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Hi there, wonderful amazing people,
So this has been the year of health issues for me (‘30s mom of 2). Five root canals, bleeding disorder from long-term ibuprofen use for injury-induced arthritis, increasingly painful sex to the point it’s not been an option for several months now (luckily I have a most awesome and understanding husband) then tiny papercut-like sores on both sides of my perineum that wouldn’t heal...and the emotionally-taxing, frustrating and expensive journey to find out the cause.
At first I was convinced it was genital herpes and got swab tested twice with negative results. I was still desperate to get a diagnosis so I got an IgG test that came back positive for type 1, but there’s no way to know for sure if it’s genital. I just assume that it’s possibly both genital and oral and take a daily suppressive of acyclovir. I’ve also been tested for yeast, BV, every STD out there including Pap smear for HPV and all negative. I was sure it was just herpes after the IgG, but after months of acyclovir and every homeopathic herpes treatment I could find, still had pain and occasional perineum cuts. So last week I went to see a highly-rated specialist. She very quickly advised a biopsy for lichen sclerosus, observing that not only did I have the characteristic lightening of the skin but that my labias have moderately fused. The specialist plans on treating with topical steroids.
I was actually relieved when I thought it was herpes...now I’m devastated at the strong possibility of LS. My clitoris, labia tips and perineum (especially where the cuts appeared) are noticeably lighter, almost white. I guess in short, I’m expecting the worst and hoping for anyone with similar problems and any tips I haven’t yet tried for relief of the pain in the mean time while awaiting biopsy results. I’ve been taking L-lysine, vitamin C, vitamin D, iron (had slight anemia recently), and topically been bathing in epsom and applying coconut oil with lavender essential, but the whitening is still progressing and seems pretty rapidly lately. Also awaiting results for thyroid and other panels I got today with the biopsy.
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