Possible hypothyroidism but normal blood tests

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Hiya. I'm 59 and have been unwell since 2004, after suffering some sort of virus and slipping into chronic fatigue. I have all the symptoms of hypothyroidism, but without the proof of a positive blood test. I also have benign nodules on my thyroid and suffer from laryngeal spasms. I am also recently diagnosed with Obstructive Sleep Apnoea. My GP will not send me for a cortisol test, and my blood test did not include a reverse T3, so I am paying privately to see a doctor next week. I was wondering if anyone else suffered similar problems, or if you have any advice. Many thanks.

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  • Posted

    Same here Helene ,I've just had a clear one back ,but I had a private thyroid Peroxidase antibodies test prior to a NHS the private came back as elevated antibodies ,now I don't know where I am .Mine all began some 9 yrs ago from a virus ,but prior to that virus Id been bitten ,so my first thought was Lyme to bite .Then this thyroid ,feel like you Im left dangling ,but I know something's wrong ,but I will always remember that bite some 10 yrs later ,

      why all these yrs further on ,I feel like I've had constant flu ,never left me .

       My Dr can't explain the elevated Peroxidase ,although I know my autoimmune is out since being ill ,as Id lost over 4 stone in weight,in 4 months ,I was malnourished ,even I could see that .So Im looking at 2005 I've been this way ,not unlike yourself in time wise .

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    • Posted

      Thanks for repying, Marlene 21102. I'm sorry to hear that you've been suffering such a long time, like myself. I have gained 6 stones in weight. Lyme disease was a consideration for me, but the confusing aspect is that many illnesses manifest with chronic fatigue, fibromyagia, etc, and so it's easy to be led down the wrong route to either non diagnosis (you and I) or misdiagnosis. We just mustn't give up.
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  • Posted

    I'm told the 24 hour saliva test is best for checking cortisol. Have a look at the thyroid patient advocacy website. Register and look at 'treasure chest'.
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    • Posted

      Thanks, Barbara. I've looked at the website and now have a clearer idea what to ask the doctor when I see her.
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