Possible CRPS ?

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Hello, I'm posting here hoping that maybe someone can tell me if my condition is CRPS. The clinic I go to is not helping, the doctor will not refer me to a neurologist. I have type 2 diebeties and nueropathy. But I had this happen last year in march. Started on my right thigh the size of a silver dollar. It was extremely sensitive to touch. After about 6 months it has spread all over my body. I can't wear pants or shirts hardly. Has to be 100 percent polyester. It has completely stopped me in my tracks. I take max dose of lyrica and gabepentin. Now its spread to my head and face. But most sensitive in my inner legs and groin area. And my stomach area

Literally feel like I should have burns in these areas. On top of the sensitivity to touch. Most times I cannot touch legs together or lay covers on my legs. Noticed now that inner ankles are extremely painful. Please help. Thnx.

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  • Posted

    Hi Tealeye,

    I'm sorry you're in so much pain. It sounds like some of your symptoms might fit but unfortunately nobody here will be able to diagnose you. CRPS usually starts in an extremity following an injury or surgery (though not always). I know you said your doctor isn't helping you, but if possible I'd find another doctor or pain specialist to discuss your options with. I wish you luck and health and good days.

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  • Posted

    Hi there sounds very like crps. There is a group on Facebook called CRPS you might get more responses and help. A pain consultant is who usually diagnoses crps. You may need physio and well a diagnosis asap so you can treAt it as best I can !!
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  • Posted

    Hi. I'm so sorry that you are suffering.  As someone else said, you need to get a new doctor who,will take your condition seriously and to make sure that you are diagnosed correctly.

    I was treated for CRPS with ketamine infusions and it was very helpful.  

    Praying for relief from this awful pail.

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    • Posted

      I'll look into that kamatsu. I am fighting for my life here. Something's gotta give. This is relentless.

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  • Posted

    I will see what I can do. I don't have insurance. This is a free clinic. I filed for disabily, but since I'm not getting proper diagnosis, Social security has called it a skin condition. Totally insane. Thnx everyone.

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    • Posted

      I'm also thinking of starting a gofundme page to try and get some help financially. I have no money. This has made it to where I cannot even work. Its my only option. These clinics will not help. Will not refer me to a specialist. This is my only hope at this point.

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    • Posted

      Also want to say that I am so sorry that everyone here is going thru this nightmare. I was surprised to see so many people with this condition when I started researching this. God bless you all.
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