post viral symptoms

Posted , 7 users are following.

Hi guys,

I just wanted to ask people about their symptoms. About 5 months into this life debilitating illness I am scouring the internet for answers to my own problems with it and not finding much. So does anyone else have the feeling in their chest, that their heart is not right ? That it is being suffocated, that solely because of this you cannot do what you did before ? It's like there is this blockage around my heart energy and it's being supressed. Out of all the symptoms I have experienced this is now the most noticeable and most persistent and I absolutely hate it. Anyone else get this ? I know prior to becoming unwell I was fully vibrant and lived from the heart and life was enjoyable, now this has been taken form me and I feel like my heart has turned to stone. I'd like to know if anyone can find anyone else having a similar experience ? Is this a nervous system disorder ? Or something else ? thanks for reading.

0 likes, 12 replies

12 Replies

  • Posted

    Hi there , I understand how you feel , but don't automatically think its cfs any new symptom go to your dr to get it checked out ! It's more than likely cfs ( sorry ) but it may be something that can be helped better by medication ?!? Go get it looked at & put your mind at rest !

    Then get some counciling to help you come to terms with being ill ( it helps to get it straight in your head !!) it doesn't cure you but will help you in the long run

    Good luck x

  • Posted

    Hi Dawn. Yes I agree. Trying to get an appointment at the docs though, nigh impossible. I plan on discussing this next visit. I just find it odd I can't find anyone else, regardless of condition that has said the same as I have with regards to the heart. I still have not accepted my diagnosis and am trying everyday to get answers, things move so slowly. I only hope in time I do heal 100%. Even 80-90% would be nice. I need my heart back.
  • Posted

    Hi David, I didn't feel any problems with my heart, sometimes y can

    panic a bit when things seem desperate,

    a heart specialist had me on a treadmill

    for an hr, which made my cfs/me problem considerably

    worse, and took me 3 months to get over, and no heart problem

    then to an allergy specialist again no result, reading all other posts

    notice this dry mouth/nose/ throat is common, I used to carry a small

    plastic bottle with cold water as a spray to use in summer, and winter in a central heating

    environment, and ginsing to get through a long day/drive home, small benefits

    but might help

  • Posted

    Hi David you don't say whether you are having palpitations which is line a butterfly feeling in your chest as though your heart is missing beats and if it is severe it rides up into yr throat and your chest may feel tight and or your upper back as though it won't expand when you breath in. Palpations are an annoying symptom of cfs but all cardiac issues need to be checked by a gp in the first instance.
  • Posted

    Hi David

    Yes, what Suzie says is exactly what part of my symptoms have been. I had palpitations and tightness in my chest and at one point I was convinced I was having a heart attack. It turned out I was suffering from high blood pressure (up to 174/115 at one point) and high cholestrol 7.6. I am now on beta blockers to control this plus it helps me have lfewer migraines.

  • Posted

    Hi David -  I have read a little about heart palpitations and panic attacks.  Just a suggestion which may help is to take Amino Acids in supplement form.  This may not be what you are experiencing but if it is it may be useful to you.  
  • Posted

    I've now developed bloodshot eyes the past week. Anyone else get this.

    I've NEVER had this prior to becoming unwell, my eyes were always big and bright and clear. Definetely eyesight is being effected, eyes are slower to react.

    • Posted

      Hi David, I got blood shot eyes about two weeks ago, it came on with a terrible headache that lasted a week.
  • Posted

    Hi,

    Does anyone also get bloodshot eyes, it comes and goes ? Sometimes right eye sometimes left ?

  • Posted

    Hi David

    This sounds very familiar to what my wife describes. All the literature on ME and CFS doesn't quite fit for her nor does fluttering heart descriptions. But this description you have given in your your initial post is spot on. She has been like this for 3 years now... very slowly getting better but for about two years it was just unbearable for her. How are you getting on 5 months along the road? Did you manage to find any solution. She hasn't yet. She used to walk faster than I could ever keep up and would dance and talk using huge arm movements but now she is trapped. Whenever she forgets and becomes her old self again she gets ill again in a bad way. Can't do anything but lie down and wait it out. On occasion something does work for her is performing the valsalva manouvre... not sure why it works... doctors insist nothing wrong with her heart... losts of tests with nothing to show.

  • Posted

    Hello David,

    I was wondering are you feeling better? I have been diagnosed with post-viral symptons too. I wonder if there was any light at the end of this tunnel.

    Best wishes,

    Elle.

    • Posted

      Light at the end of the tunnel, i say YES, but it's not going to be easy. I've been on this full time for nearly one year withminimal gains. I still believe i will get better it's just a question of when and not ever giving up. You have to try lots of things, supplement wise holy basil helps me feel positive and even today bee products giving me a boost.

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