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Post viral symptoms / syndrome

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Elle1234
Elle1234

Hello eveyone,

I have been diagnosed with "post viral symptons". I have not got a clue what it is.Has anyone heard of this. For over two months I have been suffering from the following:

Heavy head feeling,

unbalanced.

constant pressure in the head

flu like symptons but no fever.

Pins and needles in left and right leg. Sometimes hot and cold flushes in the leg.

Prickly feeling in the arms

Muscle fatigue or cramping in the hands. I feel like my hands are so stiff sometimes.

Fatigue all the time ( despite having a good sleep).

Apparently I had a viral infection and then one by one these symptons appeared. it is dragging me down. I have MRI, blood test which came back okay except for slight raised "infection".

Does anyone else have these symptons? It is dragging me down. Is there a solution. The Dr says there is no treatment but it will disspear or subside on its own... when? when? when? Some days I can handle it other days I want to just curl up.

No offence but this syndrome just sounds so wishy washy. Could I be misdiagnosed?

Sad Elle.

4 likes, 464 replies

464 Replies

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  • kat2016
    kat2016 Elle1234

    Posted

    Dear Elle and fellow sufferers,

    Just wanted to know how everyone is doing 2-3 years down the line, as I too have been diagnosed with post viral syndrome with the pins and needles, muscle twitching, heaviness and dizziness or other bizarre symptoms. I hope most of you have recovered or improved!

    • lilum
      lilum kat2016

      Posted

      Hello kat2016, i am sorry you are not feeling well. This week was the first week since April when i felt almost ok, and some days i even felt great. I definitely had an acute phase when i was twiching and buzzing all day long, insomnia, dropped weight... then it slowly started getting better. I am doing a number of things which might or might not katter, to speed up my recovery. You can see my previous posts. As i said, this week was pretty good, so i am hopeful it will continue like this. Hang in there and remember, your mind is amazing, both in helping you heal or in holding you back, depending how you choose to use it. Be well. 
    • kat2016
      kat2016 lilum

      Posted

      Hi LIlium,

      Thank you so much for your reply and I m so glad you're doing better! I hope you're on your way to al full recovery. I will read your previous posts. All the best to you and everyone else x

    • Mic13
      Mic13 lilum

      Posted

      Hello everyone... Very glad to have found this. Had possible CFS (still managing to work... Just) for 2 yrs ish. Tried lots. Just hit with ears n throat n balance AGAIN. Wonder if folks have come across tendonopathy.. Latesy diagnosis for leg psin from physio. Also been told to take antihistamines for at least 3 months but on top of anti anxiety pills... Very drowsy. Female. 45. One child.
    • lilum
      lilum Mic13

      Posted

      Re peri menopause, I’m not saying it’s not possible, but there are guys with the same symptoms. And it’s something diagnosed starting at 30 until about 60, doctors love to say it’s peri/menopause. That means, we have no answers and don’t know what to do for you. 

      Re antihistamines and benzos. That’s the only thing that works for me so far but I read a pretty reliable study that links long term use of anticholinergics (Zyrtec, Benadryl etc) or benzos (klonopin, Ativan etc) to increased risk of dementia and Alzheimer. If you need to take it, and I do, take it, but be mindful of that risk and try to cut back as soon as you can. 

      https://www.health.harvard.edu/mind-and-mood/two-types-of-drugs-you-may-want-to-avoid-for-the-sake-of-your-brain

  • chris12276
    chris12276 Elle1234

    Posted

    Well i want to come on here Just say that everything that has been said is exactly what I’m going through....i had the flu for 1/27-1/30 and the major symptoms went away...but 6 days went by and started to not get better and went to the doctor again and was apparently diagnosed with a mild onset of pneumonia and was prescribed the z pack and took 4 of the 6 and then as I was taking them my legs and arms have been sore and my head has been full...went to the er today and told them my problems and they sid a full blood work and flu strep Check...and everything came back normal...and was diagnosed with viral syndrome and the ub said it could take 1-2 weeks (maybe longer) I am freaking out because they didn’t give me anything for it and they said to drink and rest
  • shani68304
    shani68304 Elle1234

    Posted

    Hi Ellie!

    It feels a bit weird to reply to your post 3 years later! But, when I read it just now, it was like reading exactly what I had been experiencing for the last few weeks...

    I got exactly the same diagnosis yesterday and my symptoms where nearly word for word the same. 

    How are you doing these days? Have you managed to recover and function normally again. 

    I was so discouraged when all of my blood tests came back as normal, except for slightly lowered platelets but my muscle were so weak I could not even walk properly. My brain also felt like it was fuzzy and too big for my skull, and I watched my muscles twitch uncontrollably after I even used them just a little bit. 

    Bed rest and patience seems to be the only effective treatment! ( along with a lot of vitamins and fluids of course!)

    For what it is worth, please let me hear back from anyone else with viral induced chronic fatigue syndrome?!

    • Guest
      Guest shani68304

      Posted

      Hi,

      Sorry to hear you have been diagnosed, that’s really s**t news. 

      I’ve been suffering a while now and only starting to work out what to do to aid some recovery. Everyone’s symptoms seem to be different but one major tip I can tell you and this is as absolute must to follow. Do not catch ilnesses from other people. If your partner has a cold stay away or if your friend has a cough. My recovery has been stunted dramatically by the cold winter weather and extra ilnesses on top. 

      I’m going to be honest with you, this is s**t. Get your family around you close and hold tight because it’s a bumpy ride. I’m still on the ride with no sign of the light yet. You will have hard times when you want things to go back to the way they were and they will but you just don’t know when. 

      Doctors lack any knowledge regarding this illness so just eat well and cut out toxins like alcohol etc.

      This is my first post since my intial post but seeing your post reminded me of myself when I first realised I had this mysterious illness so I had to respond.

      Best,

      Ed.

    • Guest
      Guest shani68304

      Posted

      Some people recover in a few months and some a lot longer. Just give yourself the best chance of making that recovery as quick as possible
  • lyndell22882
    lyndell22882 Elle1234

    Posted

    Hey guys, this thread has been really helpful because my doctor has been thinking the symptoms are from anxiety but I know it’s not. Most definitely seeing another one.

    The only abnormalities in my blood test are vitamin B12 dificiancy and white blood cells are below normal and my blood test before this one, detected some sort of infection that I wasn’t aware of. The only massive thing medically that has been wrong with me is I’ve had a haematoma which A hematoma is an abnormal collection of blood outside of a blood vessel. It occurs because the wall of a blood vessel wall, artery, vein, or capillary, has been damaged and blood has leaked into tissues where it does not belong. I used to be a hell of a lot more unbalanced and dizzy when that was in my body and I believe that would of triggered all these other things but who’s to know. sad 

    I hope everyone is doing well now smile 

    • Guest
      Guest lyndell22882

      Posted

      Hi,

      The B12 deficiency can be key.

      Take high potency b12 tablets and see if that makes you feel any better.

      I knew someone myself who thought they had CFS but instead only had this deficiency and only had to have injections of b12 once a month and she was right as rain! 

      I really hope this works for you! 

  • zlatka1990
    zlatka1990 Elle1234

    Posted

    Hello again! I've been dealing with this for 10 months now and I see some positive changes in the last 2 months after natural treatment, including teas, spirulina, mushrooms, inhalations and circulation meds. I also avoid stress, try to sleep at least 7 hours...the result is increased energy level so I'm dealing much better with my persistent symptoms: pressure in head, blurred vision and vertigo. They are still here but they seem to be weaker. Goodluck to all smile

  • Guest
    Guest Elle1234

    Posted

    Hi All,

    So I am new to this discussion but thought I would drop in. 

    I am a tennis pro and about 6 months ago I was giving a tennis lesson in the heat and started to get dizzy and really weak in legs.  At first thought it may be de-hydration but it felt like a little more. Anyhow it turns out that I am still dealing with this and the term post viral has been thrown out there.l by some of my Drs.  I don’t really buy that diagnosis to be honest. 

    I have seen numerous Drs including GP’s Neurologists and infectious disease.

    Have had all the scans including Brain and Spine and so much blood work and everything has come back normal!!

    Things have improved  but it is so up and down. Some days I feel ok and other days not great. 

    My symptoms are weakness in upper legs, Tittinus and Little brain fog

    I don’t have any fatigue in fact I feel like I still have quite a bit of energy just weak. 

    I am going crazy cause I can’t get a diagnosis!  And I am tennis pro so it’s hard to work.

    I have been super stressed about it so that I am sure is not helping!

    Anyhow if you have any thoughts or advice would love to hear!

    Thanks 

    Tim

  • mesut322
    mesut322 Elle1234

    Posted

    I suggest everyone suffering from these types of symptoms to get tested for Lyme disease and HSV-2. Doctors do not associate the symptoms with these diseases but they seem to cause the symptoms...
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