Possible ms? Or paranoia

I meant within 10 days....

hi, i have ms, diagnosd (which can be shortened to dx) 2004, in short, the wildly varied possibilities of ms presentation/progression frequently make dx difficult. there generally needs to be signs of progressioin over both time and space, using both medical examinations, by a doctor (preferably a neuro. dr) and MRI. typically, a lumbar puncture is done, to test cerebrospinal fluid for oligoclonic bands, as well. about the ,ost that any neuro dr would tell someone at this sort of stage is 'it MIGHT be ms'

i would advise anyone with strange health concerns, to keep a written record of any symptoms and changes in symptoms. severity of each issue too and keep dates where poss.

hopefully you will find that there is a simpler, less worrying cause for your problems, trapped nerves, perhaps. i found simple breathing exercises helped to make being dx a little less stressful. should it turn out to be ms, i'd recommend the uk ms society website for info

best wishes x

Hi thanks for the reply. I thought as much that i won't get much in use way of a dx until MRI and further tests are done. Just thought I would try and find any other peoples experiences of relapses regarding numbness/tingling. My symptoms seem to be fairly constant, in the fact they don't really change from hour to hour or day to day. They have been progressively increasing in intensity over the whole experience since it started, but it is quite gradual. I presume most people get this kind of sensory numbness. Any chance of an explanation of how the numbness feels? Is it similar to what I described, does it flare up more during the course of a day, or by external stimulus, or is it just constantly there, all day long? Do you lose all types of feeling in the affected areas? Any kind of info will be great, just to empower myself with knowledge of what others have gone through really. Many thanks for the reply.

In 1989 I had optic neuritis but didn't see a doctor and the effects went away in about 7 days.  In 1990 a friend at work and I participated in the MS bike ride 'The Best Dam Bike Get Together' in AZ.  The ride was from Phoenix to California.  I went the following year also but died going up the last 3 miles of uphill to the Parker Dam. 

Then I moved to Long Beach CA and in 1993 while working on the F-18E/F at Northrop my toes were tingling.  By Friday I could not feel anything below my waist.  After about 5 months the feelings returned to normal except the balls of my feet felt like they were swollen and hurt to walk on.  Naturally I still did what I loved doing playing basketball but now I stumbled and my legs felt like lead weight strapped to them.  They got heavier and heavier the more I played. Soon I realized that playing 8 or 9 games was out.  I would be lucky if I could stand after 4 games. 

Finally in 2000 I got optic neuritis again and went to a doctor this time.  He sent me to a neurologist and the discovered I had MS.  Thank God I thought now I know what’s wrong with me.  But I was wrong, now I realize what a curse.  I am screwed.  No more basketball, I'm fortunate if I can even play one game and worst of all I now suck at it and I am from Indiana.  I can't work up a sweat in anything I do because I can't run and do it.  I hit a wall and I am spent. 

That's how it started for me, although, I think it really started from never being sick in High School.

h againi,

i didn't give a description of my sensory loss in my earlier post,(and it's really difficult to describe, as you doubtless know, but here goes):

to begin with it was an off and on issue for me, there's no 'standard' way for it to develop, some find it's continual. like you, from the onset of noticeable symptoms, i could feel sharp things, although much less so now, the same goes for a softer touch sensation. my sensory loss has slowly crept up on me, it feels as if there is something (like fabric?!) between my skin and whatever sensation there should be. however, i can still, mostly, feel hot/cold sensations. i find that anything that should feel like a gentle touch either is barely there, OR really horrible, it sort of makes me cringe or jump away from it. my reflexes are either as flat (barely there) as a pancake, or super sensitive and tingling and burning seems like an 'optional extra'. sorry i can't provide better descriptions. 

hope this helps (?)

I have similar symptoms, just wondering if you found out if it is MS? I have a neruology appointment in two weeks. Genital numbness, can feel pain and temp. Lost my sense of taste twice. Some twictching at night before bed. burning sensations in my feet. 

Hi..don't know if you ever got ur mri to find out what it is making you numb..but i also had numbness started in my feet and worked it's way up to my waist..but stopped there..there's a name for it..think it's called the 'ms hug'..something like that..i can't feel things..not total numbness, but pretty numb..my feet a lot of times feel like i'm walking in cold wet sand is the way i descibe the feeling..my feet get freezing a lot..i was diagnosed a few months back with ms..i'd had lyme disease last year, and bcuz of the numbness, my doc thought maybe it had spread to my central nervous system..so had a spinal tap, then two mri's, and it was determined that the lyme was gone, but that i have ms.i've been told there are no two people with the same symptons..everyoine is different, though the symptoms are all similar..look up the Stark Diet for anyone who has ms, and doesn't want to take the meds with all the awful side effects..diet is important..stay away from any and all processed foods..i stopped drinking milk and switched to almond milk..google milk and ms and read about it. I take something called low dose naltrexone..look it up again..andit works pretty good for me, with virtually no side effects..my doc wants me to take something called Aubaggio..but the side effects are about worse than the ms, so i don't want to..and remember..you don't have to take anything you don't want to..and if ur not happy with something you take..tell ur doc and try something else..if he won't do that..find a new doc..it's ur body..you have to live with what the effects of any drug are..so it's up to you only..read up on ms medications for an informed decision.hope this helped a bit..let me know what happens with your doc..

Hi the trouble with ms and Dr's is they never agree. I had numbness my leg dragged, the ortho said orthopaedic the neuro said ms, it took me years to gety ms diagnosis after weird symptoms and severe fatigue periods. I didn't like my neuro but at least he was constant after first being dusmissive, he always said its MS. I developed a Dr phobia later and now when I am deteriorating I have a new neuro who says its Arthritis and a Dr who says its MS ....so I'm heading towards closing my marbles!!! When you have ms only other people with it know the frustration of not being believed etc good luck you need to fight for your dx.