Post op misery.

Hi. I am so sorry you are suffering in this way. I am interested in the fact that you have surges in your blood pressure during flares. What led to your surgery? I wonder why your bowel health is so poor. I have problems with gut and intestinal issues with big hikes in bp but this is related to a form of vasculitis.

After long treatment I am in a kind of remission now and don't get the really bad symptoms any more which I am eternally grateful for.

Have you had thorough investigations on what might be causing the issue?

Does eating affect your pain?  Try a food diary to see if a particular food(s) is causing problems.

Unfortunately, there is nothing doctors can do about IBS other than give you antispasmodics and other painkillers.  Even low dose antidepressants are now given for pain.  IBS does not show on any scan because it is functional.  If you have had all the tests to rule out other causes, you will be diagnosed wirh IBS.

Medical procedures can leave problems behind such as neuralgia as well.  I was left with permanent neuropathy after a blood test.  However, at least my doctor admitted that the blood test was the cause and the culprits were swiftly moved on.

Hi ross sorry you have to go through all of these...but can you tell us why u hv to undergo bowel surgery? that way we can better understand that what's goin on

Yes if is a sad tale of being young and fit and moving a lot and always dealing with a fair amount of ancient drs.  I had a necrosis in the last bend of the lower part of my large intestine.   It took 20 years for it to be found.  Which was in icu as my kidneys failed and my heart was 199 had my white count was crazy.  My white count was always fluctuating for 20 years.  But they would at me and say. "Ur fit".  

Unfortunately it's not any specific food except the softer and less fibrous is better. Mostly I eat every second day. But rarely More  than once. I puke if I eat more.  I pooh nlood all the time.  And yes the high Bp is due to your body dealing with pain. My highest has been 200/140.  I am quite thankful to the fitness I had cause it has bought me 7 more years so far.    Thanks for listening out ther in radio land. Also for your dr who is straight up.     I knew it the whole time.  I just find Gi  drs have a certain petrified chip on their shoulder.  

Also what do people think of an ibs cookbook called sweet and s****y.  Short read.  Very few recipes. 

Dear ross, that is a lot to take in....but you are really brave. Well, can you tell us that kidney failure and high heart rate was due to what? I mean because necrosis you hd septic shock and it affected ur kidneys or it is altogether different symptoms of one disease? As bowel necrosis is a symptom of one cause...Well, I hv heard about post op paralytic ileus where for some times due to bowel manipulation your bowel stop moving for some times, but eventually it comes back to work again by itself also some electrolytes disturbance like less potassium in the body can also add into decrease in bowel motility....Do you have diarrhea or constipation? there is always a chance where you can develop bowel adhesion after surgery, which present as intestinal obstruction. Again this is just a guess, but I really hope you get back to your life soon. Do you have any particular diagnosis that why you had the bowel necrosis? eg, any embolus or thrombus which blocked the artery or due to obstuction or any autoimmune condition?

For c diff, you probably be knowing that it is mainly due to high antibiotics use, and it can come back if you don't take care of your gut's healthy flora...Mainly what I have seen is if u have this kind of problems then doctor gives you probiotics with antibiotics so u can still maintain the healthy gut bacteria with continuous antibiotic course.

Yes,  ur all over it.  The necrosis caused septic shock.  They don't know why the necrosis happened. But it was old.  Post op I continued to heave heavily and the staples popped out  got an infection then c diff from the antibiotics.    My stools are multiple a day. Very small and bloody.  That will go on for a while then I will break into diarrhea for a few days.   When I get constipated the pain increases in post op area and I present as being blocked but I am not. The white cell spikes. They fill me with I've drugs and fluids till I bounce back then it's back to the couch.  My walks make me crippled in the left lower quadrant and pulls my body into a contorted mess.   Thanks agin 

Dear Ross, You are a fighter...And i know it is difficult for you right now but you will come out of this suffering...Have faith and be patient...Well As we talk till now What I could conclude is initially you got bowel necrosis and septic shock due to that, after that u underwent bowel resection and your staples popped out with infection at surgery site and you were put on antibiotics and that gave you c diff infection... now your symptoms are altering diarrhea with blood and constipation, abdominal pain at surgery site, with that you get spike in ur blood pressure and heart rate and seizures. You go to the hospital during your flare ups and they find that your white blood cells count is high, but they couldn't find any obstruction...So they gave you some medicine and you felt better, But again everything repeat again...I could understand  that much, please tell me if I am wrong.

Well I am a med student suffering with IBS but I am yet to be a doctor, But what I could figure out is that your case is very special, And what I realize is that you are still suffering with your bowel thing...Can you tell us that how long is it now from your surgery? As as far as i know IBS does not give you blood in the stool, another thing I would want to know that did they check for your healing of your bowel with anything? did they do any imaging tests to rule out post op adhesions? Increase in white blood cell count suggest any infection, inflammatory process or many other things...Do you have fever with that? do you have bleeding or bruises from other sites?

Well as far as I know there must be a cause of your bowel necrosis, spike in bp and seizures...And if we know the cause then it becomes easier to treat, So did your medicine doctor checked your blood for every possibl causes? did you have you hd the sonography of your heart? well regarding your bowel problem I think they might want to check if your surgery site is ok or not? and I would suggest please bring back your healthy gut bacteria which died by eating probiotics, but ask your doctor for that, Gut bacteria helps you to make vitamin k which essential to make clotting factors, deficiency of vitamin k can give you bruises...well surgery unit cannot find out the exact cause of your necrosis but the medicine doctor can help you and also rheumatologist too if your physician can not...