I’m just curious for those of you that experienced any sort of neurological symptoms after a virus/vaccination or otherwise, if it is (getting) better or progressing.
Long story short, I was very sick the week I delivered my 3rd baby 14 months ago (upper respiratory/sinus infection). 1.5 weeks postpartum I began experiencing sensations of numbness/tingling in various parts of my body, that then also included muscle twitches, vision disturbances (flashes/floaters), light internal buzzing/vibration (feet, constant if sitting still), the bottom of my feet feel “off”, not sure how to explain it.
Anyway, I’ve seen over 30 doctors in the last year, including two trips to the Mayo Clinic (consult with their director of neuroimmunology, Dr. Pittock). I’ve had EXTENSIVE negative testing (EMG/NCSs, lumbar puncture, MRI’s of brain/c-sprine/thoracic/breast, CT’s of pelvis/abdomen, ultrasounds of neck/abdomen/pelvis, chest x-ray, echocardiogram, EKG, numerous physical neuro exams by 5 neurologists, TONs of blood work, including specialty tests for thyroid, autoimmune, paraneoplastic, etc.), ALL normal/unremarkable, EXPECT, my ANA is positive (last draw 1:80, was higher at the onset of symptoms), but negative for all specific autoimmune disease; and EBV appears to have reactivated (likely due to pregnancy (negative IgM, but positive Early Antigen IgG).
The doctors at the Mayo said hey thought my immune system was stirred up by the virus I had during delivery, and that that combined with a “highly sensitive” neurological system resulted in my current symptoms, so basically some sort of post-viral phenomenon. They thought it would resolve with time, that it wasn’t progressive, but I still worry what will happen in 5, 10+ years. I honestly feel pretty good, I’m just hypersensitive to all of the little sensations, so I’m hyper aware.
Thanks for your help!