Possible Chrons disease, fobbed off by the doctors constantly
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I’m currently 23 and I’ve lived with IBS since I was around 14 or so. In the past year I’ve gone backwards and forwards to the GP countless times with stomach pains, blood in my stools, constant diorreha, constant toilet trips and most recently an anal fissure which may or may not have developed into a fistula. I keep getting fobbed off constantly with being told “its just IBS”, “you’re having spasms in your gut, take these tablets” and “it’ll clear up soon, don’t worry”.
I ended up in hospital around a month ago with severe rectal pain due to my anal fissure. Whilst there I saw 4 different Drs, 3 of which told me I would be taken to theatre to be put under GA so that could examine me more throughly and find out what on earth is going on. The 4th Dr then discharged me without examining me, told me there was no point in taking me to theatre to examine me properly and that I was being sent home with some cream and cocodamol. I only found out after being discharged that I could have an anal fistula due to reading my discharge note. No follow ups were made at all and I ended up going back to my GP just 3 days later as the pain was so unbearable. My GP then sent my case through as urgent for me to see the Colorectal surgeons and despite this being urgent the earliest appointment I could have is 10th April.
So now I’m waiting. Impatiently. In pain, feeling sick, spending my life on the toilet and panicking because of the amount of blood in my stools. I’m pretty much 99.9% sure I have Chrons, I’ve done so much research into it in the past few months trying to find an answer. I work on the colorectal ward at my local hospital as a HCA so I see IBDs everyday (when I can actually make it into work). I’ve relayed my concerns to the nurses I work with and they are also pretty sure I have Chrons. I just don’t understand why I keep being fobbed off constantly by anyone who can actually give me an official diagnosis.
I apologise for the rant and the extremely long post. I just need to get everything off my chest as I’m pretty sure my family are sick of my constant moaning. I’m counting down the days until I can see someone that can hopefully give me a diagnosis and begin living my life again.
0 likes, 1 reply
Camino TJdogcat
Posted
Hi TJ,
I'm so sorry to hear what you are going through. Getting a diagnosis, I know, can be a frustrating process.
My partner was dismissed by his GP for a couple of years and by then much damage had occurred. Eventually, he went to A&E in agony only to be sent home in the middle of the night (maxed out on morphine), he had to drive himself home. A week later I went to A&E with him, he could barely walk and a junior doctor said "I will give you morphine and you will have to go home and wait your turn for an investigatory appointment like everyone else". Fortunately I was there to speak up for him as he was seriously ill. He was admitted to hospital that night, kept in a few days and received a diagnosis. Since then my partner has felt he is dealing with his illness alone most of the time. He was discharged from hospital 3 days after major bowel surgery. He is really unwell but nobody seems to have time for him. His next appointment is June. Basically he lives his life staying close to the loo and is very fatigued.
I appreciate Crohns charities campaign for better services but it's just not happening in our area.
Maybe take yourself to A&E and be very assertive.
It would be good to know how you get on. All the very best to you.
Camino x