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Possible MS? Posting again after more symptoms...

Posted , 5 users are following.

Roxy1520
Roxy1520

So I'v had strange symptoms and sensations but can't figure out if my symptoms align with MS. I've currently put testing on hold since I won't have insurance until August but I'm curious to see what those of you who may have MS think about my symptoms and/or testing (or those of you who are going through similar experiences without a diagnosis). Here is a list of symptoms I've experienced over the last 3 months (some are transient, others not so much). Also, not sure if this is of any significance but the majority of these symptoms occurred after a horrible sore throat/chills at the beginning of April. The strange thing is that the sore throat, though awful, only lasted less than two days:

Lower back pain (lasted a few weeks)

Slight numbness in both arms (Worse in left. Comes and goes. Now only in left arm.)

Cramping in wrists

Heat sensations in right leg

Sciatic sensitivity behind both legs

Tingling/itching feeling in left shoulder blade area

Random cramps/shooting pain in both feet

A twitch/tremor in both pinky toes (worse in left foot...has lasted 1.5 months. Have had twitching all over body as well)

Increase in floaters in eyes. Grey line goes across left eye when looking left to right. No eye pain though)

Tigh/stiff left ankle. (Definitely worse in the heat, especially in a hot shower. Same with the toe twitching)

My testing/doctor's visits so far:

Chiropractor for back and arm numbness. I don't know whether the chiropractor helped or if the symptoms went away on their own but I am not having issues with my back at this point.

Bloodwork: CBC, Thyroid, Metabolic panel: came back normal

Orthopaedic specialist: Did not do any official nerve testing but said that all of my reflexes appeared very normal to him.

Full Spinal X-ray: Mild scoliosis

Brain MRI: Came back completely "normal", and I had it done while I was still experiencing symptoms.

Any thoughts on where to go from here? I know that I should probably get a cervical spine MRI but can't afford that until August/September. Honestly, I'm not freaking out about the possibility of MS, I just know that the earlier you address it, the better the outcome typically is. I think the numb/stiff feeling in my leg is what worries me most since it gets worse in the heat and I know that in MS, heat intolerance is a major sign. Thank you for any input!!!

0 likes, 7 replies

7 Replies

  • wendy80842
    wendy80842 Roxy1520

    Posted

    There isn't a specific route that MS takes, we vary wildly, due to the complexity of the nervous system. Should it turn out that you do have it, it'll be unique to you. I've never heard of chiropractic treatment being particularly helpful for MS symptoms, so hopefully that bodes well for you. A lumbar puncture sample would be the obvious next test to be done. Really, the best way to have the correct MRI's done would be via a neurologist, the technician doing the MRI's would need to be directed to do the appropriate testing, looking, specifically, for lesions, typically, on brain and C-spine.

    • Roxy1520
      Roxy1520 wendy80842

      Posted

      Thank you for responding! I had my MRI done in a rheumatologist's office and they were looking specifically for MS related lesions. My research has certainly confirmed what you say about the uniqueness of MS experiences. Thanks again for taking the time to provide input!

  • bic24773
    bic24773 Roxy1520

    Posted

    Hello, I started with back problems and had chiropractor and osteopath. Sacro cranial therapy helped with tiredness. It was the orthopaedic dr that eventually referred me and told me when I mentioned involuntary finger movements. Initially the neuro was dismissive. I'd already had back scans, I had a head scan and invoked potentials when I went back the Neuro was nice (previous nasty) and told me my results, the only one I remember was brain inflammation. I don't know if your spine us causing your problems but I get aot of the same symptoms. I can't stand heat it makes me very ill but I think it's also something other than MS. Good luck with your journey Wendy is right, we may have similar things but even neurologists don't always know all the symptoms. Get a neuro to do further tests and let us know how you do. Don't take sweetners and check your good fir sweeteners too. ??

    • Roxy1520
      Roxy1520 bic24773

      Posted

      Thank you so much for taking the time to reply! It's interesting that you said your neuro was initially dismissive, I would say that the 3 doctors that I have been to have also been pretty dismissive. I had to get an MRI on my own accord, as I did not have a doctor's referral. As far as the back pain, it was my lower back that bothered me but it is no longer a problem. Personally, I have no fatigue whatsoever. I sleep just fine and wake up feeling refreshed. I haven't noticed a difference in my energy level. I also don't have any issues with balance or weakness. And as for the heat, I don't feel any different in the heat except for my foot and ankle feeling tighter. I do know that every person's experience can be different. Again, thank you! Hopefully I can get some closure soon.

    • bic24773
      bic24773 Roxy1520

      Posted

      Yes I hooe you do, a lot of us feel like hypochondriacs ir should I say get great like that before diagnosis and unfortunately after too. Mum had MS too, my sister was diagnosed with early Parkinson's butvuts was probably MS and my other sister has lesions and back problems. They say not hereditary but genetic be kibd to yourself and I hope and I mean it sincerely you get done answer's ??

    • kate85294
      kate85294 bic24773

      Posted

      Hi dear

      I have a question about my resent MRI.

      I just got my brain open MRI result that I don't understand it well. I've asked my dr to explain it but he said the neurologist will do it. But he was not that concerned. He ordered different blood works such as ANA, SED, C-Receptive and PMR test. All came normal.

      But my MRI result Keeps me concern and anxious.

      Several nonspecific punctate FLAIR hyperintense lesions within both frontoparietal lobs, primarily peripheral in distribution. In patient of this age these are Atypical, and could be inflammatory- infections, demyelinating, chronic migraines, vascular and not completely excluding vasculitis. Impression: Tiny scattered frontoparietal FLAIR hyperintensities are distributed largely peripheral. In patient of this age, with this MRI appearance it could be due to variety of etiologies. Further work up is therefore recommended clinically. Further radio graphic work up may include MRI using Gadavist, cervical MRI in indicated and follow up MRI for stability advised.

      Will you or anyone in this forum please explain my result to me better than my dr. Beacuse he was not that concerned since I am 37 years old. He says that the radiologist tries to make a big deal out of it. However, I googled all the terms that the radiology dr used. and I came up with MS, vasculitis and infections.

      ????

      Thank you??

  • tracy35015
    tracy35015 Roxy1520

    Posted

    Have you had your vitamins B12 and D tested? When deficient these can cause all sorts of weird symptoms. Your levels should be in the top half of normal range or you could be getting low. Neurological symptoms are possible when B12 is below 450 ng/mL (or pg/L in the UK).
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