Post Viral Fatigue and Alcohol

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Hi, I was diagnosed with PVF about 3 months ago following Labarynthitis. I realise PVF is probably slightly different to when you have been ill for over 6 months and diagnosed with CFS, however, both are categorised together on the NHS website. I have read on numerous websites that people with CFS & PVF are often alcohol intolerant and even the smallest amount can set people back significantly. I was just wondering if people have any personal experience of this? I have felt well enough, on occasion, in the last two weeks to have a glass of wine but I am too fearful of a setback to try. Thanks in advance! 

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  • Posted

    I've found that alcohol is bad, and this seems common within CFS, but not universal. tbh, there's so little good research and evidence in this area that I think people are often best just seeing what works best for them rather than taking the advice of others.
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  • Posted

    I think it's a very bad idea to drink alcohol when you have this illness. And labels like PVF and CFS are very fluid. I was diagnosed with CFS, which my doctor also called PVF, after only about 2 months. You are wise to be too fearful of a setback to try wine. Since you are newly diagnosed, you're in a time frame where you have a good chance of recovery. It's important to do everything you can to maximize this chance. Avoid alcohol, caffeine, and sugar, get plenty of rest, and pace yourself.
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  • Posted

    My doctor usually refers to my ME as PVF and I've had it for fifiteen years now. There was a time I used to have a little alcohol but realised that I was always a little better without it and with ME or PVF, any little improvement is more than welcome and can make a lot of difference over time.

    My advice would be to stop it until you're very sure that you're well again, and I hop sincerely that you are soon.. :-)

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  • Posted

    Hi Joanne,

    Controversially, I feel better (at the time) for having a drink but feel the same amount of "hungover" with or without a drink, often worse without? A friend with cfs/me however felt much worse after drinking a glass of wine and occasionally has tried it to see how they feel after.

    Someone else in this discussion says give it a little time to see about recovery first? And someone else states-see what works for you.

    I have cfs/me and not pvf so we may differ,

    I will add however that I have had recurring labyrinthitis in the past and that the balance and dizziness were seriously heightened and I stopped drinking then.

    Hope that things settle for you soon.

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