Possible HS??? PLEASE HELP !?

Posted , 5 users are following.

So for as long as i remember i have had these lumps under my right arm (2 so far) and 1 on each side of my groin area. they are painful and burst (flare up and calm the flare again). If you attempt to pop they move under the skin and absolutely kill! I never went to the doctor because i was embarrassed and thought they were simply ingrown hairs... but they did not improved so i decided to see the GP. They gave me flucloxacillin (500mg 4 times a day and hibiscrub) i have only just finished the antibiotics but the two main lumps under the arm and the two on the groin area are still present, i've been told to wash with hibiscrub even after the course of antibiotics finish, however nothing seems to be improving...

Do i ask the doctor if it could be HS?

Should i be concerned?

They can be really painful during the day and being a girl with one located just above where my bra is sometimes it rubs also causing it to burst...


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  • Posted

    I have 2 one on each thigh they refuse to go away, they break and come back for many years. All I can do is cover with bandage and they seem to stay under control. They are in a bad place as skin rubs.

    I had 5 under one arm I had to go to a surgent to get them removed couldn't get dermatologist to do those. Year later 2 small ones showed up under that arm I just ignore. If they don't bug you I would leave those alone. They don't heal fast at all under the arm.

    The one by your bra sounds like a spot a dermatologist could remove in his office at low cost. Find a good dermatologist, hopefully they remove it and corderize the area and that stops it.

    Most doctors dont know what to do with H.S. Took me 10 years to even know what it was. Those antibiotics and topical cream do nothing for these. When a doctor puts you on that stuff find a new doctor.

    I actually think Accutane can stop these things but its a contraversal drug. I have been on that drug like 4 or 5 times in my life and it stopped all skin problems for 5 years after a 6 month treatment. I would get back on it after years of clear skin. It has some side effects you should be told about and of course lawsuits.

    The thing that has slowed mine down is I cut back on sugar big time. I found when I ate chocolate, pastries it would flare up more.

    There has to be a way to treat these things once they break. I tried a bunch of products but nothing works they just heal and come back.

    I was told Humaria can stop them, I was put on that and it got worse. Humaria is dangerous to me.

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    • Posted

      Also dermatologist can inject some cordisone stuff in them and it calms them down for say a month, but they come back.

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    • Posted

      Damn! Thanks for the advise, the groin area ones are less of a problem more of a confidence thing, but the arm pit ones hurt. I will give the sugar cutback a go and see if it calms down before I ring the doctor as I have done thorough research and I'm 90% it is HS. I hope you find something to help you in the long run but you're right these antibiotics haven't touched it! They have reduced redness from the surrounding clusters of red dots near the larger bumps (they thought it was spreading) but not really done much to the large ones 😕

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  • Posted

    Iodine salve/ ointment. Betadine, Wokadine, Pyodine.

    I recently had one on my buttocks, very close to the butthole. Every step I took, every move I made I was in so much pain.

    I used very hot water to make it surface, just put the shower on it and slowly increase the hot water. The I used baking soda as an exfoliant. (nearly impossible to touch, but I had to make it pop)

    Then iodine salve and a band aid.

    I repeated this later this day, cause it wasn't popping.

    The second time it did open and such a relief. I then had to squeeze it from different angels, cause it won't drain otherwise. I put iodine again with a band aid and when I took it of i opened up again and more came out.

    When the worst was out and the pain was gone I used zinc salve.

    I hope my embarrassing story can help you!

    My flare ups are from chocolate!

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  • Posted

    Antibiotics and other creams do nothing to help H.S. I'd find a doctor who knows what H.S. is. The only thing that helps me is Humira.

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