Post cholecystectomy day by day diary of recovery
Posted , 15 users are following.
Hello everyone.
I recently put a post on this site expressing a concern with some pains I was having along with gallstones which had led to severe acute cholecystitis. The response and support I had received from so many different people was absolutely wonderful and really helped me. If not to take the pain away, but to support and really show a concern. I have since had my surgery to have my gallbladder removed and am home recovering. I want to share my experience with anyone having the same problems which can hopefully help when you are in the same situation. I am doing from day of op up to my recovery stage I am at now.
Day of op: I must admit, one of the scariest operations I have ever been booked in for. My surgery took longer than normal, 2 and half hours, due to my gallbladder sadly being quite bad beyond repair. Recovery in hospital was long but I was allowed home the same day. I was given some relaxant medication before I was put to sleep so you have option if you are nervous or anxious. Don't be scared to express if you are worried. Surgery wasn't as bad as I thought it would be.
Day 1 post op: I felt extremely sore, uncomfortable, gassy (from carbon air blown into the tummy) this was more uncomfortable than anything. I had a severe sore throats from tubes down there during surgery. Take pain killers regularly for at least the 1st 3 days. Even if you don't feel pain. I also experienced quite bad diarreah but didn't have a tummy ache with it. Felt slightly emotional and pain in my right shoulder. Again, this was from the air blown into my tummy. Just rest and sleep when possible.
Day 2 post op: the aneaspehetic had completely worn off by today so pain killers were really needed. Still experiencing sever diarreah but still no tummy ache. Gas is reducing and tummy is shrinking making wounds feel tight and sore. Pain in my shoulder is still there but slowly easing the more gas is released from my stomach. The worse pain at the moment is the bloating from the gas. Still please rest and sleep when you can.
Day 3 post op: pains are now more localised as gas is almost gone. So around the area of where the gallbladder was and wounds from surgery. My stomach still is very grumbly from the gas but not as much. Pain in the shoulder has now gone. Still experiencing diarreah which doesn't seem to get any better at the stage and had bowel movements up to 5 times in the day. Feeling tired of resting as I'm used to being active so I was getting up and moving around a little. I.e. To make a cup of tea or a sandwich. Still needing pain killers but now just for the pains from surgery.
Day 4 post op: the pains are still there but nowhere near as bad as day 1-3. I am up and moving around a little more, I tried bending but I suggest you wait a while longer that as it was painful. My pain killers are reducing and I am finding I only need them when necessary. I find I can't stand up for longer that 20 minutes. I am getting a bad pain/ achy back which I can only think is because I have done very little for days. I am now sitting mostly instead of laying and managing stairs much better but still please take things easy and at a pace you can manage. Today I went to visit the in laws and by the time I got home I was ready for bed. Energy is still very low but felt amazing to get out of the house for a while. I've only had 2 lots of pain killers today and that was more because I was going out.
Day 5 post op: last night was my 1st night back in my bed. I had my bed on the sofa because my toilet is downstairs and I was struggling getting up and down. Also reduced movement meant I'd have never made the toilet in time. I was very restless till around 3.30am as I couldn't turn around to sleep on my side which Is how I would normally sleep in bed. Eventually fell asleep and woke around 1pm 😳 I felt very lazy but bare in mind it was broken sleep. Today I feel loads better and recovery seems to be getting quicker. I'm not going to lie, I still feel pains but this is now more when I move and again only from wound areas and where the gallbladder was so I still recommend you still take things easy. Diarreah has now cleared and bowel movements are almost back to normal. I still feel sore but again it's much better than it was and also much more bearable. I haven't yet had pain killers and want to take them only when I need them. I am visiting the nurse tomorrow due to a naughty wound that won't stay closed so I'm hoping that's better than it was. More so because I would love to have a soak in the bath. Sadly I've been forbidden from showers and baths until it's closed enough to handle water. So flannel washes are what I've had to deal with. I am still on day 5 of recovery but want to share my experience now as I thought I would be laid up much longer. I am still resting but doing little bits when I can. I am proud to have started managing my stairs and finally had a proper night in bed. My pains are now only from where the gallbladder was, the belly button wound (which is my naughty one) and one wound in the top of the tummy between my rib cage. All in all, I am so thrilled with my surgery and so glad I no longer need to suffer the attacks I was having. I do feel achy and feel I have run a marathon at times but that's my own fault at pushing myself too much. I hope that my day by day diary has enough information to help anyone who is having or has just had surgery. If there are any questions anyone has I would be more than happy to answer. I am sorry the post is so long but the more detail the better. Please post a reply if there are any other symptoms you may have had that I haven't included. I can't wait to be back on my feet and back to normal health and although it seems ages away, it's nothing compared to the nightmare of having a not well gallbladder. I still feel very tired and can still only do very little but as for the pains they are easing more and more as each day goes on. Please remember that the recovery does take up to 6 weeks so even if you still don't feel right after 2 weeks you are still recovering from a major surgery. Please still only eat light meals as your body is adjusting to the gallbladder not being there. And although we can live a perfectly healthy life without one, it still done quite a lot for you. Don't suffer in silence. I wish anyone having the surgery a speedy recovery and lots of love and please make sure you rest. All the best.
Sonia
Xxxx
2 likes, 187 replies
carol02471 sonia1988
Posted
Hi Katherine, Lynda, Sonia,
Hope you are all having as peaceful evening as you can. So sorry to have read all your troubles & pains, it's so incredibly difficult for everyone trying to get better & having so many obstacles in your way.
Sphincter of Oddi is incredibly difficult to diagnose, but the pain & sickness seem to go hand in hand at the point of the seriously bad pain, also she just can't really eat at all, apart from cold ice cream, the cold soothes and it goes in easier it's also free from, non dairy. But even then the pain can start.
The bad episode goes from a dull ache to the most intense pain in less than 20 minutes with seriously bad vomiting & sometimes upset tummy. The vomiting is bile , green , yellow & also like a clear sticky slime it's awful & relentless, it doesn't stop until she is on a drip with 10mg morphine, Buscopan & paracetamol, 10 minutes after that it stops & about an hour later it's all eased up and she comes round ok.
When she is asleep which is rare, I can visibly see her tummy spasm & twitch & she whimpers in her sleep until it wakes her up.
I'm hoping the above will help all of you if you think you have SOD work out similar points hopefully you haven't as it's so difficult to get to the bottom of.
Level 3 means they won't cut the Oddi muscle & there are no signs of pancreatic issues at this time.
The consultant is doing the endoscopic injections on the 29th & we are praying this works as quite honestly there are not any other options left.
I seriously hope none of you have this, diet is a massive factor so very small meals, dairy free & very sensible eating practice will ease things but not cure he has said there is no magic pill for this sadly & a lot of support is going to be needed as it's not just physically difficult but is mentally as well.
We are trying everything to try and make things bearable for her but not a lot works sadly.
Keeping everything crossed for these injections & will let you all know.
Thank you to all of you & if you had messaged me privately my phone was blocked due to spam so Iv lost everything pre today so apologies there.
Wishing you only to be pain free as soon as possible,best wishes always xx
lynda20916 carol02471
Posted
Hi, Carol!
It's so good to hear from you! I so appreciate it that you took the time to let us know how your daughter is doing! You are going through so much! !
I hope and pray that these injections work and that she can finally get some relief! (((BIG HUGS)))
Star42 carol02471
Posted
carol02471 Star42
Posted
Hello Star
Thank you.
She was back in A&E last night but they got it under control with Iv paracetamol Buscopan & undansatron- not sure if that's spelt right.
It took a while but it worked thank goodness.
The consultant did say having her GB out was the right thing to do as we thought about what if she had not had the surgery but he said she would of just suffered with that as well.
This is every day so worse in that way and more intense.
Seriously hope you get better soon xxx
carol02471 lynda20916
Posted
Thank you I just hope a tiny bit of information might help someone.
Hope you are doing better today ?
Not easy any of this is it .
Thinking of you all xxx
lynda20916 carol02471
Posted
You are so welcome--and it isn't a tiny bit of information! It's good, solid information about a condition that only a few of us on this site have developed after surgery!
I am sorry to learn that she was back in A&E last night, but at least she got some relief!
Bless you for writing! How are you doing? As for me, I'm okay.
xxx
sonia1988 carol02471
Posted
Hello carol,
Just want to start by saying I'm so sorry that you and your daughter are now dealing with this. I do hope things can at least get a bit better for her and for you.
It must also be a relief, not for it to be what it is, but that there is a definite diagnosis so you know how to move forward with this. Thank you for letting us know and do hope you're looking afu t yourself as well as your daughter. I am thinking of you and your daughter and I do really hope that she gets the right help and medical support she needs.
Take care of yourself xx
sonia1988
Posted
Just a quick message for all you lovely ladies with children, Happy Mothers Day!
I hope you've all had a lovely chilled relaxing day and been spoilt loads.
Xx
lynda20916 sonia1988
Posted
carol02471 sonia1988
Posted
Hello ladies,
Hope you all had a good Mother's Day.
I have spent hours researching more on SOD and it seems like a mine field.
Reason for looking into it further than we all have is nothing seems to be long lasting or a solution. Not even the Botox which is why I started looking again, my daughter is worried if Wednesday doesn't work so I promised I will keep looking for other options, just in case.
She has had to take so much medication today to keep out of A&E that it's crazy but she is now asleep for the first time in days. I tell her about all of you as you know being in pain is a lonely place, she can't understand why you are all suffering with pain and she wishes you all well soon.
Fingers crossed by sharing information about all of this we will one day find solutions.
Thinking of you all, all of the time and promising to share all we find out.
Xxx
katherine42413 carol02471
Posted
Hi Carol
Thank her please and I hope the botox works on Wednesday. I don't know how long it takes to start working but I do hope for her that its really quick. Unfortunately the type 3 that she has the most ambiguous because even when they do trials which I've read many a document for this, nothing is clear cut. I keep on looking online and looking further than the front page of google but with some there's alot of medical jargon! Its a shame for her that she wasn't a type 2 as then they are more likely to cut the sphincter. I did read one document where the patient had botox for a few times as it gave her relief in the end they did decide to cut the sphincter.
I've got my appointment tomorrow so I'll see what I can find out and let you know.
I know my surgeon worked in the US as well as Australia so I'm hoping he picked up alot of information.
xx
lynda20916 carol02471
Posted
Hi Carol,
So good to hear from you. I think that both you and your daughter are very wise to wonder about the possibility that botox may not be the answer. It's heartbreaking to contemplate that it may not be, though.
I am glad that she slept and had a few peaceful moments. Though it might seem strange, you might want to also consider accupuncture, if you have not. Over the years, several of my acquaintances have had remarkable results with it--especially if they had chronic pain and even allergies.
However, I am praying that this will be the resolution that you both need so very much!
lynda20916 katherine42413
Posted
I hope your appointment goes well! I hope you are doing okay and get some answers tomorrow! xx
katherine42413
Posted
Hi Carol, Lynda and Sonia
Well I saw the surgeon, they were running really late but he came into the room and sat with me and was actually really nice. I told him that the pain hadn't stopped and had actually got worse as he knew it wasn't likely to get better after surgery. He said I had a problem with my cystic duct but because the sphincter of oddi is fairly close in me they couldn't definately say it was the cystic duct and not the sphincter causing the pain. Hence why they took out the gallbladder. He mentioned the ercp procedure and sphincterectomy but said they do have their risks with getting pancreatitis. He's going to refer me back to the physician as they are the ones that do the diagnosis and decide which procedures to follow. He doesn't know which route the physician will take as the procedure wouldn't be done by him as his speciality is gallbladder removal.
Alot of people on this site have been told that this condition is rare but he said to me its very common and it is something that you have forever.
He suggested that I go back to my gp and get referred to the pain clinic in the interim time as I'll get an appointment quicker than if he does it. So I need to do that this week. I've tried medication before but it didn't agree with me so I had to stop taking it. I took them for a couple of weeks and ended up worse than before.
He was very honest with me and I appreciate that more than anything and he treated me as a human!.
So I have no idea when I'll get an appointment to see the physician I do hope its soon. Its just a waiting game again.
So I'm no further forward at the moment but at least they recognise this condition rather than say it doesn't exist.
I'd already been on my hospital website to find out who does the ercp's as there's only a few. I think if they give me a choice I'll take it as I can't live like this forever.
Sorry I haven't got anything more enlightening that'll help I've just got to wait for the next appointment so I hope that when your daughter has her botox tomorrow that it will improve her condition.
thanks all xxx
lynda20916 katherine42413
Posted
Hi, Katherine!
Good to hear from you, and glad to know that you met with the surgeon. Also sorry to know that you've got to wait some more, but you've got some insight as to what needs to be done next.
In the meantime, please let us know how you're getting on!
lynda20916 carol02471
Posted
Please let us know how it goes on Thursday! xx
Star42 katherine42413
Posted
Did he say it was common after surgery or in general?
Hopefully you wont have to wait long, thinking of you xx
sonia1988 katherine42413
Posted
Hi Katherine,
Sorry I've not replied much over the last few days I've had so much going on.
I bet you're glad in a way that that appointment had finally come but at the same time you don't really get the definitive answers you need. And please don't apologise. Are you still in pain now? I really do hope you can get this sorted soon and be pain free it must be so frustrating for you. It goes from one extreme to another and never seems to end! I am so sorry to hear you are still suffering but please do take care and keep us updated with any any future appointments xx
sonia1988 carol02471
Posted
Hi carol, I hope things are ok with you and your daughter. I do hope she manages to get the help she needs. But also remember to look after yourself and don't take on too much! Still thinking of you both. I hope her appointment goes well please let us know how she gets on. It's so natural to be scared and worried but she has you there to support her so I'm sure she will be just fine. All the best my dear xx
katherine42413 lynda20916
Posted
Hi Lynda, Carol, Sonia and Star
I thought I would write this to all of you. I'm sorry that there wasn't anything more definitive as I was really hoping I could get some answers that would benefit us all but it'll have to wait now until I see the physician again.
Star - I was diagnosed with biliary dyskinesia which covers problems with the gallbladder and sphincter as I didn't have gallstones. Which is why the surgeon originally said to me that it wouldn't get rid of all the pain but obviously they didn't know which area was causing the most pain. There's not alot online about sphincter problems with the gallbladder in situ which is why they take out the gallbladder first to see where the pain is coming from but I also had a dilated cystic duct which was causing problems.
With the condition I've got its very common but I have read that it can happen after surgery with gallstones but this could be months or years later. Whether its because the bile is now going straight through and not being stored anymore so causing problems, I don't know.
Carol - the surgeon wanted me to have amitryptyline but I'm on other meds with react with it so I think I'll probably have to wait and see what either the physician or pain clinic have to suggest.
Yes I'm still in constant pain which gets worse as I eat and goes to my back and shoulder blade so I don't get any respite from it. Unfortunately at the moment I seem to have got tonsilitis in one tonsil which is causing a few problems as I fainted yesterday morning after vomiting! Luckily I was already on my knees so didn't fall very far but I was caught between the toilet and wall and hurt my neck and arm as I was all scrunched up.
You don't realise how low your immune system has got but I suppose its not surprising since its been months since this all started. Plus I'm having problems with putting on weight after surgery which doesn't help.
I'll keep you all updated with anything I read and when I hear from the physician.
Thanks for all your comments, it really does help. xx
katherine42413 sonia1988
Posted
Hi Sonia
How are you now? Are you feeling any better? and whats happening with your blood pressure?
I hope you're still resting and not overdoing things.
xx
sonia1988 katherine42413
Posted
Hi Katherine,
I am really feeling for you right now! This must be so horrible for you to still not have the answers you need. Ametrypteline is a very strong medication, that was given to my mum as a relaxant during her cancer battle. She hated taking it but was the only thing that would help with pain and to sleep. I can't even begin to imagine the pains and troubles you are going through right now. Yea y mentioned about not putting on weight are you still losing it as well? Nothing I or anyone can say that will make it or anything better but we are all here for support. And same goes to anyone else suffering at the moment.
Keep your chin up and stay positive and take care of yourself
Xx
sonia1988 katherine42413
Posted
I must admit, I'm not too good right now. Have been in and out of sleep all day today. Time of the month again, and blood pressure is low which I am again collapsing with. The last few days I've had a pain in my hand where I had the canulla from surgery yesterday it came up in a bruise and now have a lump on my vein. Am keeping an eye on it and today seems ever so slightly bigger than yesterday. It's very tender and sore but have done some research and as far as I'm aware this can happen but it's still a little worrying. It's moved about 2 millimetres but it's not dramatic so unsure what to do right now! I'm still losing weight too, have lost 24lb in total since the op. Almost 2 stone. I am working tomorrow and then off until next Wednesday evening so I'm going to rest as much as I can and maybe take a few days away at our caravan. I've had a few meetings with people regarding my younger sister who at the moment is being a pain so could do without that!
I'm feeling absolutely drained at the minute but don't really help myself much. I feel silly for moaning about myself when there are all over oh guys suffering more if not worse!
Xx
lynda20916 sonia1988
Posted
Hi Sonia,
Sorry to learn that you're feeling so poorly! It's so difficult to deal with life when your health can't get sorted! It's too bad that your younger sister seems to have no compassion for you!
Please rest up as much as you can! Know that even when we're not exchanging messages that I'm concerned for you and hoping that things will get sorted. xx
katherine42413 sonia1988
Posted
Hi Sonia, never feeling silly for what you're going through, to be honest from my perspective it stops me dwelling on my own problems to listen to others and talking about things, so never stop what you're doing, its fine.
Ahh time of the month isn't good it just brings everything back a bit doesn't it which is why your blood pressure is low isn't it.
Yes I remember before I had that with a canulla but if it doesn't seem to reduce then at least phone up your surgery and speak to a doctor it maybe that a nurse can deal with it anyway if you go in. If you're worried please call them more for a piece of mind that it is normal rather than leave it and feel more stressed because you're not sure.
I've said to my husband I'll go in for a couple of hours tomorrow and build up my hours as my strength increases. so you must be careful and don't overdo it tomorrow night but yes rest lots and if you have a chance to go away then take it sometimes a change in surroundings makes you feel better.
Oh dear I'm sorry you're still having problems with your sister, I do hope that you can make her see sense. I don't know the problems but this is additional stress that you can do without but I know you've said before there's no one else that can do it. so its all on your shoulders.
Now rest when you can and sleep if you need to and we'll speak again xx
lynda20916 katherine42413
Posted
Hi Katherine,
Thanks for letting us know. I'm so sorry to learn that you fainted and hurt yourself! You are going through so much!
It's too bad that you have to go back to the beginning, so to speak. It seems that there is still very little that can be accomplished by medicine in some areas, when one reads about the advances that are being made in others.
Have they investigated whether you have a chronic infection? I am wondering if that could be one of the causes. When my daughter was younger, she would have massive infections of her ears, but her body wouldn't react by running a fever, so there was no way to know whether she was ill. Instead, her ear drums would spontaneously rupture and I would find fluid on her pillow in the morning. Just a thought.
Take care, and let us know how you get on! xx
katherine42413 lynda20916
Posted
Hi Lynda
I do think that I deal with pain very well and it takes alot to stop me in my tracks. With my problem with my tonsil I'm just monitoring it as they say it should go around day 4 before the doctors will even look at it over here. I do think that the white bits are reducing on it and I find I'm sleeping alot in the afternoon's at the moment which I know is my body's way of dealing with it. If it doesn't clear then I'll go to my gp so I'll see what happens on Monday as I'll need a course of penicillin as I've had trouble with my tonsils before.
I've been looking back on the web about SOD but even the trials don't seem to be conclusive. What does annoy me is when doctors are saying its rare or don't acknowledge that it even exists. When this area clearly needs more research and there's no specific medication for it. This is worse for those with type 3 but I don't know what category I come under hopefully I'll find out alot more when I see the physician.
I'll let you know when I hear something x
lynda20916 katherine42413
Posted
Hi Katherine,
It's good that you're monitoring your tonsils. I deal with pain all right--I just have a low tolerance for constant stuff, since my gallbladder surgery. Basically, I try to power through and get on with it.
Unfortunately, I think that there's no money or glory in researching diseases and/or disorders of the gallbladder and associated organs, so that area of medicine is very much neglected. It seems that every lab with sufficient funding is chasing cancer.
Please do keep in touch, let me know how your're doing and what happens!
sonia1988 katherine42413
Posted
Hiya, how are you doing today?
Sorry I couldn't find this message to reply. I was back to a&e early hours this morning having my head glued. I had collapsed quite badly, took a tumble down my whole flight of stairs and hit my head quite bad and chipped part of the collar bone. Here was me hoping suregeru would fix things but I don't think my blood pressure and collapsing has ever been this bad. I have strict orders to rest and told I could be in quite a bit of pain for a while with the collar bone!! Had some bloods taken which is again showing an inflammation in the body but they are unsure what or where. And literally have no goodness in me as anything I'm eating is still literally in then out!
I'm currently laying down wearing my sunglasses as my head is thumping. I got quite upset as the drs seemed to be insinuating my accident wasn't an accident. It's not the 1st time I've been to the hospital because of a fall and it just sickens me that it's not taken seriously. The fact that my bloods and BP is abnormal is enough to prove collapsing. It's just frustrating.
If you've gone into work for a while today I do hope you haven't done too much. Although you're still in pain it must feel nice to get out for a while and a change of scenery. I get so fed up not doing things. But yet always do too much when I do haha I can't win!
Hope you're well xx
katherine42413 sonia1988
Posted
Oh Sonia, I'm so sorry. How are you feeling now? You could really do without this. This is really serious so when are they going to take your low blood pressure seriously. I don't understand why they aren't referring you to a consultant to they can check whats going on and if your bloods aren't right they should be doing some more tests.
I thought I was having a bad night last night as I nearly had to go to a&e too but not like you. Needless to say I haven't been into work today so my husband isn't too happy, he's loosing his patience a bit but he doesn't understand. He has a bad back at the moment and I tried to explain if someone had told him that he had to live with the pain forever then he really wouldn't be dealing with it very well.
Are you loosing lots of weight and food isn't staying inside you, I know I'm having real trouble trying to put on weight and I'm eating. I'm hoping that my appointment will come soon.
I bet you're really sore, but you really do have to rest up now whether you want too or not.
xx
lynda20916 sonia1988
Posted
Oh, my gosh! I'm grateful that you weren't more seriously hurt! It could have been much worse!
I wish they would start taking your symptoms more seriously, including the diarrhea. It's unconscionable that they're just patching you up and scooting you out the door! They should be referring you to a gastroenterologist and a cardiologis rather than being suspicious of you! They sound so uncaring and so unprofessional.
I know that you have no choice but to rest now, but please do! xx
sonia1988 lynda20916
Posted
This is the problem I have had for so long. However, I have been to see the gp this morning, I had to go to the surgery at 8am just to guarantee an appointment. They have now referred me back to the cardiologist so hopefully have an appointment for that soon. As for the diarreah they keep telling me to persevere for a while longer and just basically say it's normal in some cases after having a cholecystectomy. It's just draining. Literally draining the life and sole out of me. I can't enjoy any food I normally love a dessert and a slice of cake maybe a little chocolate now and then, but haven't touched a single thing since the op even my partner finds that strange. I can't help thinking it's the diarreah also causing my blood pressure to drop. I am resting as much as I can and feeling quite sore and uncomfortable. I had only gotten up to go to the toilet the other night and ended up out cold at the bottom of my stairs! I'm trying so hard get myself stronger but I do just feel like I'm banging my head against a brick wall! I'm so tired of being unwell now. Ahh well onwards and upwards. Hope you are well Lynda xx
sonia1988 katherine42413
Posted
Hi Katherine,
I'm ok just really exhausted and tired. Not to mention sore.
I finally have had a referral done this morning so waiting on an appointment now. Until then I am to take things easy and do very little.
Argh I'm so sorry to hear that, I think it's so hard for anyone to understand until they have experienced what you are going through. I have had the same problem with my partner. It's kind of like they think we are dragging things out and making it sound or seem worse than it really is. I don't blame you for not going in though, if you're not up to it and in pain you won't be able to concentrate or do much anyway. It's not your fault so don't let it make you feel bad.
No ive not put on any weight at all, I'm still losing it. I was weighed again this morning since the last time I went to the gp and lost over half a stone since then. I have been given a load of supplements to take calcium, iron tablets, vitamin D as that's deficient at the minute too lol it's never ending.
I do hope you're not waiting too long for your appointment. Just take thing a easy and don't feel bad for not being able to do much. Rest and take care of yourself xx
katherine42413 sonia1988
Posted
Hi Sonia, I've read your comment to Lynda that they've now referred you to a cardiologist, thank god for that. I hope that it makes you feel a bit better that now something is happening.
Yes it will be the diarrhoea that makes your blood pressure to drop and it'll take any vital salts that you need as well which is why you need to keep your fluids up. Perhaps you should drink stuff that contain extra vitamins and minerals too.
Have you not tried any chocolate to see what happens? Luckily I'm ok with choccy as long as I don't try and eat the whole lot
then I just feel ill.
Remember if you get up from sitting down or lying down to take it really slow so tthat your body can catch up. Then hopefully it won't put you on the deck! Thats what happened to me when I passed out, getting up too quickly from lying down
Well I'm going to go into work in a bit just for a couple of hours, apparently I've got an answerphone full of messages, great
Unfortunately as you know when your self employed you have to do certain things so that it carries on.
Thanks for your kind words, sometimes it just makes you feel really low doesn't it, as the end seems so far away.
How's your head and collar bone? Are you still very sore?
I'm hoping you're resting but I know it must be a nightmare like it is with me. take care xx
lynda20916 sonia1988
Posted
Hi Sonia,
Please ask the doctor to give you a prescription for questran! Questran will absorb most of the bile that your liver is producing and causing the diarrhea. It's the only reason that my life is normal. I've been taking it since 2009 with no ill effects. xx
sonia1988 katherine42413
Posted
Hello Katherine,
I'm so thankful for the referral, this has been an ongoing issue for me for so many years. Along with Regilar palpitations my heart also stops which is absolutely fine apparently. This was only noticed on a reveal device I had implanted in my chest to monitor the heart. It was established that when I stand my blood vessels open too wide causing blood to go down if you like, instead of pumping round the body. I have exercises to do where I sit with my head touching my knees. That's slightly uncomfortable at the minute with the collar bone which yes is stoll very painful at the moment. I am taking pain killers. But in all honesty it's not doing a great deal. I have increased my salt intake and been drinking lots of water. I managed to last an hour this evening having something to eat without needing to rush to the loo. An hour has been the longest haha how crazy is that.
Aww how did you get on at work? You didn't over do things did you? It really is hard being self employed. Unfortunately you can't just get someone else to do your jobs for a short while. It's either that or you don't get paid. Being ill really sucks. How are you today?
We decided to drive to our caravan today so as soon as my son finished school we drove straight up. I have been on my feet quite a bit unpacking as the site has only just reopened from the cold season so that was draining but am now going to have a few days rest and tomorrow I am not stepping foot out of my pyjamas haha!!
I haven't tried chocolate no. To be fair, I've not even fancied anything sweet. It really is so strange how I've gone from eating something sweet almost everyday to nothing at all. I've cut out all dairy products, as that really doesn't agree with me anymore. I now have coffee whitener in my coffee instead, can't eat cheese butter or anything dairy which is a pain as I also like a nice cold glass of milk occasionally. I'm not so fussed but we always have milk cold to drink if not anything else but it just doesn't do me any favours.
Aww sorry I'm waffling on a bit now haha I do hope work was ok and not too much for you
Take care my lovely xx
sonia1988 lynda20916
Posted
Hello Lynda,
I completely forgot to mention that to the dr. Being the weekend now I will give them a call on Monday and request that medication. Honestly I think it's been almost 2 weeks on loperamide and there is absolutely no change at all! I don't think I've ever been so slim. Even my partner says it's actually starting to make me look ill. I think if I can get my blood pressure to a reasonable level it will make stresses feel a little better but everyday has now become such a chore it makes you want to just give up and do nothing. The hard part is I can't do much with my son at the moment as I'm needing to stay close to a toilet! Especially now they have half term. But will most definitely call the drs again and request that medicine. I can't go on much longer like this it's physically and emotionally draining and almost 6 weeks on there is no improvement whatsoever. Thank you Lynda I do hope you're well also xx
Star42 sonia1988
Posted
katherine42413 sonia1988
Posted
Hi Sonia, How can your heart stopping be normal! I hope you don't have to wait too long to get that appointment.
Work wasn't too bad and I was there longer than expected as my husband had to go out to I had to keep an eye on everything in the workshop. I was very tired when I got home though and I've still got loads to catch up on as well as doing the normal stuff, its not easy is it. Luckily we do have staff so its not just my husband and myself but they don't run the business some things just get left when I'm not there as no-one else does my job.
Oh I'm glad that you managed to get away, just take care and rest up and don't overdo things. I know what you're like don't forget!!
I just said to Carmella that I mad a chocolate brownie traybake last night, and I did have a little and it didn't give me anymore pain than I'm normally in but I haven't iced it yet! I did go off chocolate when I came out of hospital and sometimes I don't fancy it but when I do eat it I'm very good at not over doing it cos it can make me feel sick if I eat too much. I don't really do dairy except milk in tea and coffee. I've had a sprinkling of cheese on a jacket potato which was ok but when I put more on than usual I really did feel it.
I'm about the same as usual, I always wake with pain in my right side so I'm just going to potter today and I might sow my tomato seeds as alot of my others are starting to sprout.
I have a holiday let too which I've got to clean for next weekend so I might go and do a bit tomorow and then some more during the week.
Now I'll leave you alone to rest up and enjoy your break away from everything. Take care, rest lots and don't overdo it xxx
lynda20916 sonia1988
Posted
Hi Sonia,
I think the medication will help you and your digestion so you can get some nourishment....if you would like some tips on how to use it (assuming you get the prescription) just let me know.
Your GP might not know about the medication, but a gastroenterologist definitely would!
As for me, I'm doing fine, thanks for asking my dear! xx
sonia1988 katherine42413
Posted
Hi Katherine,
How are you doing? Sorry I've not been on much my phone has been playing up! Finally got it sorted now. I am back from my break away although after having not been there for so many months needed a good tidying up and sorting things back out. All done now though.
I'm feeling so much better at the moment. I didn't rest like I wanted to but I think the change of scenery was a help. We are back until the weekend and spending Easter away and then hopefully things will finally be much better for work.
The only thing that isn't quite sorted yet is the eating and needing the toilet after everything I eat. I have lasted this long so another week won't hurt. I will be booking an appointment with the gp to discuss some different medication. I've now lost close to 2 stone. The collapsing has eased a lot but blood pressure isn't great still. Still waiting on the appointment for that.
How are you and your pains now? I see you said you went into work that day a while ago, have you been back at all? I do hope you're well and not suffering as much.
Xx
katherine42413 sonia1988
Posted
Hi Sonia
I'm glad you had a good time being away for a bit even if you didn't relax as much as you should've done! Oh thats good that you're taking a bit more time away until you start work again.
Wow 2 stone is alot, are you still loosing weight because food is going straight through you? Its good that you're not collapsing so much.
Yes I know the feeling of still waiting for an appointment, I'm still waiting for an appointment with the consultant and my gp has sent a referral to the pain clinic too, so I'm waiting for that also.
I have managed to go into work but only for a couple of hours over lunchtime to deal with a few important bits and pieces. I did manage to deal with my holiday let, even though I did hurt afterwards, I got changeover on Saturday so I'm hoping they'll leave it fairly clean then its alot easier.
Unfortunately I'm still in alot of pain and it always seems to be alot in my back and shoulder blades and gets worse as the day progresses. food is staying down but I still can't eat much.
We're closed from Friday so I've got a few days off just changeover on Saturday so I can rest for a while without stressing about work!
Will you try to see your gp this week?
Take care xxx