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Post Viral Syndrome

Posted , 5 users are following.

All777
All777

Hi All I'm new here,

I was wondering what symptons people have who have got this conditon. I was diagnosed with this in mid October. Also what things people have done which has helped them and do people actually recover from it as it can get quite depressing at times sad. I have had various symtoms:

Chest pain

Cough

Joint pain

Numbness one side of the body mainly the left

Tingling in head and either side of the body

Dizzinessss

Fast heart beat and weak feeling heart at times

Weight Loss

Some of the symtoms have gone now.

I have had vairous test which has come back normal :S

Thanks for reading smile

1 like, 14 replies

14 Replies

  • simonkm1
    simonkm1 All777

    Posted

    Hi

    my main symptom is extreme fatigue..

    which you dont seem to have?

    regards

    Simon

    • christine_CRPS
      christine_CRPS simonkm1

      Posted

      Hi Simon

      I completely agree with u on that point

      1) extreme fatigue

      Christine CRPS uk

  • Shreddie
    Shreddie All777

    Posted

    My main system is overwhelming crushing fatigue, not helped by rest or sleep.  You don't seem to have that - are you sure your diagnosis is correct?

    • All777
      All777 Shreddie

      Posted

      I'm not sure you may be Wright. I did find it hard walking and brushing my teeth but it's not as bad as it was at the beginning. I've had this since August. Hmmm not sure thanks for replying

    • Shreddie
      Shreddie All777

      Posted

      Did they check for thyroid problems?  Also these symptoms are often found in sarcoidosis....to be honest, you have some horrible but fairly common symptoms of many debilitating illnesses.  CFS is not usually diagnosed before one has had six months of unrelenting fatigue which for many leaves them bedbound, unable to walk, with such weakness day to day living is impossible.  Along with the fatigue are myriad symptoms which may or may not be suffered.  Common with CFS is fibromyalgia, IBS, thyroid problems, depression and cognitive problems though we all have our own additional autoimmune disorders and additional symptoms.  I do hope you don't have CFS, it is such an unforgiving drain on life, so misunderstood and without cure.  I would be pushing for more tests and doing a bit of research of my own to find out what it could possibly be that is wrong with you.  Sometimes this is necessary as our doctors either don't have the time or inclination to search and need to be given a prod in one direction or the other.

      I have been ill since 2007, with only sporadic periods of feeling a little better and many episodes of total relapse.

      Please let us know how you get on.  All the posts on this forum are a grear source of information and may give someone another avenue to search for relief.

    • christine_CRPS
      christine_CRPS Shreddie

      Posted

      Hi shreddie

      Do u get the jerking when u r asleep ?

      Take care

      Christine CRPS uk x

    • All777
      All777 Shreddie

      Posted

      Thanks Shreddie I will push for more tests. Seems gp is unwilling at times 🤐

    • Shreddie
      Shreddie christine_CRPS

      Posted

      yes, really bad.  I have restless legs too which are also painful.  They drive me mad.
  • clivealive
    clivealive All777

    Posted

    Amongst the "varous tests" you've had done do you know whether you were tested for Vitamin B12 Deficiency?

    What sort of diet do you have and what medications are you on?

    • All777
      All777 clivealive

      Posted

      I have had a full blood test and no medication
    • clivealive
      clivealive All777

      Posted

      Can you get hold of a copy of your FBC and see if B12 and B9 were tested? I think they may need to be specifically requested.
    • All777
      All777 clivealive

      Posted

      Thanks Clivealive I will have a look. You might be Wright.
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