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Possible endometriosis

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pauline14881
pauline14881

Hi,I hope somebody could give me a bit of advice. I had a laparoscopy done in 2005 for some pain on ovulation,but mostly as the gynocologist found a mass on my ovary.they found no mass and told me to have the mirena fitted.i didn't have the mirena and just took painkillers every month.skip to 2014 have severe ovary pain everyday which is excruciating went on the pill Yasmin which helped slightly after two weeks,went back to gynocologist who put me on decaptyl for three months (my last injection being on the 3rd of this month) which has been amazing nearly all the pain has gone.my question is,does this prove I have endo?and should I have another laparoscopy? I feel I do have this hence the terrible pain,but laparoscopy ten years ago didn't say anything about endo?. please any ideas would be greatly recieved.

 

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  • kayley1987
    kayley1987 pauline14881

    Posted

    Hi Pauline unfortunately I can't really offer and advice etc I just wanted to tell u I sort of know what ur going through. But unfortunately for me they haven't offered me a laparoscopy as my gyne told me I didn't have endometriosis because he said he seen nothing on the ultrasound. My doctor then told me he should know it doesn't show up on an ultrasound. Anyways I suffer with this sever ovary pain every month and it's getting worse. I had my 3rd c section on 26th of May 2014 and I have never been right since then I had sever bruising which they tried to hide with a double dressing I confronted them to find out they nikt a few blood vessels. They have offered me the zoladex injections but I decided against it because of the symptoms u can get. I was meant to go Beginning June then they changed it to July now I'm having to wait all the way till end of September. It's ridicules. I just hope they sort it for u soon because it's unfair that we have to suffer 😐 x
    • pauline14881
      pauline14881 kayley1987

      Posted

      I would really press for that laparoscopy just to rule it out,how do they know it isn't endo unless they check?and you can only check with a laparoscopy......keep trying and push for one if you can.i have been having the injections( not sure if zoladex is the same) but my side effects haven't been that bad,the worst I've had our hot flushes and night sweats,and if you can get hold of a fan it's really not that bad.....would take these side effects over the pain I've been having any day.hope things get better for you,I know it's a nightmare sometimes.keep thinking positive thoughts if you can.☺️X
    • mrs-magoo131
      mrs-magoo131 kayley1987

      Posted

      Hi Kayley, you need to demand your doctor to get the gyne do a laproscopy as the other scans do not so the endometriosis on the outside of your womb, around the bladder areas. I have had 3 scopes and had to have the endro op to clear all the growths cysts which had come from the c sections I had too.

      We need to demand more from our doctors and stop allowing our doctors push our concerns about our body aside.

      Good luck, Michelle

  • patsyrose
    patsyrose pauline14881

    Posted

    Hi Pauline

    My Endo only showed up when I had the internal examination.  It showed Endo surrounding my ovary and bound to my bowel, with a large fibroid wrapped around it.  My consultant actually showed me the colour photos that he took.  I would ask him again.

    Patsy

    • pauline14881
      pauline14881 patsyrose

      Posted

      Thanks,yeah I'm seeing him on the 24th with hopefully a plan.have enjoyed the past three months almost pain free,it has been worth all the hot flushes and night sweats lol.x
  • froggy28
    froggy28 pauline14881

    Posted

    Hi. Endo can grow with time and small amounts may not have been noticed back then especially as it wasn't as recognised as a condition back then. I had a small mass show on scan which they thought was cyst but decided to do lap to investigate to find that I was riddled in endo and my womb ovaries bowel and bladder all fused hence my pain. This did not show on scan. I have since tried zoladex but felt so awful on it stopped that and have now had a full hysterectomy Inc ovaries. Ok it's only been 10 weeks but no pain! ! My option is Not to be taken lightly as other problems could occur having ovaries removed at my age of 40 but I guess I decided I'd rather take risk than live in constant pain. I do get achy pains in my legs now but when I've had 6 months clear I can have hrt which I'm hoping will stop this (fingers crossed). It certainly sounds like endo but only way for true diagnosis is through lap operation by a specialist. Good luck
    • pauline14881
      pauline14881 froggy28

      Posted

      Thanks for your reply,I feel as you do that it might have been missed also,hoping to get some sort of a answers when I see the gyno at the end of the month.he said if the decaptyl worked then the only solution probably would be to take out my ovaries,and like you I have just turned 40 so it's a big thing as you point out.i also am seeing a gastroenterologist because they are also assuming that I have bowel issues (which I do intermittent diarrhoea with chronic constapation,right sided pains)all of which they can't find a reason for.so again everything points to endo.thankyou once again for your reply,maybe I can get to the bottom of things eventually.
    • froggy28
      froggy28 pauline14881

      Posted

      Endo can cause ibs symptoms. I'd get terrible diorrhea on time of month but that has all gone since they freed my bowel from my womb and it was also nasty endo related. X
    • patsyrose
      patsyrose froggy28

      Posted

      My doc kept telling me I had IBS...it took a woman locus to decide to send me to see a consultant.  I had a full hysterectomy too (at 42), but I had never wanted children.  I was told that I could expect to be on HRT until 51, but I took myself off it after about 3 years...with no ill effects.
    • pauline14881
      pauline14881 patsyrose

      Posted

      Yeah apparently I've had IBS for years,which I don't really believe,I think my problems are all connected.yes I think the gynocologist said a hysterectomy is the next plan,I'm also 40 so I guess it will be HRT for me also.....I'm having hot flashes now so I will be used to the menopause I guess lol
  • kayley1987
    kayley1987 pauline14881

    Posted

    I'm only 27 I don't want any more children though that's why I got sterilised a yr ago when I had my 3rd csection. I'm to scared to go through a hysterectomy though. But don't know how long I can go with the pain 😐
    • froggy28
      froggy28 kayley1987

      Posted

      I know there's more to think about long term but if you've been through c section the actual op is probably similar. Bit more care due to internal stitches but no difference pain wise. Tbh I didn't even take parecetomol after first few days. Sore but not excruciating. It's your age that will concern drs taking your ovaries so young. There are lots of websites that both reassure or scare so I know how difficult the decision is. I found a the Australian sites alot more open and up front about it all. I hope you can get some answers and pain relief. They can stop estrogen production with drugs to see if it makes a difference first before going through it although as with anything they come with their own problems for some. Coming back as a man! Lol
    • kayley1987
      kayley1987 froggy28

      Posted

      Thanks for the reply. Are they the zoladex injections ? They were going to try me in them to shut my ovaries down to see if it helped but when I read up about them I just didn't want to go threw all that. They are reluctant to do hysterectomy if they can help a different way because when I had my last csection they said everything was stuck to everything. My bladder , bowel etc . It's scary. One of my worse fears to be put to sleep too 😞
    • froggy28
      froggy28 kayley1987

      Posted

      I so know where you are coming from I was beside myself with fear going under but really it is fine. One minute you are lying in anesthetic room the next you are waking up in recovery. I too had everything fused so they did one op to free it all and clear out as much endo as possible then hysterectomy 3 months later (well it was booked in for 3 months but was cancelled day before due to theatre maintenance) so was actually nearer 6 months. The consultant took all remaining endo but I'm without hrt for a while to make sure anything left goes too. I was very lucky to be referred to a national specialist in endo to do my op. Yes I had zoladex but they gave to me without asking after first op in recovery which I'm angry about as I reacted and had awful migraines. I had no chance to look it up first. It's a month slow release pellet so you can't take it out again once in you. It was worst month ever. I do know people who swear it's a miracle so it really just depend on individual. I have seen others on here have different estrogen blocker injections but don't know what they are sorry. Let me know if you have anymore questions x
  • coral2786
    coral2786 pauline14881

    Posted

    My personal opinion would be see your gynaecologist and ask if another diagnostic laproscopy can be carried out as me from persobal experience i had my 1st laproscopy in 2005 and found endo but i was still suffering with severe pain 12 months later they did a 2nd laproscopy and found a large amount of endo hidden behind my vagina wall. I have now had 9 laproscopies in 10 years. Hope you get some answers
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