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Post infection syndrome. Uncertain.

Posted , 3 users are following.

Nessajay
Nessajay

Hello,

A few months back I got diherea that lasted months, I still suffer from it a bit but at least it's not up to 10 plus times a day. My doctor prescribed me antibiotics after doing bloods for the liver, kidneys, full blood count, celiacs, stool samples for crohns and infection, and inflammatory issues. But all came back normal.

I'm still feeling off and have a temperature of over 37 continuously. Still some belly upsets. Head aches and sinus pain, sometimes tingling in the scalp. My doctor thinks it's post infection syndrome. I've asked for my cortisol to be checked, and pancreas, as well as an abdominal ultrasound as I'm concerned. But it's been going on for so long now I'm not sure what to think.

I'm just exhausted and emotional now, and really would like the temperature to go.

For years I've been tired napping loads and getting to break down point easily. I've always just had to push through it, but now a light Pilates class gives me a woozy feeling and head pain =/.

0 likes, 6 replies

6 Replies

  • janet71271
    janet71271 Nessajay

    Posted

    Hi nessajay.

    Sorry to hear of your ongoing problems. Sounds like your very long bout of diarrhoea really wore you down. Not surprising you have been left with fatigue. Did you also lose weight during that time ? Are you managing to eat OK and drinking plenty of water?Dehydration really weakens the body. Have you had bloods to. Heck for any vitamin deficiencies ? Low vit D and vit B 12 can result in various symptoms including fatigue and

    Feeling really low.

    Good that everything came back normal. Some nasty conditions can be the cause of frequent on ongoing diarrhoea. And was good hints like crohns was eliminated.

    Don't be concerned about a temp of 37c . it is the 'normal' body temperature . being 98.6 f. 98.4 before it all went decimal ! But basically is the accepted normal . depends on your usual personal temperature before all this. Might be slightly up from that . But still not a pyrexia. 36.5 to 37 is fine .

    The best thing to do while you feel fatigued is to pace yourself and not push yourself too much. Your body has taken a real bash and needs to recover. Just do what you can when you feel you can but not too much exertion . what is likely happening is as your doctor suggests a post infection syndrome . hopefully a short term viral fatigue that will eventually resolve. There are many such syndromes under the umbrella and not all result in full blown chronic fatigue syndrome . and then again that also has varying levels .

    Try to aim to feel more calm as stress and anxiety really don't help the situation. Not easy I know. It is a worry not knowing exactly what is wrong with you and why you had the bowel problem for so long. Has the Dr considered irritable bowel syndrome ? Were you tested for norovirus?. That is really nasty and can really knock you for six for months. I had winter vomiting which is usually due to norovirus and it was the first of several infections which led to my chronic ME/CFS.

    Sorry for all the questions . just trying to help .others will be along too with their thoughts . hope you will start to feel better before too long . take care

    • Nessajay
      Nessajay janet71271

      Posted

      Hello,

      Thanks for the reply.

      I've lost 5kg in a month. But vitamins etc in blood tests all OK. I've kept up fluids, they recommend rehydration drinks and cola oddly. Before that I'd cut out caffeine earlier in the year and booze.

      We had norovirus about a month before it all started. My toddler started nursery in September and has bought a lot of viruses home. But I was only sick with it four about 48 hrs. They tested for loads of infections including travellers, food poisoning and more.

      I've never had IBS before and the doctor finds it odd I would now to such extent.

      Really struggling to watch TV, even microwave a meal right now. Normally love cooking. My oh is helping a lot. I feel starving a lot of the time though even though I'm eating normally

  • janet71271
    janet71271 Nessajay

    Posted

    Yes flat coke is good when you have gastrointestinal upsets. One children's hospital I worked in advocated flat coke. They even wrote it up on fluid and drug charts !

    IBS can manifest at any time . with sudden onset. I have had it for years but exacerbated by ME.

    • janet71271
      janet71271

      Posted

      Also when the bowel has been irritated with infection and inflammation , it can induce food intolerances. This may well now be a problem for you. Like dairy, gluten, wheat etc. Would be s good idea to look at the things you eat. Food intolerances can really have a big impact on fatigue

      Food intolerances and IBS are symptoms commonly endured in CfS/ME, but they are also stand alone conditions too.

    • janet71271
      janet71271

      Posted

      You could also try bacillus probiotics to help rejunvenate damaged gut flora. I know it does have good effects with some people.

      Unfortunately whatever you do you won't feel better overnight. As I said earlier, it takes time and patience for your body to heal. And hopefully regain some strength . a waiting game really.

      I do hope you eventually feel better. Take care x

  • Nessajay
    Nessajay

    Posted

    They're sending me for an emergency ultrasound next week. Terrified. But hopefully it'll lead to knowing more.

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