1. Community
  2. Chest and lungs
  3. Pulmonary Embolism

Possible Surgery

Posted , 3 users are following.

debby01
debby01

I have just seen respiratory consultant to get results of CT scan and lung function tests, and althogh the clots have dispersed a little he is still concerned that the clots are still there and I do still get a little breathless at times.

He has referred me to Papworth Hospital to see the specialists there who deal with the surgery to get rid of the clots.  I have read up a little on this and am terrified as this is major surgery,  He has said that there is a small possibility that i will not need the surgery but he wants me to see them and have any tests done that they want.

Was hoping for good news now just feel really fed up.

 

0 likes, 6 replies

6 Replies

  • lizzie70061
    lizzie70061 debby01

    Posted

    Hi Debbie. So sorry to hear you didn't get better news. I went to doctors yesterday as back pain really bad. I Asked if I would have another scan to see if clots have dispersed. She said she didn't think so. My blood pressure was high so having blood tests Tuesday. Are you in UK? . I hope all is ok and you wont need surgery. I still get breathless walking far. or doing hoovering etc. Take care.x

    • debby01
      debby01 lizzie70061

      Posted

      Hi Lizzie

      Thank you for your kind words. I live in Devon.

      I get good days and not so good days. I hope all goes well with

      your blood tests.

      Take care x

    • lizzie70061
      lizzie70061 debby01

      Posted

      Thanks Debbie. I am in Sussex. was just wondering how treatment varied in different areas and countries. Good luck . Will be thinking of you. xx
  • peter54321
    peter54321 debby01

    Posted

    Hi Debbie,

    Sorry to hear the news was not what you were hoping for.  It is possible that the specialist is referring you just to cover all eventualities.  (I was pretty alarmed when I was referred to oncologist, but found out later it was to ensure bleeding was only caused by anticoagulants).

    I was told that surgery is not common for PEs - are you sure he didn't say there was a small chance you will need surgery (rather than here was a small chance you will not need surgery)?

    Good luck at Papworth - my dad had long term heart treatment and I heard so many good things about them and their skills.

    Peter

     

    • debby01
      debby01 peter54321

      Posted

      Hi Peter

      Thank you for your kind reply.

      I think he is covering all possibilities but he does seem to think

      that surgery is a strong possibility, although there is a chance

      that things will clear. I still have right side heart strain due to the

      clots and an enlarged artery.

      I am hoping and praying that these issues will repair themselves

      given time.

      Take care

      Debby

    • peter54321
      peter54321 debby01

      Posted

      Hi Debby,

      I will keep my fingers crossed. At least you are seeing the top people.

      best regards

      Peter

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.