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I'm a 56 year old Aussie and just wanted to share my experience of PAE. I've had a pretty rapidly enlarging prostate for about 5 years. It's a gene I guess. My Dad had his first TURP in his late 50s and then after his prostate enlarged again, another in his late 60s. My brother, who has just turned 60 had a TURP a couple of years ago. A few cousins have also had TURPs. No prostate cancer in the family but loads of BPH. My PSA has always been very low. Anyway, as I say, my prostate went from 40cc to 100cc in just a few years, with a big median lobe. Managed it pretty well on Tamsulosin (Flomax) and by not drinking fluids after dark for about the last 3 years. Flomax and I got on well. No side effects at all and importantly no sexual side effects. But, if I missed a pill the deterioration in my stream was immediate. Anyway, something changed earlier this year. I guess it just reached a tipping point. A few times if I woke from a deep sleep in the morning with a very full bladder I was struggling to produce any stream at all. Took ages to empty. I've studiously avoided letting my bladder get too full for the last few years because that was when I had the most difficulty. But I had obviously reached a point where more intervention was necessary. Anyway, my GP was onboard with PAE because he has an enlarged prostate himself and had done loads of research. Because of my age and enthusiasm for not putting my sex life at risk, he referred me to a terrific Urologist who has been part of the trials of PAE running at the Wesley Hospital in Brisbane. He in turn referred me to the Interventional Radiologist, also a lovely fella. He said they'd done 300 PAEs with good effect (equal in terms of symptomatic relief though not quite as long lasting as TURP). Had a CT angiogram and Ultrasound as work up and then my PAE was done a month ago. Had a bit of a hiccup on the first night. The Radiologist had warned me that some men develop pretty bad pain, a kind of post PAE pain syndrome as the prostate tissue is losing its blood supply. I was one of them. A number of things worked against me. Firstly, I had been given Midazolam to keep me happy and compliant during the procedure. It has a pretty amazing effect on me. Apparently I give the impression of listening and understanding after I've had it, but really I can't remember anything. There's just a big gap in my life from that day. I should have had some Endone for pain before I left the hospital but didn't. Apparently I said I was fine!!! We live out in the country a long way from the hospital. By the time we got home my wife says I was suddenly off my tree with pain. Kept trying to pee but couldn't. My wife gave me Endone but it was too late. I just threw it up. Ended up sucking on the green whistle and a trip back to the hospital by ambulance in the wee hours because my wife couldn't even get me in the car. I remember none of it. Apparently it took 2 shots of morphine for me to settle. After that all I remember is waking up at 7am in the ward at the hospital as the breakfast trolley was wheeled into my room. I felt fine and apart from a bit of burning when I took a leak on that first day, I've been fine ever since. My darling girl was far more traumatised by the experience than I was. Hindsight's a wonderful thing. I should have had some Endone on suspicion and we should have stayed overnight close to the hospital but because of the COVID-19 situation we were keen to get home. Anyway, not a month later and I would do it all again. Slowly the strength of my stream is returning. I seem to have a better capacity to hold my bladder when it's full. Last night was the first time I haven't had to pee in the middle of the night for years. I woke with a roaring horn on the second morning post procedure which was wonderfully reassuring. Erections are regular and unchanged. Waited for a couple of weeks but sex and orgasms are great. Completely unchanged. The only difference is that my semen is copious, watery and and quite brown. So, after this long story I have 2 questions for those who've trod this path before. When will the brown semen change? I'm not worried about that. I'd put up with it forever, just interested. Secondly what has been the experience of most so far as how long it takes for the post-PAE bladder capacity/urination situation to be as good as its going to be? Thanks for listening.
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