      Ain't that keerect? rolleyes

      Just reading these posts will tell you that there is a lot of variation in outcomes even though candidates for Urolift are selected closely for liklihood of good results, eliminating those with large prostates or with three lobes.

      Just my conjecture for what it's worth.

      Ron  

  • executive1
    executive1 paul2228

    Posted

    I am 62 prostate 37 retention varies; I have PVR of 200 cc but last time I had a doctors apoitment I had only 46 cc which was a pleasent surprise but then I had a cath insterted 2 weeks later for aaaaaaaaaaaaaaa direct instilation of a medicine called Elmiron for IC since the doctr says I have a dualm condition of BPH and IC. That time the retention was again 200 cc.

    The doctor tried to do a uroflow dynamic study bu I have what they call a shy bladder. With all the cath in place for that exam the bladder would not function.

    The doctor said that since I "failed" the urodynamic study he didn't have a objective reason for the TURP so he would wait until I was requesting it because of sysmtoms.

    I am going to Tampa next wednesday to see a dcotor who does Urolift. The problem is that I have a middle lobe. They migth do a dual procedure:laser for the middle lobe plus the urolift. Or they migth determine that Urolift will help even though I have a middle lobe. I will let you all know what they say. If this doesn't sound good I will go to the Plasma Button laser which is what my doctor does here in Miami. As he stated since I have been on the meds for 4 plus year, you have had retrograde ejaculation over the past 4 years and you already have your children; 4 kids, 5 gran kids.

    I will just go and check out the urolift with this doctor next week. Besides I would end up getting a second opinion prior to operation anyway.

  • moi84664
    moi84664 paul2228

    Posted

    I'm 70 years old and have slept for maximum two hours at a stretch for a few years now.  I've tried all the natural symptom alleviating remedies and some helped for awhile.  Some blood pressure / prostate alleviating medicine helped but has side effects.  You can then imagine my delight at recently finding whole Rye grain bread helps so much I want to write about it - 5 hours at a stretch for the past month.  I found this at a cookery class while travelling - it is 100% Rye with yeast, water.  Best you ask them for the recipe as it is often updated with improvements scenn's cook-Thai class in facebook.  There is a simple recipe there but they'll update it if you ask them.  There is research done with Rye pollen and other Rye elements but Science has not yet works out why it works.  Plain Rye bread works great for me and others if eaten at the right time and amount.  Good lu cksmile
    • mike88486
      mike88486 moi84664

      Posted

      Have you tried the rye pollen extract or just the bread?  How many slices of bread?
    • moi84664
      moi84664 mike88486

      Posted

      Bread, 100% stone ground whole rye, dark - home made with yeast & water, about 175 gr. rye per day without butter, cheese or jam etc but good with dried bananas maybe other fruit too.  It works for me best if I just eat the bread ie not part of a larger meal. Havn't tried the pollen.
    • moi84664
      moi84664 mike88486

      Posted

      Just to clarify - it's 165 grams of the dry 100% stone ground whole dark rye flour making a small loaf quite a lot heavier.  I eat the whole loaf on it's own daily about 5pm. and sleep good
  • thomas1947
    thomas1947 paul2228

    Posted

    moi, could you provide complete instructions?  I'd like to try this. Thanks.
  • John_Debba
    John_Debba paul2228

    Posted

    Hi Paul, 

    I know the topic has aged, but I hope my reply reaches you.

    I'm sorry at such a wonderful age you're going through this. I assume you already know of complications associated with BNO, so please consider the pros and cons of your decision. 

    I'm 66yo and sometimes have bouts with symptoms you mentioned. I don't know if you tried this yet but it's worked pretty well for me. When I have symptoms of constant and un-emptying bladder (and dribbles) I drink pomegranate juice: usually brand name because I trust the concentration. Twice a day I drink 4-6 oz. and problem is resolved in 5-8 days. If you have tried pomegranate juice since posting over a year, I truly hope it worked (and works) for you.

    ?Regards, John  

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