Post hysterectomy and still in pain.

Posted , 5 users are following.

I had my hysterectomy in April 2016 thinking that it would be the end to my pain.

Nope every two weeks for about 7-10 days I'm in constant pain like I'm having a period but I'm not.

Pain is excruciating.

Been to GP and has told me I have uterine nerve pain and that this will be the pain that I will have.

Has anyone experienced the same.

0 likes, 9 replies

9 Replies

  • Posted

    Which way was uterus removed? I avoided having mine out just to end all the problems, but had so much advice that you just end up with a whole raft of new problems that can be worse than why you were opting for removal. I sucked it up & counted down till 50 when menopause relieved period problems. My Gynae at the time was Head Of The Medical Council & he convinced me to avoid hysterectomy when at all possible. That doesn't solve your issue but also says what you've now got is quite possibly your future.

    • Posted

      I'm 46 and trying to decide between a Myomectomy or a Partial Hysterectomy.  I've been agonizing over this for weeks.  I think your comment just helped me make my decision (Myomectomy).  Thanks a million!

    • Posted

      Yay Robyn - So glad to hear you hung in there and didn't undergo this destructive surgery! My gyn used cancer scare tactics to get me into the operating room. I had trusted this guy for 20 years so I silenced my inner voice that told me something wasn't right. How I regret that every day!!

      Myomectomy is removal of the fibroids only leaving the uterus in place.

    • Posted

      Oh definitely - go with a myomectomy. Hysterectomy is the surgery that "keeps on giving" (problem after problem).

      Make sure your surgical consent form does NOT allow them to switch to hysterectomy. I know some women who were told they would have a myomectomy only to come out of surgery without their uterus (and in some cases I think their ovaries were removed too).

      Best of luck to you!

    • Posted

      Yes yes yes. Periods, the pain, bad bleeding etc. fades into insignificance once menopause sees to all that. My Gynae 10yrs ago was seeing SO many worse problems post hysterectomy so was great at saying hang fire. I even had a Mirena for 5yrs to get me closer to menopause & tolerated periods every 2wks with that! Trouble with hysterectomy is the multiple complications it often causes are then "till the day I die" stuff AND you still have to go through menopause anyway. Whereas periods WILL end. My last one was when I was 50. I personally think vaginal hysterectomy maybe causes more ongoing problems from the trauma of it all being dragged down and out below. It might be better in the initial post-op period, but down the track is worse. At least with a large lower abdo opening, the surgeon can see exactly what is where & carefully dissect uterus away. We NEED our vag not to be traumatized badly, so it stays in good working order!!!! In lots of cases. I seem to think our Mothers who had the carefully dissected out abdo hysterectomies didn't get all the post-op probs current girls do. I'm 58. A thesis study needs undertaking on this!!! We need to retain our girl parts for our whole lives unless there is massive reason only to take them away. Get the fibroids out first as that could mean you can retain the all important other parts. Then if still no good, then maybe hysterectomy later - much later once convinced its impossible to retain uterus.

    • Posted

      A Myomectomy is they just take the fibroids out and leave the uterus behind.  It's a more complicated surgery than a hysterectomy, but it does leave you with a uterus.  Most women who still want to have a baby, opt for this.   Doctor's often steer woman away from this because, a hysterectomy is easier for them to perform.  Basically they want to do wants more convenient and less time consuming for them.   It can be a bloody procedure, so you'll have to take Lupron injections (puts you in chemical menopause) for 3 months beforehand to shrink your fibroids and lessen the bleeding for the procedure.  I've had two myomectomies in the past (5, and 9 years apart).  So now at 46, I have to make the choice between another myomectomy or a hysterectomy.  I was given the option of embolization (UFE), however that only shrinks the fibroids like 40 -60 percent, and I heard you have to deal with months of cramping and foul smelling vaginal discharge (dead fibroid tissue expelling).  That's not acceptable to me.   I'd rather either have the fibroids cut out or just get the hysterectomy.  The only problem with a myomectomy is they can grow back, my last myomectomy was 9 years ago, so I figure at 46, I'll hit menopause before they ever grow back large enough to be a problem. At least with the myomectomy I never had any side effects.   My gyno is trying to hard sell me on a partial hysterectomy (ovaries and cervics left in), saying all the women on the internet complaining about side effects (hormone issues,back pain, bladder problems, etc.) all had total hysterectomies (ovaries and cervics removed), not a partial hysterectomy.   But I'm not convinced, I've read some women with partial hysterectomies have problems too.  He talks like there will be no side effects to this, and my life will be a bed of roses.   But I'm not convinced, after reading some of these posts from others who've had partial hysterectomies!  Plus I read even with a partial hysterecomy your ability to orgasm and libido may be effected.  The decision is agonizing.  I feel like I'm damned if I do it and damned if don't.        

  • Posted

    What a crappy situation! It seems odd that it would be nerve pain since it occurs every two weeks. Is there any sort of activity that triggers it?

    Unfortunately, many of us who've had hysterectomies have a whole new set of problems, none of which doctors forewarned us about.

    I hope you can figure out what's causing the pain and get some relief!

  • Posted

    hi all.

    Thank you all for your comments.

    To be honest I was never explained by my surgeon the post surgery problems. There is nothing in specific that triggers the pain. Today is a really bad day.

    I really wish I never had the surgery. I have been left with chronic back pain of which I need surgery for that in October.So coupled with the pain in my tummy I have back pain too.

    I have been told that this pain will never go.

    The whole idea of having it done in the first place was to end my pain and come off my pain meds.

    I'm now still on my pain meds.

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