POTS??

Posted , 4 users are following.

So... I’ve recently been having “heart trouble” where when I stand up, I black out; I have episodes of fast heart rate while doing nothing (130-160), lots of fatigue, dizziness, and lightheadedness; as well as general tachycardia when not laying down. I went to a cardiologist who gave me a ecg (which only showed palpitations) and a full exam and said I had perfectly healthy but gave me an event monitor for “good measure”. 

So far I have been dignosed with:

-Gastroparesis

-GERD

-Tachycardia 

-Palpitations 

From my research I believe I have POTS but when I told my PCP she told me that I couldn’t have it because I don’t faint? I took laying and standing pulse and it only confirms my research, if you have pots, could you give your opinion and some advise? 

Laying pulse:

89

Standing after a minute or so:

134

Thanks

0 likes, 4 replies

4 Replies

  • Posted

    Hi, been having similar problems for last two years and got nowhere, symptoms have worsened, advise your GP on other related symptoms of POTs you have, request Tilt Table Test with cardio if you haven't had it already, check your own blood pressure at home, you don:t need to be fully fainting if you have POTs, the readings and symptoms must fit the several types, another good indication is purple discoloration of the legs or feet with excessive sweating, good luck   

  • Posted

    Just recently got diagnosed with pots... definitely don't need to be fainting to have it. See a new doctor. I had to go to 30 different ones before finding someone that listened. Stand up for yourself!

  • Posted

    Just recently got diagnosed with pots... definitely don't need to be fainting to have it. See a new doctor. I had to go to 30 different ones before finding someone that listened. Stand up for yourself!

  • Posted

    does the heart rate stay elevated or drop ? id guess pots or vvs, you dont have to faint in either 😃 you want a TTT that would diagnose autonomic dysfunction

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