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First of all, I find reading your stories on this forum fascenating but sad. Sad at how much chasing you have to do to get someone to believe you or test you and how much your GP's dismiss what you're thinking. In a way, I've also felt this partly over time.
I want to tell you what I've been feeling and see what you think.
So, I'm 26, Male. Live on the Isle of Man. Always been a particularly healthy human. Not been to the doctor in about 7 years and never really had anything wrong with me. Slightly overweight (probably due to alcohol) but always had excellent eyesight, never really got ill etc. etc.I have had a history of palpatations since the age of 19.
Around Christmas Day 2015 I noticed a slight shift in my vision. Like just a bit of dizziness. This contnued to flick in and out. 26th January 2016, I had a few beers watching the football. Following morning I was walking to work thinking how dizzy I was. It was awful! That morning i started getting a racing heartrate. I knew this wasn't normal and went to A&E. By the time they did the ECG it had settled down back to normal. Went to my GP, did some blood tests, said I had low iron, given some pills. The next few days I felt awful, no energy, dizzy.
Over the next month, the symptoms persisted (dizziness, feeling generally awful, my vision looked as though I'd had about 10 pints). I was signed off from work for just over 2 weeks and put on propanolol (beta blocker) being treated for anxiety! While I was off I went for a walk to the chemist to pick up my latest dose of pills. On the way back up the hill I began to feel very dizzy again. A couple of hours later I got this racing heartrate that I'd had in January. Again I went to A&E who did an ECG but again the heartrate had reverted to normal.
Went back to my GP who increased my dosage of propanolol. More blood tests indicated slightly low Vitamin D.
By now, I noticed that when I was looking at the sky I could see black objects moving round as well. This was dismissed as nothing. Being at work was now getting worse as sitting in a room of lights staring at a screen was just making me more dizzy. I'd also noticed I'd started bleeding slightly when going to the toilet now. Was referred to the hospital to get this checked out.
End of March, the same thing happened again with my heartrate. Back to A&E. This time it was captured and diagnosed with Paroxsymal Atrial Fribrillation. Put on Bisoprolol 5mg. Started getting this horrendous acid reflux soon after which is being treated with lanzoprasole.
Shortly after being put on Bisoprolol I developed this awful headache / feeling more tired / more dizzy etc. After seeing the cardiologist my bisoprolol was reduced to 2.5mg and the headache got slightly better. Tiredenss / dizziness didn't though.
Had my rear end checked out in the hospital with a colonoscapy and was told I had Piles which was a relief.
The dizziness and vision issues persist however. The doctors try to put this down to my heartrate. However, as far as I'm aware i've only had 4 episodes of AF this year. What about the rest of the time!? A 5 day heart monitor showed my heart was perfectly in rhythmn that time and yet I still felt awful.
Start of November 2016, I wasn't feeling too bad. Went to go out in the car to watch the firework. 20 seconds later something weird happened and I lost all sort of spacial awareness. I could see, but I just felt like I couldn't feel where the ground was. Managed to stop the car and walk to a friends house. I was unable to walk straight and felt like I needed to lie down. Went back to hopsital had bloods and an MRI Scan done of my head. these both came back 'perfectly normal' and I was discharged.
Went back to my GP who has referred me to the ENT Clinic. I'm due to be getting the dizziness / balance tests done in the next couple of weeks. I haven't had another episode of this since this time. I was put on betahistine when I was discharged which doesn't make any difference to my dizziness at all.
January 2017 I had an ablation carried out on my heart which appears to have gone well.
For the past few months I generally wake up multiple times a night and in the morning feel just as tired as when I go to sleep. I've also started having random muscle twitches that go on until I stretch out the muscle.
Some days I wake up and I don't feel too bad. Virtually every day I go for an hour / two hour walk and can manage it with ease. The only thing that bothers me is the dizziness / tired feeling.
What's weird is, I know that if I have a few pints ( I had quite a bit on New Year's Eve) then I think I start to feel ok again (until the alcohol wears off).
So, to sum up all the above here's what I know:
Dizziness / blurred vision - occured since December 2015 - now a daily almost permanent 24/7 thing
Eye Floaters / black objects in the sky - Occured daily since about February 2016
Feeling generally awful & tired
Feeling awful sat in a room full of lights / staring at a screen
Headaches - In a particular place, always the lower right of my head
Managed to develop a heart issue (which has hopefully been cleared now)
I'm on 6 different pills each day in the morning at the moment (Bisoprolol / Betahistine / Vitamin D / Magnesium / Lanzoprasole / Fish Oils)
In my head, I just have this bad feeling there's something more wrong. I don't feel like I'm getting any worse as such but there must be something causing these persistant symptoms ? I know i had this rash on my thigh but I can't remember how long ago it was and I can't remember what shape it was (I don't think it was a bullseye shape though or I'd remember). I just remember this pink patch being there but thought nothing of it.
I'm due to come off the Bisoprolol next week and I know side effects of bisoprolol can be what I've been feeling, but I'm almost certain they've been going on longer than since when I've been taking it.
Does the above sound like possible Lyme Disease?
I'm interested to see what happens when I stop the bisoprolol next week. I'm also due to be going back to my GP in a couple of weeks. I want to request being referred to a neurologist ( I can use my BUPA cover for that), and a test for Lyme Disease (which I know isn't fool proof).
I just want my life back! I'm waking up at least twice a night. Every morning I wake up and just dread the feelings that I know are going to appear almost instantly after.
I have managed to go on holiday twice over the past few months. I know that while I've been away and having a few beers I have generally felt fine and don't recall seeing the floating objects and also had more energy.
From the stores that some of you have written it can't be lyme disease as I'm generally fine apart from this dizziness / vision / tired issue?
Arghh so confused
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