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Hello. I'll try to cut this short as I can.
I've had problems with my leg for a year. Cellulitis, pancreatitis, edema. I've had a wound that's been scabbed over for 4 months. Seeing the doctor several times I was just told to moisturise it so I did. 1 1/2 weeks ago it burst, and a 4 days ago I saw the doctor and got a dressing and some clarithromycin as I am possibly allergic to penicillin.
I went to the doctors yesterday. The cellulitis on my left leg has got no better, but no worse. The actual wound looks a bit better. However, the cellulitis now spread to my other leg. The nurses and doctors were baffled as there's no visible entry point and it shouldn't spread on antibiotics. I got 4 doctors in. Eventually one said it could be related to be underactive & ill-managed thyroid function.
It could be pretibial myxedema.
At first I was relieved because I don't want a cellulitis infection that isn't responding to anti-biotics, of course. They took a swab and blood test but neither will tell me definitively which it is.
I came home and looked up pretibial myxedema. Terrible mistake. It's terrifying. It's far worse.
It's rare in itself. It causes plaques or redness or bumps on the lower legs. But in some rare cases it can spread to other parts of the body. And in rare cases it can become elephantiastic.
So now I am aware that there is a chance I could become horribly disfigured and/or impaired. However 'rare' it may be isn't a re-assurance, as I was born with a rare brain disease and might have now this other rare disease.
My anxiety is so bad I can't sleep. I can't focus. I had a panic attack lasting 4 hours last night. I don't want to live like that. Why don't the doctors warn you about this? Even if I don't have this disease this time I know now there is a chance of randomly developing it.
Does anyone know more about this? Can anyone talk to me?
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