Possible CFS

Hello

My name is Darren and I have been getting tested (very slowly) for CFS for the past 8 months and have been dipping in and out of here reading various posts which have helped calm my fears to some extent, so thanks a lot to those who post and give detailed replies back about their own experiences which often resonate with my own.

Anyway, I have been getting the following symptoms since around last May.

Breathing Issues,(I become breathless when I walk for too long or just any type of activity for too long)

Heart Palpitations

Sore Joints

Headaches or at least strange sensations going through my head.

Problems with my eyes

Tiredness

Memory Problems (I lose words I am about to say when speaking with people)

Dizziness

Swollen Glands

I could add more, but I think you will all get the gist, so as I said above, currently going through the very slow process of getting a diagnosis for this and my Doctors haven't exactly been helpful, the first one back in August actually just suggested using this site to deal with it, but another one has been more helpful and is sending me to get get kitted out with a monitor to check out my Heart, once this is done and I am apparently going to be speaking to a therapist at the practice who has experience in this field.

I have had my bloods done quite a few times and the last time, December, the Doctor advised I had a low B12 count, which was fine back in August. It's not at a critical level where I would have to get injections, but I have amended my diet and taking supplements to see if that picks things up, but 6 weeks later and not much has changed to be honest.

I am still able to work and I am lucky I am desk bound as certainly wouldn't be capable of doing manual work at the moment as would just be too much, but even at a desk the fatigue hits me midweek and start to feel a lot more tired on Thursdays and Fridays with weekends my rest period to recharge the batteries to start again for the next week.

Exercise is pretty much a no go too as although not Mr Fitness I used to like going for walks and cycled most days to keep me ticking over, but now I am just not capable much to my frustration.

Well, that is my story 8 months in which I just wanted to share with the good folk on here and let them know that their experiences do help those of us who are currently getting tested for this horrible disease.

I realise that I may not have CFS, but the experiences are caused by something and even if it was to be something else CFS sufferers will always get my sympathy as it really is not a nice thing to have and most Doctors don't exactly earn their corn when dealing with this type of thing and trying to explain this to people doesn't exactly get you the sympathy vote.

Once question to ask before I sign off is that do most people get a CT or MRI scan during the testing for this?? I only ask as this is something I thought would have been done first to rule out some other nasties which cause similar conditions.

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