Possible to have lupus with negative blood work ?
Posted , 2 users are following.
I've felt pretty rubbish for a nearly a year some days better than others I've been to the doctors several time and been told I have anxiety or ibs the syptoms I have are
Hair loss
Pain in ribs and mid/upper back
Pain stiffness in muscles and in knees and elbows
Peteachie which I've had for a year bloods tests come back fine apparently been told not to worry
Muscle twitches don't hurt can just feel them under my skin
Tired sometimes not all the time
Nausea sometimes
Ibs
All my blood work comes back fine only thing thing that's ever come back not is vit d deficiency which is now ok although low end of normal and at the very beginning when all this started white blood cells was slightly raised which doc said would be a small infection and slightly raised crp other than that nothing I'm not sure my doctor as even tested me for autoimmune diseases but guessing he would have with all the blood tests I've had done does this sound like lupus anyone ?
0 likes, 4 replies
lilian05079 Mummyt2
Posted
It sounds as if you do have inflammation in your body...did your doc have carried out an ESR blood test ANA blood test and CRP blood test....
ESR - Erythrocite Sedimentation Rate blood test
ANA - Anti Nuclear Antibody blood test
CRP - C Reactive Protein blood test.
....go back to your doc snd ask for a print out of your blood tests..you can request them under the Freedom of Information Act...and check for yourself if the tests showed high levels...i did this and mine were high and the doc suspected i had lupus but the Rheumatologist diagnosed PMR Polymyalgia Rheumatica.....hope this helps ....best wishes....
Mummyt2 lilian05079
Posted
I'm not sure the I don't really feel like I can ask for copies of my blood tests and feel like I'm just pestering them all the time
Mummyt2 lilian05079
Posted
lilian05079 Mummyt2
Posted
Hi Mummyt2
Yes of course!......frequent fatigue, pain in muscles top of arms .... in shoulders, neck, buttocks, thighs and ribs and a butterfly rash which turned out to be rosecea..i also had B12 deficiency so it would be a good idea to have that checked aswell .....don't feel like you are pestering them..they are there to help you and your health... hey! it's their job!! it's your right to have a copy of YOUR own blood tests....best wishes...