Pragabalin

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Hi

Has anybody withdrew from ropinorole to pragabalin? 

I have been advised to do this by my consultant and was wondering did it work? How was it? I am

Nervous but need to try it. 

Lucy 

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  • Posted

    The side affects if that drug look awful I have just read about it I am on ropinarol they work very well for me and do not want to change why are you haven't Ng to change Lucy ??

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  • Posted

    Side effects to both of these drugs can be awful and similar in there own right people react differently I was on both and still am on the ropinorol 4mg a day, me I developed compulsive disorders which are very worrisome but I know if I don’t control it and work with my GP and neurologist I will have to come off them and I cannot afford to let that happen because the drug works for my RLS 80-90% of the time. And I’ve tried many many other drugs to help me relieve RLS these are the best.
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    • Posted

      Oh I only have rls so ropinarol is working well for me I don't get any of the side affects listed so I am lucky in that respect hoervrt I am always looking for something better or new out there do I read on the net about pragabalin and it didn't even say it was for rls and so many bad side affects listed

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  • Posted

    I take both Ropinorole & pragabalin,  and still having problems with RLS,  In the past came off ropinorole not very successfully as had RLS continually for a few days.

     

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  • Posted

    Ropinorole is a Dopamine Agonist and risks Augmention (Google it) so Neurologists tend to go for Gabapentin or Pregablin and if necessary an opiate eg Tramadol. I am on Tramadol and Gabapentin having been on all the DA’s over the years. They are ALL nasty drugs but better than RLS if you can tolerate them. Good luck.
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  • Posted

    Thank you

    Ropinorole has def augamented and basically ruining my life. 

    So my next step is to get off it and try pragabalin so fingers crossed I cope ok with the with draw and it works!! 

    I also take magnesium tablets, magnesium spray, cbd oil

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  • Posted

    My husband of 49yrs old is on pregabalin and has been on 450mg a day for five yrs, it took  about six weeks to get to that level and went thru a few minor side affects at the beginning but went with it as it was the only pain relief in two yrs that worked even a little, it isgood so he went with it. It got him back to work doing 55 hours a week truck driving etc

    I guess this tablet is for life as his back is the same, have heard its nasty coming off and must not be sudden, very slowly 

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  • Posted

    Pragabalin is Lyrica, a fairly strong drug for the treatment of epilepsy, diabetic neuropathic pain, and  fibromyalgia, It's also pretty expensive. You can try it and see if it works for you. There is some evidence that it may help with RLS. Has anybody suggested that your iron blood levels be checked? I've suggested 5mg Methanol along with 2 one mg tabs of Ropinorole 1x daily to you before but apparently you have not discussed this with your MD. That combination of medications has an excellent track record in alleviating RLS symptoms. You seem to be bouncing from one suggested medication to another then asking opinions online when you should be consulting with an expert MD in RLS. So I wish you best of luck in resolving you RLS dilemma.

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    • Posted

      Thank you ray and I actually have an app with my gp on Saturday to discuss all my options and asked to be referred back to my neurologist. 

      I have a letter from him recommending pragabalin so was just interested to see if anybody was trying it “isn’t that what this site is for?” 

      Up until now ropinorole was doing the job. 

      I don’t appreciate your negativity on a very sensitive issue for me so please refrain from commenting on any of my other posts!!!!!!!

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    • Posted

      No offense intended Lucy. You're right, this site is for consultation. But I've seen so many posters bounce from MD to MD to lay opinions and not get their symptoms resolved. I do hate to see people suffer from this terrible syndrome. Quite possibly I was in a worse place than you describe yourself as being, so bad that my RLS specialist almost gave up on me. RLS almost killed me, literally. As a last resort he sent me to Mass General Hospital for the latest treatment in RLS and it worked. I really do appreciate how sensitive an issue this is. I will refrain from further posts and do apologize for any apparent unwarranted negativity. Again, best of luck in your treatment. If you do try pragabalin be aware that the side effects are nasty.

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