Post GreenLight Laser Surgery Recovery
Posted , 59 users are following.
I had GL surgery four days ago and would appreciate feedback regarding the recovery process from those that have also undergone this procedure. I currently void every 30 to 60 minutes at night and every 30 to 60 minutes during the day. My flow is a stream for a few seconds then dribbles for maybe 30 seconds. Is this pretty typical? After the surgery I was drinking 1 1/2 liters of water per day but I may reduce this because I am not convinced my bladder is emptying fully. What do you think about this? When I void, it really burns at first and often I will get bladder spasms as well. Do you think the pain is radiated pain from where the prostate was vaporized? Do you think I will see improvement with these symptoms on a daily basis or weekly basis over the next month or so?
3 likes, 165 replies
moyboy jim0601
Posted
I had my GL 11 days ago now and I'm in agony. I have no flow to speak of, just a bit then drips. I think I have an infection and been on 2 lots of tablets with no success so far plus I take Neurofen for pain as well and the burning pain whilst trying to urinate especially at the Meatus is unbearable. I'm getting up every half an hour to an hour at night to pee as I cannot stop it and it takes me 3 little lots to get back to bed. I've had little sleep in 4 days and feel like crap currently. I've been sent to emergency twice no and sat there for 8 hours each time only to be given Panadol on the first one and told its normal on the second visit.I must admit I expected better than this and at my wits end now so off tpo see the GP again.
Would a catheter inserted help me at all whilst the infection heals so I could at least get some sleep plus stop driving my wife crazy with the frequent calls all night long. I'm getting loathe to drink anything because of the pain. Any ideas?
bob120 moyboy
Posted
Ask your doctor to put in a foley catheter. I have worn them for a couple of weeks with no problem. If you have a UTI you need an antibiotic. The catheter will let you sleep (connect the 2 liter bag for night use, the 500ml or 1 liter bag for day use, strapped to your leg). You will still feel pain due to bladder spasms, but you won't have to get out of bed at night. If you are passing a lot of clots, you may need a suction device (looks like a large plastic syringe that you can connect to the foley output port and either suck the clots through the cath or push them back into the bladder to clear the cath tube.)
moyboy jim0601
Posted
I'm now into the 4-5th week after GL. On week 2 I got a kidney infection which reduced my function from 80 to 50 % in a week so went in overnight and got dosed to the eyeballs with anitbiotics and this seemed to cure it but left me with bowel problems. At the stage now where the flow is minimal and the end still burns like crazy plus also up every hour like clockwork. Saw the surgeon this week and now back in on Monday for a camera to see what is going on.
I'm totally fed up with lack of sleep and no result that I can see and have gone from being fairly healthy before with just a slow flow to a total wreck.. I honestly wish I had never had it done now.
clifford99231 jim0601
Edited
I'm happy to say that I am one of the successful recipients of GL surgery.
I went home the same day and out of an abundance of caution, I removed my catheter after 2 days.
I had a little blood for about a week or so and did not experience any pain, I had to wear some pads for about 2 weeks but I don't even use those anymore. Very good stream, I have good control during the day but have to get up 2 to 3 time a night. That doesn't bother me and I can live with it. The doctor says that may improve with time. I like that.
The only issue I had was that I got an infection at one point and had a fever that apparently caused a couple of blood clots (I had 3 bladder stones removed at the same time. After a couple days of an antibiotic that all went away and I'm doing fine.
I actually feel well enough that it seems like I could be more active that I am. However, I am remaining careful, not too active, cautious about lifting, one small cup of coffee a day, drink lots of water etc.
I have to say that, at least at this point, I am very satisfied with my procedure and hope I stay that way..
david04187 clifford99231
Posted
Hi Clifford-
Glad to hear that you are satisfied with your GL results.
I had about the same results as you. It's a few months but I recovered after the surgery pretty fast and was back to gym -lifting within weeks.
I am also a runner -with precaution even less time. I think being in shape helped with the recovery process. I am able to control the day urges. I often get urges but try to ignore them & they pass. (average every 3 hours, sometimes even up to 5 hours). I was hoping that this behavior would carry over into night. but as you said- the nights are a different story. It's hard to fight urges when you are sleeping). I'm up atleast 3x but I'd rather live with that than every hour (although I do have a bad night on occasion).
I was very dissapointed with my Dr. that he didn't tell me that I would have rentrograde ejaculation. (he said it might come back a little). My orgasms aren't as intense but satisfying.
I would love to see more sucess stories with GL surgery posted.
gjohnson david04187
Posted
I'm almost at week 8 from my Greenlight TURP and things are finally looking good for me. I had the night hourly RUNNING to the toilet - still leave the light on all night. I saw some small improvement at week 6 but now I've had 2 nights when I only got up once. (I keep a record).
I take a Vesicare tablet about 7 pm, go to bed at midnight. The Vesicare is supposed to reduce the urgency but can only take it once a day so still running during the day but not so often.
The pain is just about nil now thank goodness. If only that could have been controlled during the 1st 6 weeks! Doc recommended Ural (the fizzy stuff) - didn't touch it.
My prostate had prolapsed into the bladder (his description) and Doc said it would take 3 months to heal.
So I now feel I'm getting my life back at last - a big relief. I'm 72 and reasonably fit - walk a lot. Live in Australia.
Last comment - I'm not looking forward to a repeat!!! (my father has 3).
I've been very grateful & impressed by all the kindnesses shown on these sites and wish you all well.
PS - I laugh about it - but if I even walk near the coffee machine, or the kitchen sink, etc I immediately have to RUN!!!
r21958 jim0601
Edited
I had the surgery 15 days ago.
The surgeon's pre-surgery description of the recovery period made it sound a lot easier than it was.
He described the catheter as "a nuisance". I found it very uncomfortable.
Some posts on-line indicate immediate improvement in flow. That wasn't true for me. It took more than a week to see any improvement. Immediately after the surgery it was worse than it had been.
The on-line info suggested that some people don't require a catheter, or have it for 24 hours. My doctor required it for two days.
He predicted pain would be minimal. In fact, it was pretty awful for about 13 days.
On-line info suggests returning to normal activities in 2 or 3 days. In my case I didn't feel up to normal activities for nearly 2 weeks. Part of that may have been because of interference with sleep (longer story here), but I'm not sure.
So, overall, my experience thus far is that the recovery period was much worse than predicted. I'm hopeful that I'll get the promised benefit.
bob120 r21958
Posted
I think the size of the prostate might be a factor. The larger the prostate and the more tissue removed, I think the greater the pain and the longer the recuperation. I had 2 GL's and both were 6 to 8 weeks of bleeding and eye popping pain at the end of urination. Terrible urgency and frequency for a couple of weeks, and a cath for 5 days, each time. Neither GL worked as hoped, finally had a turp about a year and a half ago. It was an easier and less painful recovery, but more bleeding for a longer time.
glenn77 r21958
Posted
r21958
Posted
r21958 here (I ought to figure out how to have an actual name).
One month anniversary today. As of Sunday and Monday, episodes of lightheadedness and fatigue. Continued bleeding, and not just a few drops.
Surgeon didn't respond to an email about whether or not this could be anemia induced by bleeding.
My primary care doc spoke to me by phone. The first thing he suggested was stopping the flomax (which the surgeon told me to continue post surgery). Can't sleep very well, but lightheadedness has been gone.
Bleeding, for the first time in three weeks (not much bleeding during the first week) seems to have diminished a bit. Nobody would mistake it for normal urine, but it's better.
Pain continues, but is tolerable. No more gasping.
Flow is improved.
Urgency can still be extreme, but I can go a couple of hours at times.
Today I returned to work. Doc predicted return to full activity as of this week, but also mentioned to watch the bleeding. Since I'm still bleeding, I decided to take it pretty easy.
What troubles me about my experience is that, after the surgery, the surgeon acted like it was well within normal limits-- and that's probably true. But it sure isn't anything like he predicted, or the websites predict.
My guess is that my kind of experience is common enough that they should be telling people about it and not acting like the aftermath of the surgery is going to be as mild as they've been saying.
By the way, the doc said, last week, that it would be three months to full recovery.
r21958
Posted
I forgot to mention -- blood count was normal. Despite what seems like a lot of blood down the drain, red blood cell count is normal.
I read that it's possible to need a transfusion (maybe more after TURP), but, apparently, that's not true in my case.
bob120 r21958
Posted
r21958
Posted
In case this is helpful to anyone, here's another update.
As noted earlier, I had way more pain and bleeding than I expected based on my surgeon's comments. And he didn't say anything about how much to drink or stool softeners (apparently, straining isn't so good). He did tell me to resume tamsulosin right after the surgery.
At day 24 and 25, with no reduction in bleeding the light-headedness really was bothersome. I don't know if it was actually worse. My primary care doctor pointed out that it is a known side-effect of Tamsulosin. He recommend that I stop the Tamsulosin and see if it improved.
So, I stopped the Tamsulosin on a Monday, meaning Sunday was my last dose. The lightheadedness stopped immediately. By Wednesday, there was a dramatic reduction in bleeding. I chanced sexual activity for the first time on my month-anniversary of the surgery. A lot of blood in the next urination, but, very little in subsequent urinations. I restarted exercising (2 mile walks) with no ill effects. I returned to work that Wednesday.
On Thursday night I had the best night of sleeping in at least a decade. Six hours without waking up to pee. I'd been averaging 75 minutes. Friday night, also very good. For the first time since the surgery it seems as if the surgery might actually improve my life.
But there's a question -- was the Tamsulosin helping or hurting my recovery in the first 25 days or so?
If I find anything out, I'll post it. But, if the improvement wasn't due to stopping the Tamsulosin, it was quite the coincidence.
r21958
Posted
Again, another update, in case this is helpful to anyone.
I'm now two days short of 6 weeks.
For the last 6 days or so, I had no bleeding, so I started exercising (a few days ago) and resumed sexual activity yesterday.
I was feeling pretty good. Still hurts to urinate, but nowhere as bad as before.
Today, though, I suspect because of the sex, the stream was very red. Lot of blood.
By coincidence, I had my followup appointment for a uroflow test. Go into a machine, which apparently tracks flow and then an ultrasound to see if you empty.
My doctor said the results were great. He said 42% above normal flow. Emptied well. He said the bleeding will probably be intermittent for a few more weeks and I am probably never going to need another surgery.
He said to stop the Tamsulosin (I already had) saying "you don't need it".
Next appointment is in 3 months for a repeat of the same test. He said that if I'm still having symptoms which cause me to get up too often at night, he could prescribe oxybutynin or myrbetriq (sp?) for overactive bladder.
And, that's it.
In his view, apparently, the surgery is a success and the symptoms I've been having aren't worrisome (to him, anyway).
Bottom line, and this will probably be my last post on it, unless something unexpected happens -- the surgery seems to be helping, but the recovery period was a lot less pleasant than I was led to believe. I'd be extremely reluctant to do this again. The doctor could have helped me by providing more information on the possible range of post surgical symptoms.
henselt r21958
Posted
Good to hear things are improving! While my visible bleeding (as opposed to microscopic) was of a much shorter duration, everyone is different. You got the spelling right on both drugs. (Oxybutinin = Ditropan XL). I know I had overactive bladder for a long time before the surgery and it continued afterwards, so I am on both drugs (M. in the morning; D. at bedtime) I'm also have a treatment calle PTNS (basically acupuncture with electrical stimulation) which helps also (at least some people) with the OB.
I know the recovery can be a somewhat unpleasant, but if you had a really enlarged prostate causing you disruption to your sleep and life, then maybe you would choose PVP again. In my case, while things are certainly not perfect, there's a world of difference and I generally do not get up during the night to pee any longer .. though daytimes are not always great. :-)
r21958
Edited
Another update. Next week is my 6 month anniversary.
I had another uroflow test a few weeks ago with strong flow.
As I had mentioned at the time, the recovery was a lot slower and a lot less pleasant than predicted.
But, with benefit of hindsight now nearly 6 months out, the doctor's predictions about the eventual result were exactly right.
He predicted that I'd be happy with the surgery. I am.
He predicted I'd still be up 2-3 times per night. That's about right, but I also have sleep apnea which may have something to do with it.
The burning sensation is now gone, but that took about 5 months of gradual improvements.
Orgasms are good. He predicted zero discharge, but there's a little bit.
Urgency is probably about normal. I no longer have to rush. I can now sometimes wake up and not need to urinate. That hadn't happened for years.
So, all in all, it was worth the discomfort. As I was going through it, I wasn't so sure, but it had gotten to the point where I had to do something because I was sleeping so poorly.
Best of luck to others and I hope my report has been helpful to somebody.
Will03030 r21958
Posted
I remember reading somewhere recently that a couple of drops of blood can turn your urine pink while a teaspoon full can turn it cherry red.
Will03030 r21958
Posted
I remember reading somewhere recently that a couple of drops of blood can turn your urine pink while a teaspoon full can turn it cherry red.