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Post viral symptoms / syndrome

Posted , 87 users are following.

Elle1234
Elle1234

Hello eveyone,

I have been diagnosed with "post viral symptons". I have not got a clue what it is.Has anyone heard of this. For over two months I have been suffering from the following:

Heavy head feeling,

unbalanced.

constant pressure in the head

flu like symptons but no fever.

Pins and needles in left and right leg. Sometimes hot and cold flushes in the leg.

Prickly feeling in the arms

Muscle fatigue or cramping in the hands. I feel like my hands are so stiff sometimes.

Fatigue all the time ( despite having a good sleep).

Apparently I had a viral infection and then one by one these symptons appeared. it is dragging me down. I have MRI, blood test which came back okay except for slight raised "infection".

Does anyone else have these symptons? It is dragging me down. Is there a solution. The Dr says there is no treatment but it will disspear or subside on its own... when? when? when? Some days I can handle it other days I want to just curl up.

No offence but this syndrome just sounds so wishy washy. Could I be misdiagnosed?

Sad Elle.

4 likes, 464 replies

464 Replies

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  • illkill19
    illkill19 Elle1234

    Posted

    Hey guys I went to my appointment. I've just been so tired extremely tired. Dizzy. Headache. Almost feels like my body is trembling from the inside. The muscle spasms and cramps/muscle tenses stopped but I sleep all day. It's like I have no energy not even to cook. My appetite is partially gone.. the Dr. Ordered more blood tests to look at my liver enzymes he said have kind of been high as well as a Hepatitis test he said ppl can get it from viruses. He ordered ultrasounds on my liver spleen and gull bladder because I have fatty liver but since then I've lost 42 pounds and the ultrasound technician said he seen no fatty white patches on my liver.. I have this constant headache and my whole body just feels awful. I need some answers because this thing is affecting my life and happiness. I have a follow up appt on Wednesday. I'm not very hopeful he found anything. I really hope he does but I doubt it...they dntt really seem like they know what to agree upon because I go to the clinic and said bronchitis I went to e.r. e.r. Dr said viral syndrome from a virus that antibiotics can't even touch. Not to mention my family got sick as well and has had the same symptoms there's went away mine have not however.I'm really stuck on what to do.
    • Elle1234
      Elle1234 illkill19

      Posted

      Greetings illkill,

      I am curious. How long have you had your symptons? Have you started on all the health supplments mentioned in the post and relaxation.

      I know it's hard to say try not to worry I think that makes things worse. But do try not to worry. Fear makes adrenaline. Adrenaline makes body tense. A tense body is not good for recovery.

      Definately going to read up on whether there is a correlation between the gut and post viral symptons. This is interesting.

      You are not alone in this.

      Elle X

    • illkill19
      illkill19 Elle1234

      Posted

      Hi elle about 3 weeks now.this is my third week. On Monday it will be my forth. It started first when I had "bronchitis" if thats truly what it even was. I mean I was tired and didn't feel good. But not THIS tired.iknow I try not to worry but it's definitely hard..I have not started on all the health supplements and relaxation mentioned in the post. Iwent through the posts and Iwill be trying meditation and yoga though.. I have acidipholus probiotic that iwill be taking.I'm going to start up a journal. Iknow stress and anxiety isn't good for the body due to adrenaline but it's definitely hard to keep under control sometimessadsad especially when I had gone to the e.r I really felt like I was going to die. Also..I have made an appt with a therapist that iwill be going to on Monday. I hope it all works out. Iknow anxiety and stress causes alot of these symptoms but iknow for a fact that this is not my anxiety.
    • Beverley_01
      Beverley_01 luvubeaner

      Posted

      Hi luvubeaner,

      Here in the UK, Lyme disease doesn't seem as prevalent as in the US. It is being recognized more but, I'm not sure how gp's assess if Lyme's could be factor here.

      Beverley

    • michael90653
      michael90653 illkill19

      Posted

      Hi illkill19,

      Sorry to hear your suffering with this so much it really is a terrible condition ive only been diagnosed this week so im no expert but if your anything like me the spasms are the most frightening thing and will cause stress which will then make you more fatigued !!

      apparently q10 vitamins help with the spasms just thought id mention it as like i say its the worst part for me.

      Im going to give them a few weeks to really give them a chance and will keep the post updated with any hopeful progress.

    • illkill19
      illkill19 michael90653

      Posted

      Hi Michael. It really is awful.. My muscles just started aching up though Ijust tried to ignore it and kept moving even though I felt exhausted.Q10 vitamins? I've never heard of them before. I'll look into them because I really don't want to feel like this anymore.last night was awful. I had cold sweats.aches.and spasms. I woke up extremely dizzy and lightheaded. So far I'm only taking probiotics but I'm looking into getting some vitamin b 12. Also I try to sit out in the sun for about 30 mins everyday I've been trying not to stress or worry myself. Yes please keep me updated on how the Q10 vitamins work.It sucks because my one go to stress reliever was taking a walk or riding the bike but because of my sinus/allergy problems I'm unable to unless I want bad headaches and nosebleeds so I'm cooped up in the house alot.
  • illkill19
    illkill19 Elle1234

    Posted

    Hey everyone just wanted to see how you all are doing. I hope good. I started up bad again with muscle spasms and tension in my muscles. I hope everyone is doing well.
    • michael90653
      michael90653 illkill19

      Posted

      Hi illkill19,

      Ive done some more research into coq10 supplements to try and better understand their benefits and it appears they are deffinately beneficial to fatigue syndrome sufferers.

      Apparently they help;

      Lower cholesterol

      Lower blood pressure

      Boost immune system

      Help neutralise free radicals in the heart, liver, kidney & pancreas.

      At least 1 video i watched described their benefits as having direct benefits to muscular fatigue and spasms.

      Coq10 is described as something every cell in the body produces but lowers significantly when we reach our 30s and when we are stressed but also the ammount the body produces is reduced by 50% when taking statin drugs !! (I think a few people have mentioned taking statin drugs on here not sure if this affects you).

      Also worth mentioning there apparently around 3 times more effective when taken in gel form as they otherwise have notoriously poor absorbtion rates.

      You can get 120 of 200mg softgels on amazon for £25 ive just oredered some as i had originally ordered powder capsules (never mind) 1 of these gels per day should be sufficient to hopefully see some improvement in your muscular spasms if what ive read is true. Most of the sites ive looked on are not promoting any particular brand so seem pretty trustworthy.

      I know id said id keep you updated on any improvements which it is obviously far too early to tell by now but thought you might find this helpful all the same. they apparently have no side effects so i guess if you can afford to buy these there would be no harm in trying them at least.

      Hope this helps have a good weekend anyway. Michael.

    • Beverley_01
      Beverley_01 illkill19

      Posted

      Hi illkill,

      Sorry you've had problems again with spasms and muscle tension. Have had an on/off couple of days so resting today. Hope today has been better for you.

      Best wishes

      Beverley

    • michael90653
      michael90653 Beverley_01

      Posted

      Hi beverley,

      I will ive actually been feeling a little better the last few days the spasms have gone down quite a bit but im putting this more down to a few lifestyle and diet changes rather than the coq10 plus the fact that i know what im dealing with now which before hand was causing me quite a lot of stress.

      Im just still running out of energy about 3/4pm every day i have been fairly active shopping/d.i.y etc until that point tho so hopefully if things go to plan i can drag this fatigue time out to later in the day.

    • Beverley_01
      Beverley_01 michael90653

      Posted

      Hi Michael,

      Glad you're feeling a little better and that you're noticing some improvements.

      Seems your body has got into a pattern with this which I guess is helpful. Do you rest when you get to that point? As in lay down etc.

      Hope the Q10 does end up being beneficial for you.

      Best wishes

      Beverley

  • illkill19
    illkill19 Elle1234

    Posted

    Hey you guys lol you guys say it in the goonies sloth voice. Haha. Just thought I'd try to make you guys laugh lol because today for me has been horrible...I'm really bad today.I'dk if u guys go through this too honestly it might be something else than pvs??maybe thyroid? Adrenal glands??? Something else?? Im basing that off todays symptoms..I'm not sure just wanted to see if maybe u guys also have gone through this at all with ur guyses pvs... But I feel like death in the flesh. I honestly feel like I'm just going to pass out all day. My body hurts. It almost feels like hypoglycemia but it's not my sugar is fine. Clammy hands. My muscle spasms are fine today yet they feel stiff. I have such a bad headache I threw up earlier and still feel naucious although it may be my sinus..it feels like my body shakes from the inside this annoying vibration even though on the outside I'm not shakey..I'm having a really difficult time. I feel extremely Ill and I'm not even sure if I can make it to my therapist appt tomorrow they had moved it from Friday to Monday at 1.it will be a two hour long session.sad. My body goes through these weird cycles.Ill feel so hyper or jittery to the point I can't concentrate and start getting frustrated. Some mood swings. And chest pains sometimes. It completely escalated today with symptoms my body hurt. The best I can explain is flu like. My body feels green.that sounds stupid but I can't explain it.ijust feel like I'm going to pass out.I feel uneasy. I'm dizzy and lightheaded. Then I got really tired but my body feels sick so I can't sleep.I had a really bad nightmare last night. I want them to test my thyroid but I have to wait until my appt. I wrote down everything for the Dr...this is DEFINITELY not anxiety or stress related.I think I'm going to go to another Dr depending on how the appt goes..I tried to find vitaminsq10 in the store and had no luck in Walmart. There is a health food store they may have it here but it's closed today so no luckrolleyes. You guys is this really pvs or something else?...rolleyes my whole body hurts so bad .sad
    • Beverley_01
      Beverley_01 illkill19

      Posted

      Hi illkill,

      I know how you feel with this and I've had these awful symptoms and i've been scared by them too. I've wanted answers, treatment, a cure. We all want to be our old self again asap : ) its a tough ride and accepting that is even tougher. All we can do is rest And be gentle with ourselves is what I've learnt. This said, that doesn't mean just rolling over. If you think Its thyroid, then get tested for for this. If your symptoms are troubling you, then go to the doctors, emergency department or other, if only to get peace of mind. You're symptoms are real. You're not making It up. Its a real challenge to get past that feeling if you're not used to visiting the doctor before all this started. Regarding yr 2hour therapy session, if you don't feel up to it/feel too bad during It, tell the therapist. Put you and your health 1st.

      Hope today feels less distressing for you.

      Best Wishes

      Beverley

    • deirdre01438
      deirdre01438 illkill19

      Posted

      Hi illkill, did you recover yet? I hope you did. I'm going through similar symptoms for a long time. I'd love to know if you got an better. Thanks

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