1. Community
  2. Heart Health
  3. Cardiovascular Disorders

Postural Orthostatic Tachycardia Syndrome (POTS)

Posted , 2 users are following.

Elefantaflaca44
Elefantaflaca44

Has anyone heard of POTS? After a lil over 2 years and 3 Ablations and many trips to the Emergency Room I was diagnosed with POTS. My cardiologist said there is no cure. He put me on new medication to take with other cardiac medication called Digoxin. I have only had 1 does of it so far but I can already say this is gonna be a very long road getting used to this new medication. The nausea is unreal, dizziness, sleeplessness but even with all these symptoms I can say my heart hasn’t been over 120 so Digoxin is doing what it’s supposed to do. I just have to get used to the side effects of a new medication. 

0 likes, 2 replies

2 Replies

  • peter01729
    peter01729 Elefantaflaca44

    Posted

    POTS is just one of many disorders of the Autonomic Nervous System

    My Autonomic Nervous System was permanently damaged by the beta blocker Bisoprolol, so I a under the care of an Autonomic Neurologist now.

    Whilst I dont qualify for the POTS symptom, I do for its close relative Orthostatic Hypotension. I feel so desperately ill now only OK if I stay in bed and dont eat anything.

    A good forum for POTS is DINET Dysautonomia Information Network,

    • Elefantaflaca44
      Elefantaflaca44 peter01729

      Posted

      Hi Peter, thank you for the Pots forum. I really appreciate it. I have been on Digoxin for 3 days now. I feel even worse than before taking it. My heart rate is staying in the 130s blood pressure is high and also my sugar is elevated a bit. Doctor wants me to try and stay on it for a month and see if I respond to it and the symptoms calm down. I just do not think I can make it a month. I am exhausted and now depressed because this diagnosis was supposed to make things better not worse. 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.