Possible remission
Posted , 3 users are following.
What are your thoughts??
It's only been 4 months since taking meds (2 months on methimazole and 2 on PTU) and my MD thinks I'm going into possible remission.
He is having me retake labs next week to see where my levels are and possibly take me off PTU.
I am a little hesitant as I don't want to rebound. Currently I am on 50 mg of PTU daily. I would rather cut up the dosage or take them every other day, etc.
Last Labs:
TSH- .81
Free T4- .67
Total T3- 99 (I've asked for a free T3 in the next round of labs)
Taking:
50 mg PTU daily,
250 mg of L-carnitine (actually stopped for a week bc I'm feeling hypo again),
vitamin D
renatal without iodine.
Thoughts? advice?
0 likes, 15 replies
p12445
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Mike61308 p12445
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How does your MD define "remission"?
p12445 Mike61308
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He thinks bc my TSH is "normal" and my T4 is low ...he thinks I'm on the road to remission. My antibodies are still present but trending down (218 at the start and now at 208 from the last set of labs in Agusut)
Like I've stated, I would much rather be on a low low dose or taking ptu every other day than stop completely and rebound back
Mike61308 p12445
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Ok, understood. Maybe taking off (or reducing) anti-thyroid med is a good idea. But generally, how do you feel? Back to normal life with no original symptoms or remaining side effects? As your test result shows recovery, you should check back in your daily life... see if your body can again take over controlling and maintaining healthy life rather than focusing on depending upon medicine. However, if you are still in sort of "up-and-down" situation, it's a sign of instability... continuing monitor (test) is recommended and careful altering med would be wise. BTW, I wonder why you stop carnitine instead of PTU to prevent from becoming hypo? Hope you continue to recover.
p12445 Mike61308
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thanks for the advice!
p12445 Mike61308
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martha01898 Mike61308
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martha01898 p12445
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martha01898 p12445
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martha01898 p12445
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I have a similar question about remission. Thought I would ask here also. Maybe posting in the wrong place?
Diagnosed 2 1/2 months ago with mild to moderate Graves. Been on methimazole 10-15 mg and atenolol 25 mg for 6 weeks.
Taking L-carnitine 1500 -2000 mg for a month.
Last labs:
In only a month TSH went from 0.02 to 3.66. (0.34- 5.6). Is this increase in a month unusual ?
Free T4 went from 1.0 to 0.6
(0.06 1.6)
Free T3 went from 4.0 to 3.2
(2.8-4-4)
All are within range, even the limits of the ranges. My endo only wants to decrease methimazole to 10 mg every other day. I’m worried about going hypo and then having to take synthroid. Could the l-carnitine be doing this? (Endo says supplements don’t do anything). I also stopped biotin and B-vitamins 4 days before tests.
Can I cut down or stop on my own? I don’t have any hyper symptoms, and have even gained a few pounds and feel sluggish
Sorry to piggyback on previous question. New here and maybe I should copy to another place?
p12445 martha01898
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martha01898
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TPO was 16.2 (0.0-9.0) and has gone up to 26.5. Endo did not mention this.
martha01898 p12445
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p12445 martha01898
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I'd probably make a separate post martha. you may get more responses and thorough answers pertaining to your questions
martha01898 p12445
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