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Post viral fatigue / symptoms? pins and needles, weak legs

Posted , 8 users are following.

Elle1234
Elle1234

Hello everyone,

Much good wishes to everyone. I was wondering does anyone suffer from pins and needles in the legs (constantly) and hot and cold flushes in the legs that lasts a couple of seconds and muscle twitching. Sore heels/legs, These symptons are freaking me out. I am finding these symptons are worse in the winter...

For the past 3 months I have been taking vitimin supplements with not much effect. Still perservering though...

Best wishes,

Elle.

0 likes, 28 replies

28 Replies

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  • tina58520
    tina58520 Elle1234

    Posted

    Hi Elle,

    Yes, unfortunately I do get pins and needles in legs and arms and flushes.  My muscles jump all over the place.  I have discovered that quite a few M.E. sufferers find their symptoms get worse in extreme weather conditions, whether it be too hot/cold.  I am only taking the pregablin as prescribed a few weeks ago by my G.P.  As stated I have been to CBT and have been told on numerous occasions people do get over M.E. but I am not truly convinced as I have gone from mild to moderate and have been like this for over a year now.

    Wishing you some quality time.

    Best wishes

    Tina

    • jackie00198
      jackie00198 tina58520

      Posted

      Tina:

      Just wanted to confirm what you've heard. Some people do get over ME/CFS. I actually know people who've gotten over it, and people who've improved so much that they can lead a normal life. There's an especially good chance for recovery in the first few years of the illness. That's why I keep posting to this forum that's it's so important to rest and not to push, which can lead to relapse. At least if you take these precautions, eat healthfully, and finds ways to minimize stress, you give your body the optimum chance of getting better.

    • Elle1234
      Elle1234 tina58520

      Posted

      Thank you for responding Tina,

      It is great to hear that sufferers have got over this illness.

      It is hard but we have to deal with the physical elements of this disease as well as the emotional. I had had a look at many posts and alot of us are doing our best to recover. For me i have to change my mindset and have a postive mental attitude. Some days it does get me down because I have to think about resting all the time. I work full time at the moment. Lucky for me i can sit in front of a computer screen all day but if I was working on my feet I do not know if I can cope.

      Elle.x.

      Positive mental attitude.

  • josh81849
    josh81849 Elle1234

    Posted

    HI Elle,

    I have also been diagnosed with post viral fatigue syndrome (after first being diagnosed with convalescent ebv and chronic fatigue syndrome). I have struggled with this for five months now, I have seen two neurologists and a host of other doctors, had a ton of blood work done and an MRI, the only thing that came back was elevated levels of EBV. The twitches and the weakness/fatigue are the scariest symptoms for me. The twitches are normally all over the place but recently they have been more focused on my feet. Along with the twitching had come pins and needles in the feet only. Is this something that others have experienced? My feet are giving me a constant state of worry, I've been testing them constantly to make sure I don't have drop foot (hopefully that's why they are so painful). This syndrome gives me a lot anxiety and I just want to make sure I'm not going crazy and have something else.

    Hope everyone is coping with their symptoms!

    Thanks,

    Josh

    • jackie00198
      jackie00198 josh81849

      Posted

      Josh--I know all those symptoms are scary. Maybe I can provide reassurance, in a weird way. I have pins and needles on my feet and elsewhere. Sometimes I have twitches. Also unrelenting fatigue. This is all part of ME/CFS, according to my doctor, who is a foremost specialist in the field. The pins and needles are nerve issues. Not pleasant but experienced by some with this illness.
    • josh81849
      josh81849 jackie00198

      Posted

      Thank you for the reassurance jackie... sometimes my mind jumps to the worst possibilities like ms or als because the symptoms with this syndrome are so weird. This syndrome is just so weird and causes me a lot of worry. Before I got this illness I was running 5 miles a day, now I struggle to run 1 and afterwards my muscles have a twitching party.
    • jackie00198
      jackie00198 josh81849

      Posted

      Josh--we've all been there--worrying about other illnesses like MS, or lupus. I even thought I might have cancer when I first got ill, because I truly felt like I was dying. I urge you not to run if you're struggling. Even 1 mile may be too much right now. Your body is telling is sending out a red flag. Cut back on activities until you're able to do them without struggline. Or else you risk jeopardizing your health in the long run. Remember: people can can better when they have ME/CFS.

    • jmjones108
      jmjones108 josh81849

      Posted

      Josh,

      You sound exactly like what I am going through now.  I am a 30m with a lot of the same symptoms including the constant twitching.  Did you get better with time?

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