Predisolone

Sheilamac_Fife junieju · 2016-01-28T17:36+00:00

Maybe his Adrenal system hasn't restarted yet. Could have it tested. Although, as others have said that's been a remarkably speedy reduction! I've been 18 months and just got to 6mg!

Sheilamac_Fife junieju · 2016-01-28T17:38+00:00

Sorry, just spotted Ptolemy has already suggested this. I missed it! Looking forward to hearing what the GP says

LayneTX junieju · 2016-01-28T18:03+00:00

Dehydration is another big factor. Makes me real tired.

noninoni junieju · 2016-01-28T18:48+00:00

I just read a great phrase in the NY Times about a "spiral of decline", where you get weaker and weaker and lie down more and more. This was in reference to back pain, but I think it also applies to me and possibly to your husband.

It is very hard to stay fit and exercise when you are really tired. In my case I get cold (Raynaud's) and go back to bed just to warm up! I want those quilts! And I have a medical excuse- I am supposed to put my legs up fairly often because my legs have had DVTs and the circulation is rather messed up. But it is all really just that I am lazy. I am fighting it, and that phrase "spiral of decline" is a good motivator.

So do tell your husband to keep fighting it, and either get those tests, or up his prednisone dose after talking to your doctor. I agree that reduction is too fast.

Anhaga junieju · 2016-01-28T20:56+00:00

I've been feeling really fatigued lately, since being at 7 mg for a couple of months and now trying to reduce a bit more. It may be the adrenals, but I understand they are part of a complex feedback loop involvling other organs. Is his blood sugar level okay?

reggie92967 junieju · 2016-01-29T14:30+00:00

I have had similar symptoms prior to & still have since PMR diagnosis, July, 2015. I have a co-existing disease, although my specialist for that felt my fatigue, lack of ability to feel physically like doing anything, was now being caused by something else. She felt this way due to having me on a successful new medication treatment & things looking so much better. She referred me to a collegue of hers, a well known rheumatologist, & he discovered & diagnosed PMR. I'm playing with the doses of Prednisone, but having the ups & downs so many with PMR experience. I was blaming myself so badly, & thought I was just being lazy, depressed, just started feeling worthless due to lack of energy, or physically being able to accomplish much of anything. I finally had to accept that this is just the way it is for now. My wife's support & constantly reassurring me that I have plenty of reason to be fatigued, to have these limits now, helped me so much. To have her understanding, support, & actually someone's permission to just feel this way was such a help. We though, have found ways, that have been good, to slow down our fast paced life. One was learning to say no to others, including family & friends. We do allot of other things, simpler things now that we really enjoy but didn't do, letting our fast, always on the go, high energized, over committing lifestyle get in the way of the simpler pleasures in life. This has been our bit of silver lining shining through the storm. We are enjoying many things like movies at the theatre & at home, reading, researching, the art of hand writing letters again, enjoying time to let our pets sleep on our laps, news/talk shows, sitting together by the fire, reading out loud to each other books, eating at home, way less restaurants, cooking/baking at home. Ordering take out food, but having delivered, not running out to pick up & adding 10 errands on the way. Taking short road trips driving by places we never made the time to drive by & see. My wife usually drives, I sit back rest, relax, we keep our phones & the car radio off. I have finally discovered my own backyard & property, 13 acres of undiscovered beautiful nature, I was always too busy, I had too much else to get done to take time to casually, slowly roam & discover. My dogs are loving me for this, they always go with me of course. I sat looking at the full moon the other night, listening to an owl hoot, the snow was all lit up fron the moon. I took a path another night that winds back to our neighbhors property that I'd never been down in 14-yrs. Hoping some of these life changes we've made also work for your husband & you as they have for us too.

Predisolone

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Thanks for your help!