Potential side effects to levothyroxine
Posted , 5 users are following.
Looking for some guidance please. I was diagnosed with hypothyroidism 5 years ago and I take 25mg of levothyroxine daily.
Three years ago I had an ultrasound scan of my neck for something unrelated and was told that I have thyroiditis as well, the doctor didn't seem bothered by this and I've always just assumed it's hashimotos which doesn't matter really as the treatment is the same.
Anyway for 5 years I've been suffering with hair loss and acne but recently I've been tired after eating carbohydrates and just have a general feeling of ill health. I also have IBS type symptoms.
The hair loss and acne seem worse when I take the thyroxine, I stopped for a time as I believed the hypothyroidism was post partum but my blood tests changed so I started taking the thyroxine again and the hair loss and acne worsened.
I also cannot lose weight despite diet and exercising 5 days a week.
My doctor isn't interested in my symptoms as they aesthetic and is happy with my dose so I don't really know where to turn. If I increase my dose the hair loss and acne will worsen but if I don't I'll never lose weight or stop the tiredness.
Feeling really exhausted by it all, I doubt very much that my doctor will refer me to an endocrinologist so I need suggestions to try to take control of my health please.
Thank you for reading 😊
0 likes, 6 replies
kathy08296 jacqueline35357
Posted
jacqueline35357 kathy08296
Posted
Thank you so much for your reply Kathy, I am in the U.K but unfortunately my GP practice isn't great, all the doctors I've seen aren't interested in symptoms only lab results. I think I'll have to make a nuisance of myself until I get some help but all except one of the doctors seem to be pretty clueless. If I don't get anywhere I'll considering going private.
I'm regularly checked for diabetes but I do have an iron deficiency and I'm starting to wonder about gluten intolerance so I'll ask to get checked for that too. I'll also ask for a print out of my results.
Thanks again for your reply, it's good to hear that the symptoms might be due to incorrect dosage rather than a side effect of the medication, at least I know which way to go with it.
jennifer16462 jacqueline35357
Posted
So sorry you are going through this.
Firstly, go see another doctor. Secondly ask to see your results and if you do t already, learn what they are and mean. You are probably in range but if you are having the symptoms that you are, your levevels could do with adjusting. I always find it best to write a list of my symptoms to take with me to the doctor. And don’t tell them you are tired . Write down ‘persistent fatigue.’ Do a basic diary for a week of your diet and exercise t show them.
Low calorie diets are not good for people with thyroid conditions. If you are doing heavy exercise, maybe turn to s gentler form for now. I do lots of walking and yoga.
I had the same symptoms. I went to see a different doctor who said yes I was in range but wanted to get my tsh lower to 2.0.
I did have adjustments to my levo and began to feel better. My hair stopped falling out and now feels thicker . I still suffer from slight hair loss when I don’t look after myself and feel tired and run down. Please try not to worry if you suffer more hair loss if you change your levo dosage. Give it some time. I always have hair loss if I change my dosage then it settles down. If it doesn’t then speak to your doctor more about this and what could be causing it.
I also suffered from acne during my dosage changes so knew I had a hormone imbalance. 6 months after my final increase in dosage, everything settled down. But I did change / my skincare routine as well.
Do you take your levo away from food, caffeine and other medications?
Have you had other bloods done like B12, vitd, folate, iron?
If after all these, and you still no better, push to see a endo
jacqueline35357 jennifer16462
Posted
Thank you Jennifer that definitely makes sense to me and I'm very grateful for your advise.
I'm going to go back and request an adjustment to my dosage and if I don't get anywhere I'll ask for a referral or go private.
I do take the Levo on an empty stomach but usually with my morning coffee is that a no no then? I also have an iron deficiency due to heavy periods so I take a multivitamin for that too.
Thanks again for your advise I'll go down the route of dosage adjustment and fingers crossed they'll get it right before I go bald!
jacqueline35357
Posted
MtViewCatherine jacqueline35357
Posted
I did not find medication was effective for me, and it seened to make things worse and caused stomach pain.
I have done away with meds, as they were ineffective and harmful to my health. I have concluded that my thyroid problems were worsened by the meds and that chronic pancreatitis plays a role in contributing to my symptoms.
My formula to get my health back on track, so far has been essential amino acid and digestive enzyme supplements, acupuncture, and treatment of chronic pancreatitis and gallbladder towards improved digestion.
If you look up chronic pancreatitis, you find it causes EVERY gut symptom imaginable.
Digestive enzymes, HCL and other digestive supplements can imorive digesting, reducing malnutrition and many symptoms.
I suggest your energies are best spent increasing your nutrition and digestive health. You may find you get relief from this avenue of focus of supporting the system more so than supplememting thyroxin.
Good luck! You aren’t alone!