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Ok. Around 2009 at age 43, I was prescribed Finasteride for BPH. I was on it approximately 9 months and saw no improvement so I stopped. Prior to that, I had a healthy sex drive. Maybe too healthy! Shortly after, I experienced a gradual loss of libido, sensation, insomnia, and ridiculous anxiety. All symptoms are still ongoing today. Obviously I'm not sure if Post Finasteride Syndrome caused my problems. I'm not the lawsuit type and I never heard of it until recently. I also had a stressful job which I recently retired from. I know stress can hit you in a lot of ways, but I find it odd that I had no anxiety or sexual issues for the first 20 years in that career field. The symptoms only began after the Finasteride was prescribed. Maybe it's a coincidence. I don't know. I also have High Blood pressure which is well controlled with Lisinopril. (Stress test looked good as did ultrasound doppler test I had done.) That (HTN/Lisinopril) was also prescribed around the same time as the Finasteride was. I'm not blaming Finasteride on my HTN at all. In fact, I was wondering if it might be the Lisinopril that was causing some of these issues. Any thoughts on that would be highly appreciated too. When I brought this (PFS) up to my urologist six months ago, he basically said I was crazy and not to read about medical disorders on the internet. I saw a second and third urologist and they said the same thing and insisted that Finasteride causes no sexual side effects at all. When I showed the last uro the Finasteride info that came with my prescription (He tried to prescribe it again!) and the first side effect listed was "Long term sexual dysfunction even after the medication is discontinued", he got angry and said "Well in 22 years I've never seen a problem with it!" The second side effect was anxiety. In fact, I had almost all of the various side effects listed. Around this same time period in 2009-2010, I started Ambien and occasionally Xanax for the anxiety and relentless insomnia. It was killing me. This was after the Finasteride ordeal. I know that these medications can also cause sexual dysfunction and I've experimented with stopping both for several months at a time. No improvement in anything. Maybe it takes longer, but I simply can't sleep more than an hour at a time without one or the other. When I read about PFS being a real thing, I tried to get my medical files from 2009/2010 but the urologists and my general physician purged my files. My pharmacy also purged my files and only has records from the last 5 years so I can't prove this timeline. I saw an endocrinologist recently and he never heard of Post Finasteride Syndrome either. He at least seemed open to the possibility, but had no idea what to do or test for. He did run a bunch of routine tests and I'll be seeing him next week for the results. Now that I'm retired, (and in a new relationship) I'm starting to realize how devastating this all is. Until recently, I guess I just didn't have time to think very much about it. Anyway, sorry this was so long. I'm starting to lose hope and I don't like being that way. So, is there any tests that can be done to test for PFS? Does anyone have a link to an article that explains PFS and possible tests for diagnosis that is more or less a Cliff Notes version? Everything I've found goes on for pages and pages and I can't realistically expect my endocrinologist or any other doctor to read something that long when they're skeptical to begin with. My mind is blown that no doctor I've talked to is the least bit aware of this. Equally shocking is that none of them have heard of Rezum, prostatic artery ebolisation, or anything less radical or more cutting edge than TURP or Green Light Laser for BPH. If I ever do get my libido back, I don't want RE. A recent cystoscopy showed my median lobe is pretty enlarged. I've read that Rezum is more suitable in that case, but have also read that some radiologists have had great success with PAE in cases with enlarged median lobe by going through the radial artery. This is all so exhausting and overwhelming. If anyone has any input at all or knows of any doctors, radiologists, endos or anyone else that could possibly be of help in the state of California, I'd really appreciate it. I'm at the point where I'm considering paying out of pocket for better medical care if I have to. Thanks for your time.
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