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Post-op MVD surgery

Posted , 5 users are following.

hsisk24
hsisk24

Hi everyone! I posted on here several weeks ago about how I was going to have this surgery done. I had some of the kindest people lift me up with encouraging words and in prayer. I wanted to give an update. I didn't want y'all to think I forgot about all of you! I'm now 2 weeks post op and I feel better than ever. The nausea after the surgery was the worst part. I felt very sick for about the first week after the surgery. The recovery was harder than I expected it to be. I felt really terrible the first week. I was nauseous, very weak, my head hurt really bad and I slept a lot. But now that I've hit the 2 week mark I'm feeling normal again. I forgot what "normal" felt like. The next day after my surgery I brushed my teeth for the first time without it hurting in months. I almost cried. The pain was gone completely when I woke up from surgery. I wasn't expecting it to be gone automatically but it was. People have asked me if I would ever do this surgery again if need be. The answer is absolutely, 100% YES. This surgery has given me my life back. I'm weaning off my medication now so I'm hoping to be off all meds in 4-6 weeks. I'm actually going back to work come this Saturday. I'm excited about that! I just wanted to give everyone an update and let everyone know how my surgery was for me. I will be more than willing to answer any questions or concerns anyone has. Whether it be about MVD surgery or this horrible condition. I've had it for 6 years so I know a lot about it! If anyone does choose to have this surgery I recommend someone who has done a few hundred with at least an 80% success rate. Just because I'm feeling good again doesn't mean I have forgotten all of you. I know exactly what this condition does to a person and how life doesn't seem worth living at times. If you want me to pray for you comment below and I promise you I'll pray for you every single night.

Love to you all,

Hailey 

1 like, 8 replies

8 Replies

  • gill32586
    gill32586 hsisk24

    Posted

    Hi Hailey,

     You've really made my day. What a wonderful report and how kind of you to give such hope to those of us who are able to consider the option of surgery. I'm so very glad you can at last enjoy family life again. Truly prayers have been answered. You don't know how happy you've made me as I won't forget how terrified you were to take such a big step. I worried about you for days as if you were my own daughter. Well done, Darling

      Love to you and God Bless

               Gill

     

  • wavedancer
    wavedancer hsisk24

    Posted

    Hi Hailey,

    That's great news! I'm so pleased you're feeling so good and you've got your life back. It's incredible when you look back to when you were in so much pain and you wake up and its completely gone. I couldn't believe it either! I found I got tired more easily in the first 6 weeks probably because I was so eager to do everything I'd not done for the last 5 years. Now 6 months on there's no stopping me! Do keep in touch and let us know how you get on after you go back to work. I'm so happy for you. You've brought sunshine on a very dull and rainy day.

    Hugs

    Chris aka wavedancer

  • army183
    army183 hsisk24

    Posted

     Brilliant Hailey! 

    Great to hear your news and to have a really positive forum topic developing here, I am sure it will be read by many and give confidence to those considering MVD. 

    My life changed also, after I had MVD first week in March this year. I put a few comments on this site at the time. Like you my most appreciated outcome was cleaning my teeth properly again - my smile never looked so glittering! And I could start to enjoy meals out with friends instead of being the quiet misery sitting at the end of the table grimacing in pain with every mouthful. 

    It took me about 4 months to wean off Carbamazepine (tegretol) from a dose of about 1600mg daily. I'm still on 200mg per day as a "maintenance" dose and hope to be off it completely this month. 

    Welcome to getting your life back!  The future is rosy for you.......

    Cheers

    Big D

  • ilmas_96291
    ilmas_96291 hsisk24

    Posted

    I heard they use different stuff dan teflon these dayz 
    • hsisk24
      hsisk24 ilmas_96291

      Posted

      My neurologist said he used Teflon so I’m not sure. I’m just going by what he told me.
    • hsisk24
      hsisk24

      Posted

      My neurosurgeon* not neurologist!
  • ilmas_96291
    ilmas_96291 hsisk24

    Posted

    Isnt it supposed to be permanent cure or at least 10 20 years
    • hsisk24
      hsisk24 ilmas_96291

      Posted

      That honestly depends on the individual. There technically isn’t a cure for TN. But, MVD is the closest thing to a cure. It can last for several years. There’s some people on here who had the surgery 20+ years ago and there are others where the pain came back after a few years. I think it depends on your personal situation. Do you have TN?
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