Possible pelvic floor dysfunction/other pelvic floor problem?

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I've been dealing with some really stressful symptoms for the past two months now. It all started the day after I had an extremely stressful and unexpected event happened to me (which was preceded by a couple months of stress about another problem), so I think it may have been triggered by all that stress and anxiety. I literally woke up that morning and started experiencing the symptoms. After suffering for this long I have come to the conclusion that my pelvic floor is probably the root of my symptoms. I have been to urgent care twice (when I thought I was dealing with a UTI), and then a gynecologist, urine tests came back negative all three times but even when I was given antibiotics anyway it didn't help. Just saw a urologist for the first time, finally, yesterday. They did an ultrasound and said everything there looked fine (so I don't have a kidney stone causing the symptoms, which the gynecologist suspected), and sent a urine sample to the lab, so I haven't heard back about the sample yet but I'm sure it is negative.

My main symptom is the feeling that I need to pee literally all the time. Every second of every day I feel the urge to urinate but even after I go, I have no real relief. It wakes me up multiple times a night, only for me to pass relatively small amounts of urine. Obviously this is extremely frustrating and has had a serious negative effect on my mood and social life as well as my sleep. Plus, I am a college student and the spring semester is about to start, but going to class will be very unpleasant feeling like I have to pee the whole time.

On top of the urinary symptoms, I have been dealing with constipation this whole time as well. Before these symptoms started, I was very regular (even when I was dealing with stress - so stress isn't usually a trigger for constipation for me). I started having pretty bad constipation the same day the bladder problems began. That problem has improved somewhat since it started, but I'm still far from regular and I feel that the only reason it has gotten better is that I started eating prunes every day.

In addition, the past week or so I have noticed a bit of pain. It doesn't happen every day and usually is relatively mild, but sometimes is worse. The pain appears in my pelvic area around where my bladder is (although I don't know if the pain is in the bladder itself) when I tense the muscles down there to use the bathroom, and if I continue to push the pain gets worse and seems to spread a bit towards my rectum.

Basically, what I am hoping to find out by sharing all this information is this: To those of you reading who have dealt with pelvic floor problems, does it seem possible that pelvic floor dysfunction (or another pelvic floor issue?) could be what I am dealing with? Should I go to a urologist to try to be tested/diagnosed or would a urogynecologist be better, or another kind of specialist? And, if I am dealing with pelvic floor dysfunction, what kind of treatments have you found most helpful?

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  • Posted

    Rachael -- Yes, this could be pelvic floor dysfunction.  Check out "Myofascial Pelvic Pain Syndrome"  which can be brought on for a variety of reasons -- and can include pelvic and rectal pain.   The non-stop need to pee can also be a part of this. (Although if it is accompanied by UTI like symptoms it could have interstitial cystitis connections. ) 

    Myofascial Pelvic Pain is not exactly unknown but because it is a constellation of symptoms doctors want to pull it apart and treat each separately -- when it can include urinary, vaginal, uterine, rectal and abdominal issues.   See if you can find a uro-gynecologist who may be able to point you in the right direction.

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    • Posted

      Thank you! I will have to look into that. I'm a bit relieved to have someone acknowledge that this could be the problem because after what feels like forever with these symptoms I think this is the cause that makes the most sense. I'm not really having any UTI like symptoms so hopefully I don't need to worry about IC.

      I'm seeing a urogynecologist in a couple weeks. Hopefully I will get some answers then. Thanks again, I appreciate your reply.

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  • Posted

    Rachel, I have been where you are. I have (had) an overactive pelvic floor caused by me clenching my muscles down there from stress and also just from trying not to let my stomach just be itself.  I had a stressful event in my life 5 months ago cause me to clench even more (I didn’t even know I was doing it)) and the resulting muscle spasm caused pain, burning, pressure and anxiety

    A doctor finally diagnosed me with pelvic floor dysfunction and sent me to pelvic floor physical therapy.

    This has saved me. I was experiencing pain every night, and with my PT’s help I am out of pain and getting better.

    I still have a way to go, but I’m getting there.

    I can’t recommend pelvic floor pt enough. It sounds weird, and it is kinda different, but people who do it are angels. I love my therapist. 

    A couple months ago, I thought I’d never feel good again. I was wrong! 

    I hope you can get some help soon 😊

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    • Posted

      Thank you! This gives me some hope. I still am not entirely sure my problem is pelvic floor dysfunction but I honestly don't know what else it could be. I am glad you are feeling better and hope I will be soon too.

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  • Posted

    Hi Rachel,

    One thing I was wondering - if you press onto your lower abdomen just above your pubic bone, around where your bladder/uterus is, do you have tenderness?

    And do you have tenderness if you suddenly release the pressure in that area i.e. rebound tenderness?

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