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I posted a message in FEB 2010 asking people there thoughts on surgery, since then i have had my whole bowel removed an an illeostomy put in place. I only had it done a week from today and its the best thing ive ever done (never thought i would be saying that!!!).
I was told at the age of 15 that i would eventually need surgery as my whole bowel was badly inflamed and no matter how many times or IV steroids ive had it just hasnt settled down. I am now 19.
Ive tried every tablet you can think of, asacol, balzalazide, meziavant, steroids, metrcaptourprine, azathapoprhine, IV infiliximab and many more. All which you know with terrible side effects!!!
At first i was really against it i still was when i went for the opperation, but i still went through with it because i wanted a better quality of life, since the longest id been without a flare up was 5 months in the whole 5 years of beeing diagnosesd.
So i guess what im trying to say is if your not enjoying life because of your UC or crohns to go for the surgery, its not the end of the world having a bag which by the way is smaller than what i thought it would be.
Hope people who are having a tough time with their condition consider this option.
Thanks for reading
If anybody considering surgery and wants someone to talk to about it just send me a messageill be happy to reply. Im a 19 year old female with an Ileostomy and about to start enjoying life!!!!
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