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Hi everyone, I was diagnosed with Graves in 2011, I then got Thyroid Eye Disease also 2011.
I was told by my endo consultant in 2013 that I had Pre Tibial Myxodaema which is also caused by the Graves & is allied to TED. I had a hemi, then completion thyroidectomy in 2014 because of carcinoma of the thyroid. I could not have radio iodine due to the TED.
My question is this, now I no longer have a thyroid can I expect my PTM symptoms to gradually subside? My left leg is particularly badly 'scarred'. My endo said that there was no cure for PTM it should fade & no treatment! He said look it up on the net! (That was in 2013).
I've had an ulcer on my right leg, 2014, which after going to hospital for tests showed my circulation was good, venous & arterial. (Thankfully the ulcer cleared up the next year). The leg ulcer service nurse has assumed it was due to the PTM. I had TKR on my r leg 11 weeks ago & hope it doesn't affect my recovery. So far so good!
Can I expect to have trouble forever?
Does anyone else out there have PTM? Any ideas as to treatment? I'm due to see endo in May.
Thanks for any input.
Happy NewYear folks
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