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Pots syndrome and severe symptoms...does it get better?

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nina88141
nina88141

my doctor thinks I got pots syndrome and I will have a tilt table test. currently I'm struggling to stand longer than 10 mins without my legs completely giving in or have this siezure like episode ( which has been confirmed are not epilepsy). So if I want to go out I have to go in a wheelchair and this scares me for the future. Anyone else that had it this bad but recovered and able to walk again?

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  • g24686
    g24686 nina88141

    Edited

    Last year, I couldn't stand without dizziness, a horrible fast heartrate, and vision problems. Now, I'm running 2 miles a day, weightlifting, going to school full time, taking ap classes, and my tachcardia and standing symptoms are almost all gone. Yes, you're going to have difficult times. But, it WILL get better. Trust me. Make sure to eat salty foods, drink lots of water, get some exercise (physical therapy sounds like a better situation for you), eat smaller meals, lower carb content of meals, and check for any underlying conditions.

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