Possible CFS
Posted , 4 users are following.
Hello
My name is Darren and I have been getting tested (very slowly) for CFS for the past 8 months and have been dipping in and out of here reading various posts which have helped calm my fears to some extent, so thanks a lot to those who post and give detailed replies back about their own experiences which often resonate with my own.
Anyway, I have been getting the following symptoms since around last May.
Breathing Issues,(I become breathless when I walk for too long or just any type of activity for too long)
Heart Palpitations
Sore Joints
Headaches or at least strange sensations going through my head.
Problems with my eyes
Tiredness
Memory Problems (I lose words I am about to say when speaking with people)
Dizziness
Swollen Glands
I could add more, but I think you will all get the gist, so as I said above, currently going through the very slow process of getting a diagnosis for this and my Doctors haven't exactly been helpful, the first one back in August actually just suggested using this site to deal with it, but another one has been more helpful and is sending me to get get kitted out with a monitor to check out my Heart, once this is done and I am apparently going to be speaking to a therapist at the practice who has experience in this field.
I have had my bloods done quite a few times and the last time, December, the Doctor advised I had a low B12 count, which was fine back in August. It's not at a critical level where I would have to get injections, but I have amended my diet and taking supplements to see if that picks things up, but 6 weeks later and not much has changed to be honest.
I am still able to work and I am lucky I am desk bound as certainly wouldn't be capable of doing manual work at the moment as would just be too much, but even at a desk the fatigue hits me midweek and start to feel a lot more tired on Thursdays and Fridays with weekends my rest period to recharge the batteries to start again for the next week.
Exercise is pretty much a no go too as although not Mr Fitness I used to like going for walks and cycled most days to keep me ticking over, but now I am just not capable much to my frustration.
Well, that is my story 8 months in which I just wanted to share with the good folk on here and let them know that their experiences do help those of us who are currently getting tested for this horrible disease.
I realise that I may not have CFS, but the experiences are caused by something and even if it was to be something else CFS sufferers will always get my sympathy as it really is not a nice thing to have and most Doctors don't exactly earn their corn when dealing with this type of thing and trying to explain this to people doesn't exactly get you the sympathy vote.
Once question to ask before I sign off is that do most people get a CT or MRI scan during the testing for this?? I only ask as this is something I thought would have been done first to rule out some other nasties which cause similar conditions.
1 like, 6 replies
jeffrey86443 darren86013
Posted
Most doctors don't even know which tests to run that will reveal CFS/ME. I had 8 Specialists all take blood samples (8-10 vials each) and they saw nothing in my blood. He does and is one of 2 CDC doctors in CA who treat patients for CFS/ME.
A Centers For Disease Control, Dr. John Chia in Torrance, CA knows. Have your Doc call him to find out.
Jeffrey
derek76 darren86013
Posted
Check on Fluoroquinolone toxicity Syndrome if you were EVER prescribed that or Cipro at any time in the past as the symptoms are similar
jeffrey86443 darren86013
Posted
Thanks. I'll look it up and discuss it with my doctor.
jeffrey86443 darren86013
Posted
Is there an effective treatment/cure for Fluoroquinolone toxicity Syndrome available?
derek76 jeffrey86443
Posted
There is no treatment as it affects so many parts of the body by damaging cells nor like CFS is there a diagnosis.
jeffrey86443 darren86013
Posted
Your doctor DOESN'T know how to test for CFS/ME!!! I had 8 medical doctor "Specialists", all of which drew 10 vial of blood, tested everything they knew to test for and got nothing but being a little low on Iron and B12. That's insane!
Have your doctor call Dr. John K. Chia in Torrance, CA. He's a CDC doctor and knows which specific tests need to be run to show if you have the virus. It resides inside of the cells and does not show up in normal, even extended, blood testing.
I saw alternative medical practices out of UC Irvine. Crooks! All of them are shooting in the dark.